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12/28/2011 20:10
flojo 
12/28/2011 20:10
flojo 
Re: New here

What I have been told is that there is a time when it is too late for NA, albeit I know a friend who had it successfully at about 120 degrees contracture and improved to about 10 degrees contracture and holding. There is also a time when it is optimum and a time when it is too late for RT.

I have also been advised that you can have surgery after NA and RT if necessary, however I know some have posted here on the Forum that RT may slow healing.

12/29/2011 12:07
wach 

Administrator

12/29/2011 12:07
wach 

Administrator

Re: New here

I am wondering, too, callie. I believe that most surgeons wouldn't operate on a finger that has less than 25 - 30 degrees of extension deficit. A stage 3 or 4 finger is more difficult to operate on than a stage 1 (45 degrees or less). Therefore I would think that 30 - 45 degrees is probably a reasonable time for surgery. But in that case NA or enzyme injection might be additonal options.

Probably there also other aspects beyond the disease stage (or extension deficit) that may affect the decision. I was told that the finger adjusts itself to contracture meaning that joints, tendons and other tissue eventually restructure to better match the bent condition. I would think that a finger that has bent bent for 5 or 10 years will be more difficult to restore than a finger that has been bent only for a couple of years.

If I would be young (I am not but over 60) I would be more reluctant to have surgery because I would be afraid that the disease might come back quickly and I end of in repetitive surgeries. I would rather go for the non-invasive options and hope that those will delay surgery until I am 50+.

Last not least the decision when and whether to have surgery might also depend on the affected finger and joint. Surgery is easier in the palm than on the little finger. Not so much for the first surgery but in case of recurrence you might run out of options faster on the little finger, therefore I would, if possible, try to postpone surgery of the little finger but would be less concerned about a surgery of an affected MCP joint where the surgery is mostly in the palm.

You are asking a very good question but answering it seems to be difficult. The whole situation, including age, affected finger, disease progression, other reasons for or against surgeery probably all have an influence.

Wolfgang

callie:
This is a question I have always wondered about. When is the right time for surgery? Is there a time when it is too late for surgery? My surgeon said there was a time when it is too late for surgery. My surgeon said about 40 degrees contracture was the optimum time for surgery (before the odds start going against surgery). Any thoughts?

".... since I am determined to not have surgery until I have tried everything else."

12/29/2011 12:10
newman 
12/29/2011 12:10
newman 

Re: New here

pia2some:
Does the tabletop test require you to lay all fingers and your palm flat? My fingers will lay down flat but the palm won't. The palm curves upward, if that makes sense.

There is a huge knot on the underside of my pinkie joint where the cord starts. It makes my finger look deformed. But even as prominent as that cord is, it's not pulling the finger inward.

I'm going to call Dr. Costas' office in a bit and see about scheduling an appointment. There is no one in our state doing RT, according to your list. Finances are going to play a huge role in treatment options. Sigh.

~Dawn
Hi Dawn
Use the search engine at the top of the page. Type' table top test' click search,
Hope this helps with the explanation. Regards

12/29/2011 14:59
callie 
12/29/2011 14:59
callie 
Re: New here

Wolfgang,

Very good. Then throw in the unpredictable parameters of individual healing characteristics and the solution is quickly not consistent. Back to square one.

You said, "I would think that a finger that has bent bent for 5 or 10 years will be more difficult to restore than a finger that has been bent only for a couple of years." I agree. In my case, I had rapid contraction (zero to 90 degrees in less than 18 months). My outcome was very good. Perhaps if I waited longer the favorable outcome might not have occurred.

12/30/2011 13:39
lori 
12/30/2011 13:39
lori 
Re: New here

Dawn,

As to your pain question. I had lots of pain. My hand ached and that ache extended all the way up to my shoulder. I could not sleep for the pain. I did not know that the nodule in my palm was causing the pain in my arm. I thought I had a callus in my palm and it wasn't until the cord started forming that I realized something else was going on. The pain in my arm is what sent me to the doctor. My hand was cold and I had shooting pains in it. It felt like I had something alive crawling around in my palm. I was miserable. Once I had RT all the pain went away, I regained mobility, grasping, and basically my hand is as good as it once was. I still do not like something hard touching my palm, it hurts. I do not have the strength in that hand that I once had. As an example, in a restaurant this week I could not get the seal off of a ketchup bottle. I can't get my fingers to have the strength or ???? whatever it is to be able to grasp somethng small and be able to pull at the same time. I had to hand it to my 81 year old mother-in-law to open for me. Oh well such is life. Try to have a good new year and keep us posted as to your decisions.

If you want email me and I can give you all the ways I tried to stop the pain. The list is long......

Lori

12/30/2011 20:09
cindy850 
12/30/2011 20:09
cindy850 
Re: New here

I had RT 22 months ago and hands are good but i still have pain if i over work them and if you use or try and use fingers they get tired and start to shake. I also have the same problem with having no strength and trying to do something where you have to try and put your fingers together to get the job done. No such luck. But at least the RT did what its suppose to do and that was to put in in remission. I would do it all over again with RT without even thinking about it.

Edited 12/30/11 23:43

12/30/2011 21:34
flojo 
12/30/2011 21:34
flojo 
Re: New here

It is helpful to all of us to compare results of RT.

I couldn't open any water bottle after developing Dups. After RT, can open all but an occasional really hard one. Feeling of live something crawling around in my palm went away. Fortunately, I never had what I called pain, but the minimal achiness I had went away. My primary goal of RT was to stop the progression and it did that! No new nodules where radiated. Hope that benefit doesn't change.

Keep us posted.

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