| Lost password
410 users onlineYou are not loggend in.  Login
How many are we?
 1 .. 4 5 6 7 8
 1 .. 4 5 6 7 8
11/17/2009 17:35
wach 

Administrator

11/17/2009 17:35
wach 

Administrator

Re: How many are we?

Ahmad, there are several diseases that are - somehow - related to Dupuytren's disease. Have a look at this web site (menu on the left side), it gives a good overview.

Wolfgang

Quote:



Hi
I am a 53 year male, orginally from Bangladesh but living in the UK since 1972. I have DD on my left hand but no contracture yet for over 3 years and early signs on my right hand. I also have LD on both of my feet for about the same time. When the feet are not in use for a long time, they can be painful. I have been seen by a consultant hand specialist who suggested no treatment until it becomes unbearable.

Unfortunately, I have also suffered from frozen shoulders (both left and right) for over five years and now have restless leg syndrome. I would be interested to learn if there are correlation between these deseases.


11/18/2009 23:19
Toritash

not registered

11/18/2009 23:19
Toritash

not registered

Re: How many are we?

I have 2 sisters and 2 brothers and they all have DC on one hand and now I have just started in my left hand. One of my sisters had surgery a few years ago and doing fine. I also noticed small pads on knuckles. I started with LD on my feet a couple of months ago. Thought I only had one but when went to foot doctor he said I have a few along the bottom. They are small but getting painful. Think I will have to do something soon. We are in RI and MA.

11/20/2009 18:16
clarissa

not registered

11/20/2009 18:16
clarissa

not registered

Re: How many are we?

I am 58 year old female from Maryland, USA who has had Ledderhose since my twenties. I now have it in both feet and Dupuytrens in both hands. I have no underlying diseases and I am not heavy drinker. My mother, brother, and sister all have Dupuytrens, but none have Ledderhose. I guess I decided to challenge the statistics

12/02/2009 14:49
AhmadF 
12/02/2009 14:49
AhmadF 
Re: How many are we?

Thanks Wolfgang

12/03/2009 01:28
VixViper 
12/03/2009 01:28
VixViper 
Re: How many are we?

I am a 29 yo woman from Melbourne, Australia

I was diagnosed earlier on this year with Plantar Fibromatosis.

No idea how many modules I have, I wasn't told. Specialist I saw was not very helpful. Paid a lot of money for a lot of nothing. He told me to come back when the pain is unbearable for shots or surgery. I do not want to go down the surgery route as I'm a stay at home mum of two small active boys - I can't be out of action. Plus I don't trust surgery not to have long term problems of its own.

Pain comes and goes but when I have the pain it's very bad.

12/03/2009 05:26
newman 
12/03/2009 05:26
newman 

Re: How many are we?

Hi Australia Calling- Adelaide. Welcome to the forum. DO NOT in your wildest dreams consider Surgery on your feet. I would look at the option of radiotherapy treatment . I have had treatment on both feet in Essen Germany. Age is a risk factor but the risk is very low as this is a low dose treatment not like the treatment of cancer.Whilst in Germany they were treating a 12 old girl for Ledderhose with RT. This treatment is now available in Australia. You made mention of Orthodics in another post . I used to have to wear them (High arches are just as bad a flat feet) . For the moment whilst you inform yourself about Radiotherapy try when you rise in the morning place a tennis ball under the arch and massage for a couple of minutes. I there is not much discomfort try standing and increase the pressure. Dont over do it . Lace up shoes are important .I have found ecco brand shoes have good thick inner soles which helps absorb the shock.(end of high heels ) Have you had an Ultra sound or Mri. About 40% of patients with Ledderhose will develope Dupuytrens. Check your family as this disease is more probable to be passed on to future generations. Finally I found the German made Birkenstock or Rohde Sandles are great. Keep us posted.

Edited 12/03/09 08:01

01/04/2010 03:09
barb 
01/04/2010 03:09
barb 
Re: How many are we?

I am new here and have just been diagnosed with LD in both feet and DC in my hand. My doctor did not seem interested in this, saying there isn't any treatment, and sent me on my way.

I am 52 - a woman , no family history on this.
I am surprised to hear so many doctors want us to wait and do nothing, have surgery if it becomes unbearable and not consider any other options. Radiation therapy seems reasonable to me. I hope to find it in the Northeast USA , and will not wait for this to worsen.

I am thankful to find a forum here.


01/05/2010 21:11
jurate

not registered

01/05/2010 21:11
jurate

not registered

Re: How many are we?

Barb, if you find a doctor in the Northeast US who will do radiation therapy, I hope you will come back here and post the information. I live near New York City. With all the medical centers here it is amazing that won't do this treatment. It's not that they oppose it, it's just not the style of treatment favored here. I've spoken at some length to Memorial Sloan Kettering who finally told me that they don't treat benign tumors, only cancerous ones. It's mystifying. There are outstanding clinics and doctors that use radiation on the west coast, including Scripps and one near Stanford University, and there are others in the US that are listed on this site.

I've had the plantar fibromas for about a year and a half now. I would probably be more aggressive about seeking treatment if the lumps hurt, but they usually do not. After an initial spurt of growth they stopped growing. I understand that radiation therapy is most effective when the lumps are actually growing. I would like to have a plan in place in case they begin growing again.

I didn't think I had a family history, but when I went to visit my parents last year my father told me he has one Dupytren's nodule, and my brother has Ledderhose on both feet. In neither case is there pain, and they regarded the lumps as curiosities.

02/14/2010 00:37
jab 
02/14/2010 00:37
jab 
Re: How many are we?

I am 52 years old male norwegian descent I live in oregon I have dup both hands -peyronies- leddserhose both feet 4 needle treatments in right hand .Currently have torn palmar fascia owch

02/14/2010 00:41
jab 
02/14/2010 00:41
jab 
Re: How many are we?

also had knuckle pads removed 4 from each hand

 1 .. 4 5 6 7 8
 1 .. 4 5 6 7 8
insurance   aspirin   treatment   Dupuytren   Dupuytrens   Rheumatoid   surgery   developed   Germany   fibroproliferative   disease   nodules   problems   thyroid-auto-immune   started   radiation   Ledderhose   arthritis   radiotherapy   N-Acetyl-L-Cysteine