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New Ledderhose
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06/23/2014 14:24
JackT 
06/23/2014 14:24
JackT 
New Ledderhose

Hello All.

I have had DD appear in my right hand shortly after having my wrist pinned back together following a rugby incident in 2007. I had it operated on in 2009 because the lump grew rapidly but it’s come back but stabilised since and isn’t a problem, yet. However, I have two pea sized lumps, one in both foot arches, that have appeared fairly recently. They’re not painful yet but do ache a little. Any thoughts how best to nip this in the bud or is it too late? Are there risk factors that make it worse – I run a lot (my speciality is ultra-marathons) otherwise am pretty healthy and maintain a fairly low weight.
My feet are painful at times, particularly in a morning, and the lumps do seem to be active and growing.
I suspect all of this info is already on the forum but I’m very new to the disease and losing mobility is now starting to be a real fear. I want to stop it getting worse and try and understand what preventative options there may be. Thanks in advance.

06/23/2014 17:09
spanishbuddha 

Administrator

06/23/2014 17:09
spanishbuddha 

Administrator

Re: New Ledderhose

JackT:
Hello All.

I have had DD appear in my right hand shortly after having my wrist pinned back together following a rugby incident in 2007. I had it operated on in 2009 because the lump grew rapidly but it’s come back but stabilised since and isn’t a problem, yet. However, I have two pea sized lumps, one in both foot arches, that have appeared fairly recently. They’re not painful yet but do ache a little. Any thoughts how best to nip this in the bud or is it too late? Are there risk factors that make it worse – I run a lot (my speciality is ultra-marathons) otherwise am pretty healthy and maintain a fairly low weight.
My feet are painful at times, particularly in a morning, and the lumps do seem to be active and growing.
I suspect all of this info is already on the forum but I’m very new to the disease and losing mobility is now starting to be a real fear. I want to stop it getting worse and try and understand what preventative options there may be. Thanks in advance.
Welcome to the forum Jack

Ledderhose is normally treated conservatively, unless, until it becomes a painful problem, especially with mobility. The only real preventative option is RT. There are a few options for managing the condition and often these are enough for many people with slow developing fibromas. There are some discussions on this forum, check out the treatment tabs on this site, and for real in depth review of all possibilities checkout Gary Manley's blog http://ledderhose.blogspot.co.uk (he successfully had RT).

Do come back and let is know what you decide and how things turn out.

Best wishes

SB

06/24/2014 07:14
JackT 
06/24/2014 07:14
JackT 
Re: New Ledderhose

Thanks very much, I’ll make sure I read everything else here and then look at the blog too.
Much as I thought there’s little that can be done, save for possibly RT – but any views on whether running is good/bad/immaterial on LD? I have been doing very long distances and am unsure as to whether this might be a contributory factor to it starting if I was predisposed to it? Do you think I should stop and find other forms of exercise or actually do you think it may be a good thing to do whilst I still can? The lumps do seem to be growing slowly and I am noticing more pain now, particularly in the mornings. Thankfully at the moment it’s not so bad as to stop the running but it is progressing so I guess I’ll get there at some point and I wonder if there are ways to extend that timescale.
Thank you

06/24/2014 11:35
spanishbuddha 

Administrator

06/24/2014 11:35
spanishbuddha 

Administrator

Re: New Ledderhose

Not sure what to answer here as everyone is different. I would, as I am sure you do already, ensure you have the right running shoes for your type of running foot motion. Then, again if not already, ensure you have good quality shock absorbing insoles with support where you need it. (I play tennis and am obsessed with shoes, insoles and socks!).

Your question has come up before, try using the search facility on the forum, I found these three threads:
http://www.dupuytren-online.info/Forum_E...ng-1_254_1.html
http://www.dupuytren-online.info/Forum_E...-run-1_182.html
http://www.dupuytren-online.info/Forum_E...rhose-1_35.html
but they have different opinions.

06/24/2014 12:57
Seph 
06/24/2014 12:57
Seph 

Re: New Ledderhose

JackT; I am not at odds with spanishbuddha but you also might consider the option of push on until it stops you. It seems that the disease does vary from person to person so I can only relay how it has been for me.

In my case ledderhose came first and caused me a bit of pain when I started out in the morning. Once warmed up I was fine. I had an operation to remove the lump in the arch of my right foot but the lumps returned double the size and added my left foot few years later. This was followed by lumps and contractions in my left hand. Surgery resulted in more activity in my left hand followed by lumps and contractions in my right hand. I can't say that the surgery caused the increased activity but there is a close correlation between interference and increased activity.

That's the snapshot. In my case I did not have the means to have special shoes and/or insoles. In my twenties I did a bit of running resulting in blisters developing on the lumps in the arch of my feet. I popped the blisters and applied Mentholated Spirits. Makes all the other pains seem inconsequential.

This all started in my teens. I am now 60. I give my feet and hands hell. No special shoes or insoles. I don't run a lot but only because I get pins and needles in my feet when I run continuously for more than 15-20 minutes. This might be due to the ledderhose or could be other factors or maybe my scale (6ft, 240 lbs). One thing I am certain of is that the treatment I give my feet does not aggravate the ledderhose.

The ledderhose lumps are now like leather and stopped growing years ago. Lots of problems with my hands but my only concession there is that I wear gloves in the gym but this is just to reduce the calluses.

I am active in the gym, play a fair bit of tennis and cycle a bit. The only special treatment I give my hands and feet are things that help me do whatever it is I am trying to do. No adjustments to try and slow the DD or ledderhose.

If you can run my view is keep running.

Good luck.

06/24/2014 13:33
JackT 
06/24/2014 13:33
JackT 
Re: New Ledderhose

Dear Seph.

That is really encouraging, thank you!
I’ve not let anything stop me yet and despite lumps on my feet have completed several 150 mile ‘ultra’ runs. In fact I have a 50mile race this weekend. To give up on these events would be really depressing so until I feel otherwise I think I will carry on whilst I still can. I’m going to look into radiotherapy too as I think that is well regarded in stopping further development – which given I’m only 33 is something I’m keen to explore. At the moment the dupuytrens is more of an issue but I can live with that.
I'm nervous the abuse isn't helping but it doesn't seem from what you and several other people have said to be a contributory factor.
Best regards

06/24/2014 13:35
JackT 
06/24/2014 13:35
JackT 
Re: New Ledderhose

Spanish Budda.
Many thanks for looking at that for me – much appreciated. Yes, you are absolutely right, getting the right shoes seems to be imperative. I think I’m going to carry on but very much keep a watching brief and possibly try radio therapy (or at least have a consultation). I don’t want this LD to stop me!
Thank you!

06/24/2014 20:31
JohnG 
06/24/2014 20:31
JohnG 
Re: New Ledderhose

JackT:
two pea sized lumps, one in both foot arches ... ultra-marathons

Jack, have you seen a podiatrist?

Maybe this is Ledderhose, or maybe not. In either case, the podiatrist can make a special foam insert for your shoe that is shaped to your foot including any funny lumps in it. It's easy and not very expensive, so it might be worth a try.

What they do is warm a piece of foam in a toaster oven, then press it against your foot to shape it while it's still warm. Then trim with scissors and stick it in your shoe. For the step where they press it against your foot, that makes the surface of the foam conform to the shape of your foot, lumps and all.

Not sure if this is good enough for ultra-marathons. That sounds pretty special.

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