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Lifestyle changes. Any success stories?
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03/24/2011 19:04
spanishbuddha 

Administrator

03/24/2011 19:04
spanishbuddha 

Administrator

Re: Lifestyle changes. Any success stories?

I'm not typical either with few risk factors. Not in the family, Mediterranean origins, almost never drink alcohol, no diabetes, and so on. Major hand injury though, but it's not the hand with active progressive DD. Go figure! But I like my tea and coffee though.

My own personal "I wonder if" thing is, in 2009 I took an extended course of the antibiotic Ciprofloxacin. This has a well documented side effect of tendon damage, and sure enough I had a minor leg tendon problem. Who knows what else....

I also had a couple of sleepless nights after diagnosis, but resolved to do something about it, that helped, also finding this site and joining the society and just sharing.

03/29/2011 03:10
coachG 
03/29/2011 03:10
coachG 
Re: Lifestyle changes. Any success stories?

I'm a young DD sufferer (46 now, late 30's initial diagnosis). Both parents have nodules with no progression, no Viking ancestry that I know of. If you've read my story, skip this part...

DD in both hands--surgery, NA 4 times, Xiaflex once on right hand. NA, Xiaflex, RT on left hand. RT has slowed progression in left hand, right hand is progressing again & RT isn't an option.

Lifestyle factors--
Used to be heavy drinker, now I'm sober (long story, but nothing to do with DD!). Lots of caffeine from Diet Mt. Dew--now sober as well--HA!

June 1st gave up the soda & began an anti-imflammatory diet know as Paleo. Lots of protein from meats, lots of veggies, some fruit, nuts & seeds--along with decent amounts of fish oil & Vit. D. As you could guess, plenty of saturated fats (guess what, fat doesn't make you fat!), carbs from veggies & small amount of fruits. If you're into losing weight, feeling great & not counting calories, this is the ticket!!! Read Robb Wolf's "Paelo Solution", Mark Sisson's "Primal Blueprint", Art DeVany's "New Evolution Diet" and/or search the blogosphere. I've learned some amazing & shocking truths about diet & nutrition. All I know is that I feel great, am getting thinner, and feel full after fairly small meals. I could go on, but will call it good there.

Also, I am a weightlifting teacher, football & golf coach, and also workout plenty. My DD Dr. highly suggested I give up lifting weights, but it's what I do & it's what I enjoy. I've learned to use my hands differently when working out & it seems to work for me at this point. I've resigned myself to the fact I will continue to access medical care for DD & deal with the consequences of my lifestyle. I'm OK using Xiaflex & will use NA again if it will work. The last NA procedures didn't work, so I chose Xiaflex & was very happy with the results.

03/29/2011 15:08
PackerFan 
03/29/2011 15:08
PackerFan 
Re: Lifestyle changes. Any success stories?

Hey Coach,
It's pretty unlikely your Diet Mt. Dew has anything to do with your DD, unless you're drinking a case a day. There's 55 mg of caffeine in a 12 oz can, 35 mg in a diet pepsi, and about 200 mg in a mug of coffee. I don't know if you drink coffee, but we're not talking about alot of caffeine...

03/29/2011 17:01
bill_c 
03/29/2011 17:01
bill_c 
Re: Lifestyle changes. Any success stories?

Thanks for the post, CoachG! I noticed my DD first when I was lifting weights and kept having a sore tendon on the palm. Didn't think much of it at the time. Lately, I'm biking to get my 3+ hours of exercise each week. I do miss lifting, though.

How long ago did you have Xiaflex and has there been recurrence since the treatment?

03/29/2011 23:07
coachG 
03/29/2011 23:07
coachG 
Re: Lifestyle changes. Any success stories?

A couple of replies...

PackerFan--I was drinking in the neighborhood of 100 ounces of Diet Dew a day near the end. Hitting the fountain at the local mini mart 2-3 times a day along with 3+ cans. Can't believe I was drinking that much. Just water, some protein/creatine powder & the occasional tea.

Bill--My guess is that my original DD came early because of my racquet sports "career". I played a lot of tennis when I was younger & took up competitive racquetball in my late teens to late 20s. I held the end of the handle right where the DD first appeared--not a coincidence I'm sure. First Xiaflex treatment last summer, slowly contracting again & there's a cord that wasn't handled with the injection. Second treatment on the other hand in the fall. Large, hard nodule on the pinky. Xiaflex handled one nodule, but there is another I need to deal with. NA didn't work on the pinky, which is why I went to Xiaflex. I'm certain that recurrence will be a continuing issue & I'm okay with that. I'll continue with Xiaflex as needed. Pretty simple, but there is some pain. I was back to most of my activities within a couple of weeks, not much different than NA.

04/04/2011 02:45
quinnt01 
04/04/2011 02:45
quinnt01 
Re: Lifestyle changes. Any success stories?

