| Lost password
133 users onlineYou are not loggend in.  Login
Rheumatoid Arthritis and LD
 1
 1
04/01/11 02:13
marjorieb 
04/01/11 02:13
marjorieb 
Rheumatoid Arthritis and LD

Received a RA diagnosis to go with the LD, just a few hours ago.
I'm sure others on here are dealing with this, as well. I'm looking for tips on managing the pain and staying active. My ankles are so painful by the evening, that just standing is hard.
What mads have worked best? What about ankle supports, etc?
Thanks,
Beth

04/01/11 08:44
wach 

Administrator

04/01/11 08:44
wach 

Administrator

Re: Rheumatoid Arthritis and LD

Interesting. I have similar problems but no answer. Would be great if someone knew of a remedy.

Wolfgang

04/01/11 09:50
Cyclist 
04/01/11 09:50
Cyclist 

Re: Rheumatoid Arthritis and LD

Hi Beth and Wolfgang
No secret remedy here (unfortunately) and I don't suffer from rheumatoid arthritis. However, I have been inspired by a woman who has had the condition most of her adult life and she has found a way to manage her condition and her work lifestyle and has maintained a good level of fitness. She goes in and out of RA 'events' and when not suffering, catches up with her exercise and when experiencing symptoms, gets as much rest and looks after herself as much as possible. She has a very supportive partner - I believe this helps.
Keep in touch about how you are going Beth
All the best
Di

04/01/11 15:12
marjorieb 
04/01/11 15:12
marjorieb 
Re: Rheumatoid Arthritis and LD

Wolfgang,
Sorry to hear that. If you find any miracles, be sure to pass them on!

Di,
You are exactly right about what works, as far as lifestyle change and managing RA. I used to get so frustrated with patients who didn't follow the guidelines. Now, I understand. With three kids at home, and a full time job as a pediatric therapist, I really can't rest during flare-ups. I did take a nap during lunch, yesterday, though!

Thanks for the reply, both of you.
Have a healthy day,
Beth

04/02/11 05:06
marjorieb 
04/02/11 05:06
marjorieb 
Re: Rheumatoid Arthritis and LD

Just a funny note. I saw my neurologist today (also have a muscle disorder, lucky me). When he heard I now had DD/LD and RA, he said "They are connected, aren't they? You have the DD secondary to RA?". I told him that the Rheumatologist and Orthopedist said they weren't connected. He was shocked and said he didn't know how they could not be part of the same process. DId I say that I love my neuro? Too bad he can't handle all my ailments. He would find an answer and have us all strightened out.
Beth

04/02/11 12:56
Cyclist 
04/02/11 12:56
Cyclist 

Re: Rheumatoid Arthritis and LD

marjorieb:
Wolfgang,
Sorry to hear that. If you find any miracles, be sure to pass them on!

Di,
You are exactly right about what works, as far as lifestyle change and managing RA. I used to get so frustrated with patients who didn't follow the guidelines. Now, I understand. With three kids at home, and a full time job as a pediatric therapist, I really can't rest during flare-ups. I did take a nap during lunch, yesterday, though!

Thanks for the reply, both of you.
Have a healthy day,
Beth

Hi Beth
Yes, I see what you mean about your lifestyle not permitting a lot of rest - maybe you can make a few adjustments instead, like slowing the usual pace and being as kind to yourself as possible. Good on you for having a nap at lunch
Take care
Di

 1
 1
guidelines   experiencing   supportive   condition   understand   maintained   Orthopedist   lifestyle   frustrated   unfortunately   permitting   Interesting   flare-ups   Rheumatoid   neurologist   adjustments   Wolfgang   Rheumatologist   Arthritis   strightened