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How many are we?
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08/20/2009 17:09
helmet 
08/20/2009 17:09
helmet 
Re: How many are we?

Jurate, I´ve been eating aspirin on and of fpr 20years. When the pain is bad, I take them all day, but it only takes away the worst pain. And if it made them shrink, I dont know, seens I´ve never been "of aspirin" while they grown.

And I´ve tried several other NSAD´s becaus I also have som kind of Reumatic dissorder. I´ve tried Metotrexate, a cytotoxic drug, but it didnt help either. SO I´m lost...

But thanks for charing. All information of possible painkilling and treatment is important for me.

09/08/2009 01:57
suzzy

not registered

09/08/2009 01:57
suzzy

not registered

Re: How many are we?

I found something interesting about my dupuytren's and Lederhosen, I found out that it could be a decrease of androgens (male hormone) this is what the adrenals produce. I will find a natural dr. and do a hormone saliva test to see if I am low on Testosterone. In pub med they talked about women in post menopause that this could form because of the decreased androgens hey it did happen to me during menopause.

09/08/2009 22:10
jurate

not registered

09/08/2009 22:10
jurate

not registered

Re: How many are we?

Hi Suzy. It's the female hormones that decline most during menopause. And several publication say that Dupuytren's and Ledderhose are more common in men than in women. So that it makes it sound to me that it's unlikely to be due to low testosterone.

09/14/2009 21:37
Sophie

not registered

09/14/2009 21:37
Sophie

not registered

Re: How many are we?

The Phoenix Lives, I am in WASHINGTON State as well and wonder if you would mind sharing the name of your talented podiatric surgeon. I have three nodules and a cord on my left foot and two nodules and a cord on my right foot. I have been getting cortisone shots in my nodules about every three months. It shrinks them a little and makes them a little less painful but they always grow back!! I also have Hashimotos and arthritis showing up in almost every joint bilaterally. Also if you have a good Rheumatologist.......that would be great too!

Sophie

09/22/2009 21:28
cblenape

not registered

09/22/2009 21:28
cblenape

not registered

Re: How many are we?

How about an injection of XIAFLEX that has been reported (WSJ Sept. 09) to have been successful for DC? I am a 57 year old female that has both DC and LD although my DC is not bad. My LD developed quickly after I began taking glacosamin.

10/05/2009 15:15
hsemerson

not registered

10/05/2009 15:15
hsemerson

not registered

Re: How many are we?

One more!

52-year-old marathon runner from Columbia, MO with

DC in right hand
Ledderhose nodules in both feet
knuckle pads in left hand
frozen left shoulder

and until today had no idea that they could all be related. Last time I checked, I have no symptoms of Peyronie's; otherwise, I seem to be collecting the whole set.

10/05/2009 15:53
Marisyl 
10/05/2009 15:53
Marisyl 
Re: How many are we?

I'm curious about a connection with glucosamine, which I had been taking prior to seeing the nodules in my feet last December.

11/03/2009 06:10
bikerjohn2009 
11/03/2009 06:10
bikerjohn2009 
Re: How many are we?

Hello, I have LD in my left foot. I know I was the youngest person ever to have this disease. Dont know if I still am, but I first got diagnosed with this when I was 7 years old. I had a lump the size of a pea in my foot. They thought it was a cyst and removed it. It wasnt until it returned a month later the size of a marble that they realised what it was. I am 46 now and it has recently started growing again. I also developed DP in both hands around 7 years ago, which is steadily getting worse.

11/03/2009 21:26
flojo 
11/03/2009 21:26
flojo 
Re: How many are we?

Biker John,

How fast is your DD progressing?

Wondering - what treatments are you considering for DD? RT? NA?

11/17/2009 16:49
AhmadF 
11/17/2009 16:49
AhmadF 
Re: How many are we?

Hi
I am a 53 year male, orginally from Bangladesh but living in the UK since 1972. I have DD on my left hand but no contracture yet for over 3 years and early signs on my right hand. I also have LD on both of my feet for about the same time. When the feet are not in use for a long time, they can be painful. I have been seen by a consultant hand specialist who suggested no treatment until it becomes unbearable.

Unfortunately, I have also suffered from frozen shoulders (both left and right) for over five years and now have restless leg syndrome. I would be interested to learn if there are correlation between these deseases.

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treatment   Germany   developed   Dupuytren   fibroproliferative   started   disease   Ledderhose   thyroid-auto-immune   N-Acetyl-L-Cysteine   aspirin   radiotherapy   arthritis   Dupuytrens   nodules   radiation   Rheumatoid   problems   insurance   surgery