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28, Ledderhose in both feet and now Dupuytren's
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11/12/19 22:59
GaryCr 
11/12/19 22:59
GaryCr 
28, Ledderhose in both feet and now Dupuytren's

I thought I would share my story. I am 28 and have had Ledderhose in both feet for approximately 10 years which could be physically seen. Progressively the modules have been getting larger but this past year the left foot nodules have nearly equaled the size of the nodules in my right foot.

I get a lot of pain with the nodules first thing in the morning when I get out of bed or if I get out of bed too quick the pain can be excruciating. I need to be very careful when walking as if I am to step on something and it hits the area of the nodules I embarrassing either let out a yelp or on occasion I have stumbled and near fell . I also get hip and leg pain as I stand on the sides of my feet if I am standing still for prolonged periods of time. I had trained my brain to not automatically do this as I was so aware that I was doing so but it seems to have creeped back again to being the normal for me. I have always stood on the side of my feet from early teens and my consultant said it could have been very early signs of LD in my feet.

My consultant examined my hands approx 3 years ago and although there were no physical signs, stated that he could notice the start of Dupuytren's. This past 2 months I have noticed a visible lump on my left hand 3rd finger and can see noticibly tendons pulling in although not much curvature of the fingers as of yet thankfully.

My mother has Dupuytren's in one hand, so far has has 2 procedures with the nodules returning each time although now they are unable to straighten her little finger fully. I have both an uncle and great uncle who have suffered from Dupuytren's although no family members with LD.

I have had various sets of orthotic insoles made but each time I have went back for my review I have needed new ones as the nodules have moved slightly or grew. Physiotherapy dropped me after 3 weeks as because I have flat feet and the exercises were painful then they didn't want to continue.

Although my mother's surgery did not rectify the problem with her Dupuytren's I was wondering if anyone has previously had the surgery to remove LD and have had no signs of return?

Gary

11/13/19 00:40
GaryCr 
11/13/19 00:40
GaryCr 
Re: 28, Ledderhose in both feet and now Dupuytren's

I have just realised I shared my story a few years back but at least it's an update and hopefully since then some people may have more information about the surgery :)

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