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More on managing the condition
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06/13/2011 21:09
flojo 
06/13/2011 21:09
flojo 
Re: More on managing the condition

Interesting observation.

I agree, if anyone has a consultation with Dr. S, please ask him whether the hot/cold dipping after RT on hands is recommended.

06/13/2011 21:47
Chobe2 
06/13/2011 21:47
Chobe2 
Re: More on managing the condition

flojo:
Interesting observation.

I agree, if anyone has a consultation with Dr. S, please ask him whether the hot/cold dipping after RT on hands is recommended.
Very strange because Prof. S specifically told me to avoid temperature extremes with my hands and feet - no hot or cold water. I'm here in hamburg right now and will see him on Tuesday so I'll ask.

Diane

06/14/2011 09:19
Cyclist 
06/14/2011 09:19
Cyclist 

Re: More on managing the condition

Hi Diane
The difference could be the degree of heat and cold, but checking sounds like a good idea - let us know what Prof S. says

Also, I just remembered he also recommended some exercises including grasping stones with your toes and walking through water to strengthen the feet

We should try and compile a sheet of advice to share with others on the forum

I hope you're having a good time in Hamburg

All the best
Di

Chobe2:
flojo:
Interesting observation.

I agree, if anyone has a consultation with Dr. S, please ask him whether the hot/cold dipping after RT on hands is recommended.
Very strange because Prof. S specifically told me to avoid temperature extremes with my hands and feet - no hot or cold water. I'm here in hamburg right now and will see him on Tuesday so I'll ask.

Diane

06/14/2011 17:33
flojo 
06/14/2011 17:33
flojo 
Re: More on managing the condition

Good idea, Di, about compiling a list of recommendations. It would be good to have one for DD, too. Would a Q & A format work?

I just love the people on this Forum! Everybody thinking about how to help others.

06/15/2011 14:25
Chobe2 
06/15/2011 14:25
Chobe2 
Re: More on managing the condition

I saw Prof. S on Tues. and asked about the hot/cold dip for hands. He was quite busy so it may have not been the best time to ask. He said that you could try it if you want. Sorry - that was the best response I could get.

Diane

06/15/2011 14:46
wach 

Administrator

06/15/2011 14:46
wach 

Administrator

Re: More on managing the condition

Doesn't sound likke something that is strictly recommended, does it?

Wolfgang

Chobe2:
I saw Prof. S on Tues. and asked about the hot/cold dip for hands. He was quite busy so it may have not been the best time to ask. He said that you could try it if you want. Sorry - that was the best response I could get.

Diane

06/15/2011 21:47
LindaM 
06/15/2011 21:47
LindaM 
Re: More on managing the condition

I finished up my second round of RT with Dr Weiss at VCU a few weeks ago. Both my left hand and left foot were treated. My instructions were to avoid hot and cold on the radiated areas and to limit exercise activity. Dr Weiss feels the best results are achieved by taking it easy during and 6 weeks after the treatments. Just an FYI from my experience.

06/16/2011 12:01
Cyclist 
06/16/2011 12:01
Cyclist 

Re: More on managing the condition

Looks as though we better leave this suggestion off our advice sheet
Di

LindaM:
I finished up my second round of RT with Dr Weiss at VCU a few weeks ago. Both my left hand and left foot were treated. My instructions were to avoid hot and cold on the radiated areas and to limit exercise activity. Dr Weiss feels the best results are achieved by taking it easy during and 6 weeks after the treatments. Just an FYI from my experience.

06/16/2011 12:14
Cyclist 
06/16/2011 12:14
Cyclist 

Re: More on managing the condition

Hi Diane
Thanks for following this up and letting us know. That's a bit wierd, Prof S. definitely recommended this, and it does seem to fit the idea of getting the blood circulating, but perhaps it was meant to be tried after some recovery time and also not overly hot or cold. Anyway, it sounds like something we shouldn't be recommending if we put together a summary of advice for this condition as it conflicts with 'across the board' advice to avoid temperature extremes.
I hope your treatment and your time in Germany is going well for you
All the best
Di


Chobe2:
I saw Prof. S on Tues. and asked about the hot/cold dip for hands. He was quite busy so it may have not been the best time to ask. He said that you could try it if you want. Sorry - that was the best response I could get.

Diane

06/16/2011 12:37
Cyclist 
06/16/2011 12:37
Cyclist 

Re: More on managing the condition

Hi Flojo
I love this forum too and agree it's such a good thing to see all this enthusiasm and support.

I think a Q&A format would work well. Or we could set it up as dot points under "what works and what doesn't " so it's not so easily confused with medical advice. What do you think?

I'm wondering about how to compile this 'collaborative patients' experience' over the internet, which could be tricky. Should we each pick a few questions, write them up and then post it for comments and additions?

I could start with the things I've recently posted (MINUS the hot/cold foot baths, which are clearly conflicting with some other medical advice!)

di


flojo:
Good idea, Di, about compiling a list of recommendations. It would be good to have one for DD, too. Would a Q & A format work?

I just love the people on this Forum! Everybody thinking about how to help others.

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