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Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules
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07/16/2012 16:50
alcook101 
07/16/2012 16:50
alcook101 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

Hi Aryan

Google this string:
ludwig keilholz dupuytren's hyperproliferative eaton

Choose...
books.google.co.uk/books?isbn=3642226965.

(which should come up first)

Page 355 and Page 360 are available to view.

Al

07/16/2012 20:25
aryan 
07/16/2012 20:25
aryan 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

Bingo - thanks Al. Viewed page 360 but 355 was not available to view. Never mind as its known that Professor Seegenschmiedt uses the 12 week gap treatment now, so that would seem sufficient.

Thanks everyone for all your input - really invaluable. I'll let you know what Dr Shaffer says. I have the feeling he may think the difference in gaps between treatment is irrelevant and I'm being 'a difficult patient'!

Good luck Gary with this week's treatment - and new job.

Aryan

07/18/2012 20:30
TrevB 
07/18/2012 20:30
TrevB 

Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

lori:


I am a big believer in the 2 session treatment protocol because it worked for me. My time frame between treatments was 7-8 weeks, not 12 weeks. with 5 x3gy each time It still worked and I am forever grateful.

Lori

Same here


Cambidgeshire, UK.

07/18/2012 23:34
GaryBall 
07/18/2012 23:34
GaryBall 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

TrevB:
lori:


I am a big believer in the 2 session treatment protocol because it worked for me. My time frame between treatments was 7-8 weeks, not 12 weeks. with 5 x3gy each time It still worked and I am forever grateful.

Lori


From memory......prof s. Prefers the extended timeframe to allow the skin to recover better.....I believe that it does not make any significant difference to the effectiveness of the RT

Gazza


Edited 07/19/12 02:35

07/22/2012 11:55
Lanod 
07/22/2012 11:55
Lanod 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

Gary - your information on RT has been very useful. I see the photo of your mapped hands has made it Wikipedia. Congratulations! If we take it as a convention when mapping a hand that a circle means a nodule and open ellipse/circle is a cord - then what are the simple straight lines on the fingers in the photo for the second and third digits of your left hand.

Many thanks for the ongoing help.

07/22/2012 16:10
Christl 
07/22/2012 16:10
Christl 

Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

Full Circle is a nodule
Interrupted circle is potential nodule
Straight lines are cords


Christl

07/24/2012 17:42
moondanc 
07/24/2012 17:42
moondanc 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

Gosh, what a great thread. Does anyone have any information-- I probably should email the professor directly-- about the effectiveness of a second RT treatment a year after the first? I need to go check my records and see how many Gys I received the first time. I know my doc used the Professor's protocol but I only had one round.

Also-- has anyone had any success with Medicare paying for RT?

Thanks,
Moondanc

07/24/2012 18:21
flojo 
07/24/2012 18:21
flojo 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

Medicare paid for the actual radiation treatments, but denied paying Dr. Tripurineni, the oncologist/radiologist who did the planning and oversight. Go figure! Couldn't have had the RT without the radiologist. Makes no sense. Still the biggest cost was paid by Medicare at their approved rate.

07/24/2012 19:34
moondanc 
07/24/2012 19:34
moondanc 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

flojo:
Medicare paid for the actual radiation treatments, but denied paying Dr. Tripurineni, the oncologist/radiologist who did the planning and oversight. Go figure! Couldn't have had the RT without the radiologist. Makes no sense. Still the biggest cost was paid by Medicare at their approved rate.

Sorry-- I asked this question again before I saw this answeer. Medicare didn't pay ANY of mine, not the radiologist or the radiation treatments even though they apparently had told the provider in advance that they would. It got appealed three times and was denied. I never did understand the message I got from Medicare, "since you didn't think you had to pay for it-- you don't" but I was glad for it.

My partner has had a DD cord (he has a family history while I do not) for about a year and really could benefit from RT but we've held off because of the Medicare problem, moving and other issues. Maybe a trip to Germany is in order.

07/27/2012 00:49
musician42 
07/27/2012 00:49
musician42 
Re: Questions put to Prof Seegenschmiedt about dosage intervals, NICE guidelines, cords and nodules

Question.

I am going back to Dr. Weiss for a nodule that has developed on the edge of a previous radiated area (half in half out). Her treatment for this is to only radiate it for 7 days at what I assume is 3 Gys a day. Anyone else heard of this before? I already had one nodule treated with the standard 3Gys for 5 days off then 3 Gys for another 5 days. My question is what does Dr. Seegenschmiedt do to treat nodules that have already been radiated? Does he do another regimine of 5 days 3 Gys then wait 12 weeks 3 Gys for for 5 days?

Thanks!

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