| Nodule vs. Soft Tissue Mass |
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07/24/2013 02:38
Rocket88 
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07/24/2013 02:38
Rocket88
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Nodule vs. Soft Tissue Mass
Hello all! I have LD in both feet and DD in both hands.
Have a mass about the size of a blueberry right under my second toe (next to the big toe.). It hurts to walk on it. I had X-Rays and am going to get an MRI. It's more of a sweeping mound mass as opposed to a 'round' mass.
I had two podiatrists say its some sort of mass that can be excised. I asked if it was a LD nodule. They said maybe, but most are not that far from the arch. It's probably just a 'soft tissue mass.' Both are eager to excise it, but I am not as eager.
I am afraid to have the surgery, have it be a LD nodule and it come back with a vengeance. Yet, I really don't want it to stay, in that it hurts and it hurts to walk.
Any ideas? Are nodules ever found in this location? All mine are in the arch on both feet, so it seems a bit out of place if it is LD. They make it seem as it is no big deal to take it out, but I have read differently on this forum.
Thanks!
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07/24/2013 04:47
Seph 
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07/24/2013 04:47
Seph
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Re: Nodule vs. Soft Tissue Mass
Rocket88; I too have LD both feet and DD both hands. Until recently the LD was confined to the arches of my feet but over the past couple of years I have had a soft tissue mass forming behind the toes on one foot that seems a lot like the LD lumps. I had a doctor look at it last year while getting NA done on my hands and she said she hadn't seem that before but it did seem like LD.
Dr Manet-Chopin's advice was to stay away from surgeons. If it is LD the risk of spreading it is high. Her advice was to ignore it if a could but consider cortisone injections to soften and possibly shrink the tissue. She suggested that if neither of those options worked the next step would be a combination of NA and cortisone. She has done this with a measure of success on nodules on my hands.
The primary advice though is do nothing if you can.
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07/24/2013 12:40
Rocket88
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07/24/2013 12:40
Rocket88
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Re: Nodule vs. Soft Tissue Mass
Thanks for the advice. I know in my mind that not doing anything is best. I guess I was just hoping that, so far up, it couldn't be an LD nodule.
But, like so many here, I wish there was a way to rid ourselves of this situation. Here in the US, so many doctors think that they can cut out the problem, when, like you said, it often makes it worse.
I often wonder if its a lack of knowledge on their part, or an overconfidence, or it's money motivated. Even myself, just a lowly layman, can read and see on here and other places not to cut.
It is sometimes hard to resist the urge for a promised 'cure.' Thanks for the advice.
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07/24/2013 17:48
newman
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07/24/2013 17:48
newman
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Re: Nodule vs. Soft Tissue Mass
Australia Calling,
Hi Rockett 88. I've had many surgeries on both hands. In 2000 I discovered a lump in the arch of my left foot and was later confirmed to be LD. My surgeon advised me not to touch it under any circumstances. Ie surgery. I tried authordics for some years. In 2007 I visited Prof Seegenschmiedt then in Essen Germany. I had also developed a lump under the area adjacent to the middle ball area of my right foot. I decided on Radiotherapy having 30 Gy on both feet. The lump in the left foot diminished and the right foot area became soft and created no further problem- I did away with the authordics. I was advised to wear only good quality shoes with a soft inlay in the base. I found the ecco shoes were great. Prior to RT I had great difficulty to walk on the beach over any small objects shells etc. I have been very happy with the outcome. May be have a holday in Germany and visit Hamburg where the Prof has a private practice. Regards.
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03/18/2014 19:42
Rocket88
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03/18/2014 19:42
Rocket88
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Re: Nodule vs. Soft Tissue Mass
Well, it kept getting bigger and I had it removed. I wouldn't do that with the ones on my arches, just this one was painful and couldn't walk well. CT scan said that it was a fibroma. Surgeon said that it was scar tissue, which I believe to be a fibroma. Will let you all know how it turns out. So far, so good but it's only been a few days.
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03/22/2014 06:45
Tamarakruse 
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03/22/2014 06:45
Tamarakruse
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Re: Nodule vs. Soft Tissue Mass
Good luck hopefully that will work well for you. Keep us posted. I am also interested in hearing.
Tamara
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04/08/2014 02:35
Rocket88
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04/08/2014 02:35
Rocket88
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Re: Nodule vs. Soft Tissue Mass
So far so good. 4 weeks post-op. Surgeon said it was 'scar tissue' which I believe is a fibroma. Seven stitches.
I would never have the others operated on, this one was just in a bad location. Walking on the healing incision hurts less than walking on the nodule, so that's good.
If it comes back, it does. Will cross that bridge if I have to.
Meanwhile, in addition to DC and LD, I found out that I have developed knuckle pads, and they are big, and crop up quickly. The fun never ends!
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07/27/2014 08:30
Rocket88
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07/27/2014 08:30
Rocket88
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Re: Nodule vs. Soft Tissue Mass
Well, I must report that I do not think that this was a Neuroma, but rather a nodule from Ledderhose.
Despite my discomfort pre-surgery, and apparent success, I now feel the growth returning, even more painful, and larger.
My take-away from this is that despite the location or discomfort, leave it alone surgery-wise!
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07/28/2014 05:45
GaryBall 
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07/28/2014 05:45
GaryBall
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Re: Nodule vs. Soft Tissue Mass
Rocket88:
Well, I must report that I do not think that this was a Neuroma, but rather a nodule from Ledderhose.
Despite my discomfort pre-surgery, and apparent success, I now feel the growth returning, even more painful, and larger.
My take-away from this is that despite the location or discomfort, leave it alone surgery-wise!
Some people have found that RT after surgery is a good option. It seems logical to me if cells are proliferating at a great rate. Maybe this is something you would consider...
Gazza
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