Musician, 30, just diagnosed today :/ (2) | Dupuytren Disease

purplegem · 2010-05-06T19:39:00+00:00

Hi, I'm a 30 year old student and musician from the South of England and was diagnosed with Dupuytren's by my doctor just a couple of hours ago. Over the last couple of years my hands have become achey and get sore quickly when I've been typing essays and playing my flute. I noticed bumps in the palms a couple of months ago, and didn't think much of it until last week, when my mum told me she had been diagnosed. She has nodules measuring around 1cm on both palms beneath the ring finger, and I've noticed that I also have them in the same place, around 2-3mm at the moment. I can also see other small nodules in quite a few areas on both hands. My mum's hands have got a lot worse in the last 6 months (she first noticed the nodules 1 year ago) and are very painful. I've read that in younger people, the condition progresses a lot quicker - I'm really worried about this. It's also disheartening that radiation therapy is so hard to come by for this in the UK -my doctor refused to refer me until I could give her definite names of Dr.s likely to do it. I can't afford to pay for it in another country. Getting scared now because I write (heading towards academic career), compose music and play the flute, so mobility in my hands is essential if i want to continue with those things. Is there anyone on the UK who has made any headway finding doctors who will try RT for this? Know of any clinical trials for the treatment that it might be possible to get in on? Any help/advice/support much appreciated. Gem

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Musician, 30, just diagnosed today :/

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05/07/2010 18:40 deeproot not registered
05/07/2010 18:40 deeproot not registered	Re: Musician, 30, just diagnosed today :/ Yes, every case is different. Mine started when i was 24 in left palm. One small nodule thought to be a cyst so i had surgery and found Dupuytrens. It was somewhat painful in the beginning, but that has subsided. Now 34 and a year and a half ago I developed symptoms in right hand. I now have two nodules in right hand with no contracture in either hand yet. The pain comes and goes but seems to have been the worst when the nodules were developing. I also had cortisone injections in each hand and that has helped with the pain. I have no recorded family history of DC, but have some scandinavian ancestry. Also, I have no other major health problems. Overcoming the mental aspect of this disease has been harder for me than the physical part. Just knowing you are not alone is a very positive note. Welcome to the site.
05/07/2010 18:40 deeproot not registered	Quote

05/08/2010 12:08 patandpaula not registered
05/08/2010 12:08 patandpaula not registered	Re: Musician, 30, just diagnosed today :/ Thanks Luba and Lori, I surely hope that the RT at least stops the progression; anything else will be just gravy. Paula
05/08/2010 12:08 patandpaula not registered	Quote

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