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Update On my Ledderhose/Plantar Fibromas
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04/11/2010 17:08
peekaboo 
04/11/2010 17:08
peekaboo 

Update On my Ledderhose/Plantar Fibromas

I was diagnosed in Aug. 2009 surgery on left foot was done Sept. 2009 it grew back within 2 months. Pain never went away !! Found 3 more in Right foot during my recovery on my left. The foot doctor I see has tried everything injections to creams to orthodics. He does not want to do surgery again, because the results could and probably will be the same. He also doesnt want to do surgery on the right because of the left. So I went to my regular doctor to see if I could at least get something for those days its really painful and swollen. She prescribed me lidocaine patches. I dont know if its really working or if its me hoping it is. I dont like it being sticky and you have to pull them off that hurts as well. I finally from my regular doctor got a handicap paper to place in car. Baby steps. I was just trying to update everyone. Radiation therapy is not even an option insurance wont pay for it and being on disability I cant afford it. I cant understand why they cant find a cure. !! What can I do to help ? Fund raisers, Poker runs. Has anyone done anything like that and if I did raise money who would I send it to. ?? This disease I have researched enough to know it affects everyobody differently from not knowing you have it to signing up for disabilty. Pretty broad spectrum though. Lets do something to stop this disease !!! you can e-mail me peekaboo64@iowatelecom.net . Thanks for reading. ..

04/11/2010 21:19
LubaM. 
04/11/2010 21:19
LubaM. 
Re: Update On my Ledderhose/Plantar Fibromas

I'm so sorry to hear about your problem...we do need a cure !!!!

Have you tried to appeal your insurance company's decision not to pay for radiation therapy?? ... Medicare covers it , and usually, insurance companies will pay if its a Medicare covered disease...

I sincerely hope things get better for you.

04/12/2010 03:14
flojo 
04/12/2010 03:14
flojo 
Re: Update On my Ledderhose/Plantar Fibromas

Peekaboo,

Sorry about the pain and all your problems. How great that you want to do something to help find a cure for this plight for so many people.

Here is the information from the left column of this page about donations in the USA:

Donations from US citizens and cooperation with the Dupuytren Foundation
Dupuytren Society and the US based Dupuytren Foundation share the same goals and objectives. Both
organizations are closely cooperating, we are brothers in arms (or hands, rather). Dupuytren Foundation
is a non-profit organization registered in the USA and can issue receipts that are accepted for US tax
declarations. US citizens are therefore encouraged to donate to Dupuytren Foundation, specifically if they
need a tax receipt for their donation.


This Foundation and Dupuytren Society support research and they are sponsoring the big conference about Dupuytren's and related diseases in Florida in May. Doctors from all around the world are scheduled. I am hopeful that they will make some progress about what to do next. There are committed doctors who are working hard on these diseases for all of us.

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