NICE Initial Consultation Response on approval for RT for DC (6) | Dupuytren Disease

PhilipHa1 · 2010-03-23T10:59:31+00:00

Hi, As some of you may know NICE the UK organisation for approval of treatments has been looking at approving radiotherapy for dupuytrens contracture. They have just posted their initial repsonse document, which comes to the conclusion that RT should only be used for DC for 'research purposes'. The URL's for the findings are: http://www.nice.org.uk/guidance/index.js...yId&o=12353 and http://www.nice.org.uk/guidance/index.js...cle&o=47994 The findings were determined by who I think are 3 hand surgeons (Mr C Bainbridge (British Society for Surgery of the Hand), Mr V Deveraj (British Society for Surgery of the Hand), Mr G Giddens (British Society for Surgery of the Hand).), so it is not surprising that they came to their conclusions. Their conclusions were their reviewed by a committee of 20 medical personnel who review all NICE cases, there was one radiotherapist on the committee Dr John Rose of the Freeman Hospital in Newcastle, who I have not heard of. I phoned them up this morning to ask why there were no radiotherapists respresented on the review committee of 3 and I was told I would have to get in contact with Ben Doak (ip 'At' nice.org.uk) to find out the reasoning. I am a little annoyed about the process as went the initial questionaire was sent out to a number of people in the autumn I volunteered, but they refused to allow me to complete the questionnaire but despite a number of emails could not give me a reason. I also suggested that they should make use of the services of the professor of radiotherapy I had used in the UK before getting treatment 10 years ago, they did not take me up on this offer. Anyway, I guess it might be worth others on this forum reviewing the initial consultation document and providing feedback on this forum, or directly on the NICE site? Do you think it might be worth coordinating our responses? Philip

You are not loggend in.

Login

NICE Initial Consultation Response on approval for RT for DC

1 2 3 4 5 6

11/17/2012 10:21 handhurt1
11/17/2012 10:21 handhurt1	RT for DC in Essex, England It is now 21 months since I completed RT treatment and as far as I am concerned I am very happy with the results. Nodules and itching have almost completely gone. Cords remain but contracture seems to have stopped or slowed. I have just seen the oncolgist, Dr A Lamont, at Essex County Hospital, Colchester. He tells me that so far he has only treated me and one other person for DC, and said he was happy for me to use his name on this web site although he was not looking for work and would like to reseve the treatment for selected local people only. Hope this is of some use to people in North East Essex and South Suffolk
11/17/2012 10:21 handhurt1	Quote

1 2 3 4 5 6

Initial available meeting committee approval surgeons document treatment session disease Consultation patients information procedure comments Response recommendations feedback radiotherapy guidance

Username:	Password:
save login data in cookie \| Lost password