Women with Dupuytren's |
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05/18/2022 23:15
Prof.Seegenschmiedt
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05/18/2022 23:15
Prof.Seegenschmiedt
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Re: Women with Dupuytren's are not really different from men with Dupuytrens
Dear Debbie GG
My strong advice for you would be . "BE PATIENT with you, your hands and your life ...."
WEDDINGS and DUPUYTREN DISEASE(DD) or Ledderhose Disease (LD) are not related to each other ar not a good reason to rush into an insufficient prepared treatment of one of the most pretious body parts - YOUR OWN HANDS,
You could already know, to have DD or LD does not mean that you have to treat it, when you know the diagnosis from a medical specialist; DD and LD can be dormant and without anY disabilities or impairment of quality of life for many years
TO TREAT or NOT TO TREAT that is the true question - and anxiety or nervosity are wrong advisors
TAKE THE & 6 POINT SCALE AS BASIS for YOUR PERSONAL evaluation and further long-term assessment:
N = NODULES --< within 3 - 6 months nodules are larger, harder or increased in numbers
C = CORDS --< within 3 - 6 months Cords are larger, harder or increased in numbers
A = ANGULATION --< within 3 - 6 months flexion deformity has increased for 1 - 4 fingers
S = SYMPTOMS --< within 3 - 6 months Symptoms (like itching, burning sensations) have increased
P = PAIN --< within 3 - 6 months PAIN ZONE AND AREAS are larger, harder or increased in numbers
F = FUNCTION --< within 3 - 6 months FINGERS AND HAND FUNCTION HAVE WORSEND DEFINED WITH SPECIFIC HAND TESTS
IF 3 or MORE CRITERIA HAVE CHANGED OVER A PERIOD OF 3 - 6 MONTHS RADIOTHERAPY IS INDICATED.
If you need assistance with your DD or LD diagnosis and definition of your specific disease status, we could arrange a SPECIAL MEDICAL VIDEO CONSULTATION via ZOOM or another provider.
For this purpose please contact me and send a brief summary of "your case" WITH ADRESS & TELEPHONE for personal identification . I will send you our forms and graphs to define your personal disease status and arrange the planned consultation. PLEASE DO NOT SEND MASSIVE DATA OR PHOTOS
CONTACT E-MAIL: prof.seegenschmiedt@gmail.com
in deutsch:
Mein dringender Rat für Sie wäre . "GEDULDIG sein mit dir, deinen Händen und deinem Leben ..."
HOCHZEITEN und DUPUYTREN-KRANKHEIT (DD) oder Ledderhose-Krankheit (LD) stehen in keinem Zusammenhang und sind kein guter Grund, sich in eine unzureichend vorbereitete Behandlung eines der wertvollsten Körperteile zu stürzen - IHRE EIGENEN HÄNDE,
DD oder LD zu haben bedeutet nicht, dass Sie diese behandeln lassen müssen bereite wenn Sie die Diagnose eines Facharztes kennen; DD und LD können viele Jahre inaktiv und ohne Behinderungen oder Beeinträchtigung der Lebensqualität sein.
BEHANDELN oder NICHT BEHANDELN, das ist die eigentliche Frage – und Angst oder Nervosität sind falsche Ratgeber dabei.
NEHMEN SIE DIE & [b]6-PUNKTE-SKALA ALS BASIS für IHRE PERSÖNLICHE Bewertung[/b] und die darauf folgende weitere Langzeitbeurteilung:
N = KNOTEN --< innerhalb von 3 - 6 Monaten sind die Knötchen größer, härter oder zahlenmäßig vermehrt
C = CORDS / STRÄNGE --< innerhalb von 3 - 6 Monaten Stränge sind größer, härter oder haben zahlenmäßig zugenommen
A = ANGULATION / WINKELDEFIZIT --< innerhalb 3 - 6 Monaten hat die Flexionsdeformität an 1 - 4 Fingern zugenommen
S = SYMPTOME --< innerhalb von 3 - 6 Monaten haben die Symptome (wie Juckreiz, Brennen) zugenommen
P = SCHMERZ --< innerhalb von 3 - 6 Monaten sind die SCHMERZEN stärker bzw. die SCHMERZZONEN UND -BEREICHE größer, härter oder zahlenmäßig vermehrt
F = FUNKTION --< innerhalb von 3 - 6 Monaten FINGER- UND HANDFUNKTION HABEN SICH VERSCHLECHTERT DEFINIERT MIT SPEZIFISCHEN HANDTESTS
WENN SICH 3 ODER MEHR KRITERIEN ÜBER EINEN ZEITRAUM VON 3 BIS 6 MONATEN VERÄNDERT HABEN, IST EINE STRAHLENTHERAPIE INDIVIDUELL sinnvoll:
Wenn Sie Unterstützung bei Ihrer DD- oder LD-Diagnose und der Definition Ihres spezifischen Krankheitsstatus benötigen, könnten wir das tun vereinbaren Sie eine SPEZIELLE MEDIZINISCHE VIDEOKONSULTATION über ZOOM oder einen anderen Anbieter.
