Am new to this forum and so glad that I found it.

Received the news a few days ago that I have Ledderhose in my left foot and quite frankly, am still in shock. I am doing as much research online that I can muster before my appointment with Dr. Herman of the University of Oklahoma Health Sciences Center in OKC, OK for RT. I do feel quite fortunate that I have found an Oncology treatment center so close to my new home here in Tulsa. I have just moved back to the mainland from the Hawai'ian Islands.

As many of you probably have, I have made a page of notes to discuss with Dr. Herman on next Tuesday and made special notes of anything in my past that could have contributed to my getting this disease.

I am a fifty-four year old female, post menopausal. Couple of drinks a week, smoke cigarettes, no history of epilepsy, no diabetes, know nothing of liver disease - never been checked and suppose I would know something was up with that. BUT, my father's younger brother did have Ledderhose and became quite crippled with it and died in that form in the late 1980s.

I am of Shawnee and English descent on my maternal side and my father was Irish, Cherokee and African American.

Lengthy summation, I know. But, would welcome any comments and so very glad to have found you all.

Paradise,

I've had Ledderhose for over ten years also...two nodules, the size of marbles, in the middle of my left arch...since my arches are high the nodules, fortunately, have never bothered me for walking.

Last November I had RT on my left foot at Scripps Hospital in LaJolla,CA. The nodules have shrunk considerably and what remains is very soft. I am thrilled with the results. By the way...I also have Dupuytrens in my left hand which was also treated with RT...all the nodules of the left hand have softened and the progression of the DD has stopped for now.

On my right hand I have DD on small finger which I have treated twice with NA (Needle Aponeurotomy)...but that's a separate story...

Good luck with your RT treatment for your Ledderhose...keep us posted.
This IS a wonderful forum...

Luba

Hi all

Thought I would share some investigative data that I came across that seems to be a common denominator for some arrestment of this disease?

Came across a personal story that a gentleman had posted about his radiation therapy. In it, he says that he took massive amounts of vitamin E following his RT. Also, a woman that over a seven month period, used vitamin E and Vicks (of all things?) on the tumor in her foot. Wrapped the vitamin and Vicks and used heat for hours, daily over this period of seven months.

Her tumor diminished.

I am quite aware that all patients are different with this disease. But, thought it was an interesting common denominator with the vitamin E application and oral taking of.

I plan on giving it a try. But, heat in lieu of cold packs?

Any thoughts?

Paradise,

I know what you are going through. I've surgery on both feet, and my left twice. The second time being 8 weeks ago. I'm still on crutches and in pain! DO NOT do surgery!! I am going to try radiation on my right foot once I'm healed from the surgery. I wish I had not done this latest surgery. I hope you and others are spared from this surgery. It is not pleasant at all! Best of luck to you; please post your resutls. I will be doing the same.