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What medical specialist is best for LD?
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04/14/12 20:21
Gary1987 
04/14/12 20:21
Gary1987 
Re: What medical specialist is best for LD?

Quote:
Hi, Like many others I am new to this site. I do not suffer with this awful disease but 2 of my family do. My husband (59) has DD in both hands, has had 2 operations on 1 hand and just had first operation on his other hand. Around the same time as this last op we discovered that my son Charlie, who is only 23, has LD with a nodule in each foot. They first became noticeable about 1 year ago, but have only just been diagnosed. When the doctor informed him that it was related to Dupuytrens I thought it was time to do some research to see how he could be helped.
I have been reading many of the forums, personal experiences, treatments etc on this site as well as doing some personal research.
My main question is - is he too young for RT???? Most of the people on this site seem to be middle age so not sure what can be done for a 23 year old?
We are in country NSW but my son is in Sydney - is there anybody in Sydney that you would suggest seeing, either regarding RT or a rheumatologist as a medical friend suggested? I believe there is a Dr Foster at The San in Sydney that has just started using RT, does anybody know anything about him?
Any assistance would be greatly appreciated.

My message is also for Annie, I am only 25 and have had Ledderhose for 2 1/2 years and I am now trying to save the money to get radiotherapy. I assume the reason that you are worried about your son getting RT is due to the increased risk of cancer? Well I was thinking the same thing and I did a lot of research and this is something that I found (from here http://www.dupuytren-online.de/downloads...20Dupuytren.htm) where they show the increased risk for cancer is something like 0.1% for a 25yo old male which doesn't sound like much when that basically means an increased from 24% to 24.1%

Hope this helps you.

Gary

07/07/22 22:18
JudyC 
07/07/22 22:18
JudyC 
Re: What medical specialist is best for LD?

Do anyone have information on pain doctors that treat Ledderhose I have done injections radiation and topical cream I am so much pain I can barely walk I need to find a pain doctor that’s family with the disease in Tampa Florida

07/07/22 22:38
spanishbuddha 

Administrator

07/07/22 22:38
spanishbuddha 

Administrator

Re: What medical specialist is best for LD?

JudyC:
Do anyone have information on pain doctors that treat Ledderhose I have done injections radiation and topical cream I am so much pain I can barely walk I need to find a pain doctor that’s family with the disease in Tampa Florida
Hi I can't answer from personal experience, but Dr Todd Brennan gets a few votes on the FB groups. https://healthyfeetpodiatry.com/doctor/dr-todd-brennan/

By injections are you referring to hyaluronidase injections performed by Dr Davis? If not he has a dedicated FB group for this and claims a high success rate with many patients posting their satisfaction.

Best wishes SB

Edited 07/08/22 08:53

07/08/22 12:28
wach 

Administrator

07/08/22 12:28
wach 

Administrator

Re: What medical specialist is best for LD?

Hi Judy,

I myself had difficulties walking and pain even when not moving (not LD but RA) and can well relate to your pin! I am very sorry about that! Maybe worth a try e.g.

Dr. Brunel Joseph , MD
Access Health Care Physicians Llc
2137 W Dr Martin Luther King Jr Blvd, Tampa, FL, 33607

Dr. Edward Lubin , MD
Medical Village Surgical Center
2333 W HILLSBOROUGH AVE STE 120, TAMPA, FL, 33603

Dr. Grant Galen Garlick , MD
Florida Orthopaedic Institute
909 N. Dale Mabry Hwy, Tampa, FL, 33609

Could it be that you are also suffering from plantar fasciitis? Have you tried taking nonsteroidal anti-inflammatory drugs (NSAIDs)?

Wolfgang

JudyC:
Do anyone have information on pain doctors that treat Ledderhose I have done injections radiation and topical cream I am so much pain I can barely walk I need to find a pain doctor that’s family with the disease in Tampa Florida


Edited 07/08/22 12:30

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