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Some advice for adding ML to the DUP treatment please
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 1
12/08/17 03:17
dupfortem 
12/08/17 03:17
dupfortem 
Some advice for adding ML to the DUP treatment please

I've been trying to sort the best person to see for some hand nodules and I might have a very narrow window to see Dr. Herkstroeter in Frankfurt. I have had several foot surgeries that didnt work well and my feet always hurt but after reading these forums its clear I have a cord in my right foot as well but can't say how long its been there or if it's active. No lumps or nodules just a hard cord on the first ray of the right foot.

That said is there anything I need to consider or try to do prior to seeing Dr. H for RT? Due to visa/immigration issues I will need to do everything I have to do in Germany in 90 days and won't likely be able to return after that logistically or financially and will have no access to specialists where I will live so its a one time shot and I need to arrange it best as I can. Does the cord need to be dealt with somehow prior to the RT visit? One of the patient experiences has someone in Germany being sent for NA in his hand and then RT right after....is this done for feet as well or is my only hope the RT will soften and limit the ML?

12/08/17 08:50
spanishbuddha 

Administrator

12/08/17 08:50
spanishbuddha 

Administrator

Re: Some advice for adding ML to the DUP treatment please

dupfortem:
I've been trying to sort the best person to see for some hand nodules and I might have a very narrow window to see Dr. Herkstroeter in Frankfurt. I have had several foot surgeries that didnt work well and my feet always hurt but after reading these forums its clear I have a cord in my right foot as well but can't say how long its been there or if it's active. No lumps or nodules just a hard cord on the first ray of the right foot.

That said is there anything I need to consider or try to do prior to seeing Dr. H for RT? Due to visa/immigration issues I will need to do everything I have to do in Germany in 90 days and won't likely be able to return after that logistically or financially and will have no access to specialists where I will live so its a one time shot and I need to arrange it best as I can. Does the cord need to be dealt with somehow prior to the RT visit? One of the patient experiences has someone in Germany being sent for NA in his hand and then RT right after....is this done for feet as well or is my only hope the RT will soften and limit the ML?
My experience is that the first visit is a consultation, so although you assume you are going for treatment, the treatment may not be performed. Of course that is also a good outcome. This expectation can to some degree be overcome by sending in advance good quality photos, annotated if necessary, with recent symptom descriptions. If you are treated, and on the feet, some people experience short term discomfort, heat, burning, pain, so some soothing cream or soaks would be useful along with extra comfort footwear.

12/08/17 17:13
dupfortem 
12/08/17 17:13
dupfortem 
Re: Some advice for adding ML to the DUP treatment please

Thanks for the post treatment advice :)

I understand I might be examined and not found to be a candidate but trying to preplan otherwise.

What I was trying ask is what are the possible additional prerequisite interventions for the feet in case RT is indicated but only after the cord is treated or something like this. Reading the ML treatment section doesn't make any cord treatment sound as clear as NA for the hands for example. In the patient experience I mentioned the gentleman went for RT for hands and had too much contraction so they immediately arranged NA in the area, and then he had RT shortly after in the same trip. Since I have a large (to me) cord in one foot I want to have options preplanned in case I need to do something similar as I don't have weeks to waste arranging and waiting for additional intervention if needed. Having an idea of what might be needed and either trying to get it done before going to Germany, or making local connectons/arangements to Since its probably going to be my one and only chance I need to maximise it. If I was told to go have some surgery and come back in 6 months I would be out of luck as I couldn't return so need to deal with anything required beforehand, or have potentially pre-arranged to do while there.

Edited 12/08/17 17:19

12/08/17 17:43
spanishbuddha 

Administrator

12/08/17 17:43
spanishbuddha 

Administrator

Re: Some advice for adding ML to the DUP treatment please

dupfortem:
Thanks for the post treatment advice :)

I understand I might be examined and not found to be a candidate but trying to preplan otherwise.

What I was trying ask is what are the possible additional prerequisite interventions for the feet in case RT is indicated but only after the cord is treated or something like this. Reading the ML treatment section doesn't make any cord treatment sound as clear as NA for the hands for example. In the patient experience I mentioned the gentleman went for RT for hands and had too much contraction so they immediately arranged NA in the area, and then he had RT shortly after in the same trip. Since I have a large (to me) cord in one foot I want to have options preplanned in case I need to do something similar as I don't have weeks to waste arranging and waiting for additional intervention if needed. Having an idea of what might be needed and either trying to get it done before going to Germany, or making local connectons/arangements to Since its probably going to be my one and only chance I need to maximise it. If I was told to go have some surgery and come back in 6 months I would be out of luck as I couldn't return so need to deal with anything required beforehand, or have potentially pre-arranged to do while there.
I would ask your radiologist about this via email. For the hands the hand has to lie mostly flat for RT so a contracture needs to be straightened. Also RT does not, in theory at least, help cords as that is way past the disease stage being targeted, although cords can exist without contracture, and RT stilll given on current disease progression. Maybe this is the case with your feet? A cord, no contracture (which is rare in feet) and current proliferative disease. Even if the toes are contracted, RT is normally applied to the midsole so this would not prevent RT; but ask your radiologist about your status.

12/08/17 19:05
dupfortem 
12/08/17 19:05
dupfortem 
Re: Some advice for adding ML to the DUP treatment please

Thank you. I know until he examines me no real determination can be made. Just trying to prepare for eventualities and maximise time and money as im really at the end of my resources. I have had a LOT of foot surgery...all made things much worse. I'd venture to guess this "activated" ML as they say. Just reducing the pain/disability even partially would be a win as it's severely impacting my quality of life.

Edited 12/08/17 19:08

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logistically   immigration   potentially   contraction   immediately   something   additional   descriptions   prerequisite   experience   contracture   consultation   determination   eventualities   intervention   proliferative   pre-arranged   interventions   Herkstroeter   treatment