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Personal experience
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01/23/2011 13:16
Calk 
01/23/2011 13:16
Calk 
Re: Personal experience

I had one injection in the left hand, then 6 weeks later another in the left hand. I went from 90 -15. Not perfect, but so much better. Then, 30 days later, I had an injection in the right hand and went from about 80 to 0. Wow! So far that is a total of 3 injections, since September. I go back for a check up in April.
Yes, there was some pain involved, and after each injection it is somewhat different. You get the injection, go home for 24 hours. There is pain, but I never felt it was horrible. I actually still used my hand (it was wrapped) a bit. It swells somewhat in those 24 hours, and just feels different. Then the doctor breaks the cord the next day, and I had a shot to ease the pain beforehand. The pain is short lived, and I felt, well worth it. I would do it a gain in a second.

    01/23/2011 14:59
    marigail 
    01/23/2011 14:59
    marigail 
    Re: Personal experience

    I can't tell you again how I appreciate your taking the time to respond. I am grateful for your honesty. I can't say I'm actually looking forward to the procedure, but I sure am looking forward to its being successful!! I think I would be happy with any improvement!!

      02/13/2011 21:21
      eastwind 
      02/13/2011 21:21
      eastwind 
      Re: Personal experience

      Late last year had the needle proceedure on the right hand ring finger--seems to help (even though it was unpleasant). But last week in a check up my Doctor (in DC Area) recommends some kind of enzme needle injection--costing $3,000.00 RIGHT not $300.00. Have any of you had that proceedure?

      If insurance pays for it - I'll go for it...if not I'll have to sell the car! I can take a cab to the Dr.

      Any experience out there with the enzme proceedure??
      Patrick

        02/15/2011 17:45
        Mike S

        not registered

        02/15/2011 17:45
        Mike S

        not registered

        Re: Personal experience

        Patrick,

        The "enzyme" you are referring to is likely Xiaflex, a recently approved injection that is an alternative to the Needle Aponeurotomy (NA) procedure that you've already had. I've had NA as well and have been extremely satisfied with the results. But DD is insidious and often recurs, and does so at wildly different rates of speed for different people. NA is far less expensive and can be accomplished in a single office procedure rather than via multiple procedures (2-3) as is typically the case with Xiaflex. The jury is still out as to which of the two treatments, both of which are alternatives to more invasive traditional open-hand surgery, is more effective.

          02/15/2011 22:07
          flojo 
          02/15/2011 22:07
          flojo 
          Re: Personal experience

          Eastwind,

          It seems to depend on the hand and the disease at the time. I posted elsewhere that Dr. Denkler thinks Xiaflex would be better than NA for the nodule on the inside of my little finger with a cord underneath that RT didn't get rid of. I've got time to decide as it isn't progressing at this point, but I know Xiaflex is going to be harder than having NA.

          I didn't ask, but I don't see why Dr. Denkler couldn't do NA in the places that would work and Xiaflex in the places he thinks NA isn't so good all in the same day. He did say he deadens the hand for the injections and for the snapping of the cords later. He also said that it actually works better to snap the cords after several days and even up to a couple of weeks. I didn't know that before. I thought it was injections one day and snap the cords the next. He said that would work, too. If a victim/patient has to travel for treatment, they would probably prefer to do the whole thing in 2 days.

            04/13/2011 11:51
            Kathryn 
            04/13/2011 11:51
            Kathryn 
            Re: Personal experience

            I thought I'd add to this, if I may, having had Dupuytren's on my small finger on my right hand for about the last 10 years but it got considerably worse this last (very cold) winter. It was operated on four weeks ago (tomorrow) 13-Apr-11. I have to say I am delighted with the results so far and understand that it can come back again but let's hope it doesn't.

            One of the things I couldn't find out about was how big was the bandage going to be, how long would the recovery take and so on.

            If anyone is interested I have tried to document it all here -
            http://www.dodington.net/Dupuytrens.html

            I did ask about alternative treatment but in these days of cost cutting nothing was available and I am lucky to have had it attended to and that it seems to have been successful.

            Kathryn

            Edited 04/13/11 14:54

              04/13/2011 12:30
              marigail 
              04/13/2011 12:30
              marigail 
              Re: Personal experience

              Kathryn---so glad to hear about (and see the results of) your successful surgery. Let's hope it lasts!!
              I had the Xylaflex injection about 6 weeks ago, also in the pinky finger. The doctor gave me the shot in the palm right near where the pinky connects to the hand. The shot was very painful as there is no anesthesia, but the breaking of the cord allowed for a local, so that didn't hurt at all. I was fortunate that I had no skin breakage, so other than a very definitive bruise, I was good. the discomfort lasted about 3 weeks. I obtained a fair amount of success---my pinky was contracted so that the tip of my finger was touching the palm of my hand.

              This week I returned for my next follow-up. We decided that one more shot--this time directly into the cord below the knuckle should serve to straighten it even more. There really was marked improvement with the first shot, but it's clear to see that the finger is still impinged, as I can SEE the cord clearly. I will be having this next shot in June. I can't say I'm looking forward to it--but I figure 30 seconds of discomfort is worth better usage of this finger!

                04/13/2011 16:23
                spanishbuddha 

                Administrator

                04/13/2011 16:23
                spanishbuddha 

                Administrator

                Re: Personal experience

                Thanks for sharing that Kathryn and best wishes for the physio and recovery.

                  04/13/2011 16:48
                  Kathryn 
                  04/13/2011 16:48
                  Kathryn 
                  Re: Personal experience

                  It's 'my pleasure'. If it helps someone else make the right decision for them I am pleased. I was lucky - good surgeon, good Hospital (Royal Surrey County), good friend to look after me post operation and I am fortunate that I seem to heal well and quickly.

                  I am sure the exercise thing (as I call physio) is that you should do it 'all the time'. I have also found that Bio Oil is great for reducing the scarring (and it smells nice).



                  Kathryn

                  Edited 04/13/11 19:53

                    06/05/2011 20:59
                    Anne 
                    06/05/2011 20:59
                    Anne 
                    Re: Personal experience

                    Hi Everyone,

                    This is the first time that I have participated in a forum and not sure if this is the correct one. I was diagnosed this past January with Duputren's. I have had the nodules for a few years but it wasn't until this year when my pinky became contracted that I realized what it was. It is getting worse each day and I am trying to figure out what to do. I live in Colorado at 10,500 feet and noticed that my hands feels better at sea level. Has any one noticed this difference? I talked to 2 hand specialists that suggested surgery and one doctor that used a laser to soften the cord which seemd to help. Are there any natural remedies that I could try? Just wanted to reach out.

                    Thanks,
                    Anne

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