CoachG, when you say you went back to your activities, does that include tennis? I love tennis myself, but am considering giving it up so as not to aggravate my DP.

04/04/2011 19:26
spanishbuddha 

Administrator

04/04/2011 19:26
spanishbuddha 

Administrator

Re: Lifestyle changes. Any success stories?

Interesting. I play quite a lot of tennis, at a reasonable level (I think ). As an older player I play single handed on both sides. I'm right handed with a finger amputation, the pinkie, from an accident when younger, that causes me no end of problems with the hand/finger joints and wrist, just or mainly from playing tennis.

Here's the rub, I have active Dupuytren's in the left hand!

At a consultation with Professor Seegenschmiedt earlier this year he said I had signs of Dupuytren's in the right hand, but it was not active, and may never progress further. Carry on with the tennis he said. But monitor it closely.

Not sure this helps you at all

04/14/2011 12:39
coachG 
04/14/2011 12:39
coachG 
Re: Lifestyle changes. Any success stories?

To Quinnt01--
No, I no longer play tennis. I've gone back to my weightlifting & other types of physical activity I enjoy. I pretty much quit tennis after high school & picked up racquetball. I quit racquetball when health club dues got too high combined with becoming a dad (money had to go elsewhere!).

05/15/2011 10:22
Chris Morgan

not registered

05/15/2011 10:22
Chris Morgan

not registered

Re: Lifestyle changes. Any success stories?

Hi all, This is my firsy posting in many years and I have found some interesting things re lifestyle changes which I hope may be food for thought for some fellow suffrers.
I am a 56y.o. male and had NA done on both hands to great sucess in 2005. I did however want to understand the reason that I contracted DC and I was lucky enough to know of a doctor here in Sydney Au.who focusses on nutritional medicine. This was of interest as I exercise very hard and at the time was only eating a vegan raw food diet.
In a nut shell I found that collagen is formed in the liver by amino acids (proteins) which build up and break down naturally. For some reason we DC sufferers don't seem to regulate this very well and quite often our livers are not 100%. (hence the higher occurence of DC in alcoholics and and people that are run down nutritionally) My journey took avenues that I didn't expect and varied greatly from mercury removal from my body, root canal teeth extractions, ultra violet light therapy, accupuncture and vitamin supplementation.
Possibly the most significant findings were that I had a very sluggish liver and that my homocysteine levels were high. Appears that I was paying for my fitness at the expense of my organs. I began taking amino acid supplementation in the form of a vegan powder and incorporated more quality protein in the form of nuts seeds and sprouts into my diet.
I still run, cycle, do weights and yoga and seem to be coping well although I have noticed DC returing slightly in one finger. Interestingly this seemed to start again when I became very run down recently while trekking in Nepal with dysentry thus this seems to back up the idea of good nutrition.
Hope this info. is of some use

10/01/2012 12:17
John656

not registered

10/01/2012 12:17
John656

not registered

Re: Lifestyle changes. Any success stories?

Your story is fascinating, and I appreciate your awareness of lifestyle and possible correlations. It was not clear to me if you felt your vegan diet and exercise stopped the DD progression.

At 59 after getting DD maybe 15 years ago in both hands and going more vegan I had pretty much forgotten my DD and lived a similar lifestyle, mostly vegan, regular exercise, no alcohol or drugs. Then I had a very stressful period of separation from my wife starting last summer in which I went to Thailand, ate much more animal products, also had a mysterious infection. I also used viagra sometimes which is about only drug ever used and not much of that either. (note that it is designed to effect certain enzymes) Over there I started getting swelling in my ankles. Then I burst a blood vein in my hands, and now I have lymphatic issues in my right arm, a "cording" of the lymph veins in which it hurts when I extend my right arm. Suddenly, my thumbs on the inside ligaments are getting hard and swollen. DD?? I have been losing weight the last few weeks. Still stressed over divorce as I am back home with ex wife and now find I must go find a new place to live and deal with all my new health issues alone. After all, why should I impose all my problems on a healthy beautiful young woman. She is not in love with me anymore, understandably. Maybe she will have a chance at a better life if I go now. So, the foreign travel and illness and stress do seem to exacerbate the DD IF what is happening in my thumbs is DD.?? I have been strict vegan for weeks and no drugs etc, but I am doing worse. Maybe it is time to try different diet although it seemed to work for many, many years. One key thing in your story is how you had more problems after getting puny while in Asia. Hmmmm.

So how does your tale end?

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burger-munching   weightlifting   stories   Interestingly   progression   supplementation   alcohol   Dupuytren   competitive   understandably   Lifestyle   changes   Xiaflex   appeared--not   anti-inflammatory   Seegenschmiedt   Mediterranean   anti-imflammatory   hands--surgery   success