Hierzu kontaktieren Sie mich bitte und senden eine kurze Zusammenfassung „Ihres Falles“ MIT ADRESSE & TELEFON zur persönlichen Identifizierung. Ich sende Ihnen unsere Formulare und Diagramme zu, um Ihren persönlichen Krankheitsstatus zu definieren und zu definieren das geplante Beratungsgespräch vereinbaren. BITTE KEINE MASSIVE DATEN ODER FOTOS SENDEN
MVZ RUHRRADIOLOGIE – RUE 191 GmbH Rüttenscheider Strasse 191, 45131 Essen ( Germany) Telefon: +49 (0) 201 799 86 90 // Fax: +49 (0) 201 779 86 999 // https://ruhrradiologie-essen.de/essen-rue191/ E-mail: praxis@ruhrradiologie-essen.de Tel: +49.201.7998690 / Fax: +49.201.773429 info@ruhrra
KONTAKT E-MAIL: prof.seegenschmiedt@gmail.com
Edited 05/19/22 13:41
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05/20/2022 18:05
DebbieGG
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05/20/2022 18:05
DebbieGG
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Re: Women with Dupuytren's
Thank you so much for offering to consult on my case. I still have a few weeks until my doctor appointment and after that I will need to assess my options. Right now the lumps don't hurt or itch and don't seem to have changed since the last one appeared a few weeks ago. The "new" one seems harder but the "old" one seems softer and flatter but maybe that's just the way this disease goes- no rhyme or reason.
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07/19/2022 09:50
Rebecca
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07/19/2022 09:50
Rebecca
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Re: Women with Dupuytren's
Rebecca :) Diagnosed at 19/Female/Family History of Dupuytren
I was diagnosed just after I started puberty in my late teens.
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02/16/2024 12:44
cvilleroby
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02/16/2024 12:44
cvilleroby
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Re: Women with Dupuytren's
Is this page still active? Is Prof Seegenschmiedt still practicing? I could do with some help.
I am female, 64, in the US. Growth started with small painful nodules in the right foot at age 63, a few years after beginning bioidentical hormone therapy, which I started about 7 years after menopause. I also spent very long hours in the garden for several years during the pandemic. I also gained 20 pounds which must have a bad effect on development. There is new nodule growth in the right foot and now pain in the left which I believe is the beginning of a new growth. No family history.
I have had 3 rounds of injections with Hyaluronidase in the last 6 months from a podiatrist and have applied verapamil cream to my right foot for about a year. Pain has not decreased and there is now chord development in the right foot.
I understand the long-term downsides of RT, but I am an incredibly active person and life as I know it has come to a dead halt because of the pain of simply walking, even though I cut out holes in the inserts of my shoes. It is devastating. I have to weigh the chances of a future cancer with a steep decline of the quality of life during my remaining active years.
Thoughts?
Edited 02/16/2024 13:08
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02/16/2024 16:07
wach Administrator
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02/16/2024 16:07
wach Administrator
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Re: Women with Dupuytren's
Prof. Seegenschmiedt ist still practicing. He is also offering video vconsulting which might be a good start. I believe hus address prof.seegenschmiedt@gmail.com is still working.
Wolfgang
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06/12/2024 23:23
Kerryst
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06/12/2024 23:23
Kerryst
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Re: Women with Dupuytren's
Hi, I am 55, I was just diagnosed with Dupuytren's after I broke my wrist and had surgery. I have 3 nodules in my right palm where the cast was very tight. Does anyone recommend a Doctor in Seattle for Needle fasciotomy (NA). I would like to do something now before it contracts. Thanks, Kerry
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06/13/2024 00:54
nanshands
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06/13/2024 00:54
nanshands
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Re: Women with Dupuytren's
Kerryst: Hi, I am 55, I was just diagnosed with Dupuytren's after I broke my wrist and had surgery. I have 3 nodules in my right palm where the cast was very tight. Does anyone recommend a Doctor in Seattle for Needle fasciotomy (NA). I would like to do something now before it contracts. Thanks, Kerry
Hi Kerry, Have you considered radiation therapy, since it appears you may be in early stages of DC? Are you seeing and signs of contracture? RT isn't painful. NA is, and typically needs repeating down the road if you are having contraction. Not all nodules lead to contraction. I had RT 10 years ago and haven't had any contraction or progression since then.
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06/13/2024 05:06
spanishbuddha Administrator
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06/13/2024 05:06
spanishbuddha Administrator
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Re: Women with Dupuytren's
Kerryst: Hi, I am 55, I was just diagnosed with Dupuytren's after I broke my wrist and had surgery. I have 3 nodules in my right palm where the cast was very tight. Does anyone recommend a Doctor in Seattle for Needle fasciotomy (NA). I would like to do something now before it contracts. Thanks, Kerry
Another option to consider, if you have sore inflamed nodules, is a steroid injection into or around the nodules. Triamcinolone seems to be effective for some people. DD often goes in cycles, quiet, progression, quiet again, or just a very slow ongoing continuation, so after injury or surgery it may settle down but helping it to do so is worth a try. SB
Edited 06/13/2024 05:07
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7 hours ago
Kerryst
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7 hours ago
Kerryst
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Re: Women with Dupuytren's
Thank you for the encouragement, I asked my surgeon about having steroid shot so it wouldn’t progress and he refused to do it until it’s a contracture. Do you find it’s difficult to find a doctor to do preventative care for DC? I think I need to find a new Doctor.
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