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01/16/16 01:01
dpjcrfsh 
01/16/16 01:01
dpjcrfsh 
My status

I'm heading to Hamburg tomorrow for my second round of RT for both hands. Although I have Ledderhose in both feet and it started 8 years ago and predated the dupuytren's for several years, I opted to not treat my feet. Several reasons for this: 1) Concern of side effects, like slight cancer risk and other risks, 2) LD supposed rarely involves contraction which would be a big concern and 3) although I have about 3 nodes on one foot and 4 on the other, they have little practical effect on my life; they are all under that arch and I just have to avoid walking on things that push on the arch. I work out on weights 4 times a week and dance an hour a day. Still, whether to tread with radiation is something I've thought about extensively. Dr. S. said it was at the stage that he would treat, but he said it was fine not treating now. I can treat later if necessary. A big drawback might be having to take an additional 2 trips to Germany, the 12 hour flight was brutal for me. I've thought about doing the feet starting the 2nd round of the hand, if the hand result was good (which it was), but I'm still tentatively not planning to do the feet -- but may change my mind. My hands have shown no disease progression in the 3 months since the first round.

The standard Hamburg RT protocol is 5 days + 3 months wait + 5 more days. I'm curious if anyone has done the first 5 days and then just waited a few years to do the 2nd 5 days.

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