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Suffering, too
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03/31/11 23:07
RachelSkates 
03/31/11 23:07
RachelSkates 
Suffering, too

Hello all-

Another young woman with LD here. Very complicated story.

I was a runner and ice skater which may have caused this though my Dr's say it may not have being that my dad has the one that attacks the hands.

Being an athlete, I am terrified because I cannot just stop. I have made this worse by continuing to skate though I am in agony. When I was young I had an eating disorder which is made worse every time I try to stop the activity that is destroying my feet.

I am in treatment for that, though my body aches to be an athlete again. This disease, to me, is worse than cancer because it has no end.

I am sorry that I am so negative about this, but I can say it has ruined my life to this point. I cannot do my work as a trainer, because the skates are killing my feet.

So now I have to completely alter my entire life, work, activity level, food intake, etc without losing my mind.

I have two nodules, two little nodules to completely alter my life as would a stroke. Evil.


The therapy I have had so far has been very conservative because I am young and know that the furture may hold further nodules. Plus, surgery, as my dr said, will not help really.

I am trying ultra sound and all sorts of ointments and snake oil. I feel very doomed.

Thank you all for being here and understanding. I am very scared, trying to work through this.

Rachel

04/01/11 08:23
wach 

Administrator

04/01/11 08:23
wach 

Administrator

Re: Suffering, too

RachelSkates:
...I am trying ultra sound and all sorts of ointments and snake oil. I feel very doomed.

Thank you all for being here and understanding. I am very scared, trying to work through this.

Rachel

Not sure whether these treatments will be of much help really. Maybe radiotherapy could relieve your pain and diminish your nodules but only an experienced RT doctor can judge this.

Wolfgang

Edited 04/01/11 08:33

04/01/11 10:26
Cyclist 
04/01/11 10:26
Cyclist 

Re: Suffering, too

Hey RachelSkates
That sounds like a life-changing situation and one where you might need some support. My reaction was a little bit similar to yours, in terms of dread of not being able to remain active. I was a dancer for most of my life, loved running and cycling and now all I can do is swimming and a little walking while I sort out my foot issues.

Radiation treatment is the most effective current treatment. It can reverse symptoms and shrink the nodules. It's your decision which treatment you choose, or if you choose no treatment - look into it and decide what's best for you.

While you decide on your treatment options, hang in there and try and console yourself with the fact that, the initial stage is the worst, while you are working it all out. Once you decide on a treatment plan, you can modify your lifestyle temporarily to keep up your fitness levels until you work out where you will be at long term.

All the best
Di

Edited 04/01/11 10:39

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