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radiation
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12/25/2008 13:45
rjjesse 
12/25/2008 13:45
rjjesse 
Re: radiation

Dave H

I have deleted the info that I registered on the sight. I would hate to feel I a part of any future negative decision about them doing this procedure. I am still elated and excited about doing something productive about this dc in my hand, regardless of the outcome. At least I am being given a chance to try. Without a doubt I would have headed for Germany if necessary. Somehow it feels a little odd to not be open about it.
RJJESSE

I'm the first person at U of M who started the treatments ahead of you. They told me at my last appointment that they started treatment on another person. I asked at that appointment if it was OK with them to post there information on this web site. They were reluctant to do so at this time. They want to see how it goes with us before they commit to anything further. Very nice doctors there. Maybe I'll run into you.



12/25/2008 18:20
dave h

not registered

12/25/2008 18:20
dave h

not registered

Re: radiation

I was a liitle suprised by their reluctance as well. But as I said I feel their just being careful at this time and want to observe the early treatments to make sure there are no side effects. I have both dupuytrens and ledderhose. First treatments were only to one hand. Next round they'll finish that hand and then do one foot. I really think they'll give the go ahead once they observe there are little to no side effects. I'll ask again when I return in February and/or Jesse you can ask on your next visit.

Dunegirl,
I must have just gotten lucky. I didn't email the department in general, I picked an individual Doctor based on their individual Bio. So happened he was interested and by luck one of his colleges was German and aware of the work done their.

12/25/2008 18:30
dunegirl 
12/25/2008 18:30
dunegirl 
Re: radiation

I am thrilled for your ability to recieve treatment there, it is something that I could not get them to consider. As a result I had to wait another six months until I came to CA, which as you know the earlier you start the radiation the better chance of it helping. Having lived there all my life I always thought they would boldly go where others wouldn't so it was a reality check for me. I wish you all good results in your treatment and of course a Merry Christmas!

12/26/2008 23:00
dude 
12/26/2008 23:00
dude 
Re: radiation

U of M-Ann Arbor sounds good.so much closer to me than
Topeka or Ca.

How did you get treated?Did you just call the ...medical center,
and get tranferred to an ortho?

do I have to get referred by my primary care Dr.?

do to it's proximity,I'd like to go to U.M.
is there a specific Dr. you're at liberty to mention?

01/09/2009 18:45
ab224

not registered

01/09/2009 18:45
ab224

not registered

Re: radiation

Quote:


I live close to Topeka and can't find a Dr. Reymond listed anywhere. Can you tell me how to locate him?

Quote:



Hello I was treated at St Francis Hospital in Topeka, KS by Dr Reymond this summer. There were at least two of us being treated then. I was mis-diagnosed by my primary care physician who thought I had a Ganglion Cyst. He refered me to a hand specialist Dr in Overland Park, KS who dianosed my Dupuytrens and said that we would just watch it and wait until it was at least contracted enough to do surgery that doing surgery too soon would cause it to get agressive. I went home and started researching the internet .....this site was a life saver. I started calling around and found Dr Reymond. He was great. staff was great and my insurance paid for it. No real side effects except some dry skin. the cord and nodule is softened somewhat and doesnt seemed to have progressed.





01/09/2009 18:48
IVY

not registered

01/09/2009 18:48
IVY

not registered

Re: radiation

http://www.ucomparehealthcare.com/drs/ka...mond_Ralph.html

01/09/2009 18:51
IVY

not registered

01/09/2009 18:51
IVY

not registered

Re: radiation

http://www.stfrancistopeka.org/body.cfm?...tail&ref=21

01/10/2009 00:56
bstenman 
01/10/2009 00:56
bstenman 
Re: radiation

In the USA doctors increase their potential liability for mal practice when they do not conform to accepted "standards of treatment". So they do not perform treatments that are new and perform instead traditional treatments, such as a fasciectomy, that has a higher medical risk but is covered by their mal practice insurance.

I had numerous radiologists in California refuse to provide XRT for my hands. I finally convinced Dr. Penny Snead, who was a former associate of Dr. Seegenschmiedt, to oversee the treatment at the UC Med Center in San Francisco. But she is very much in the minority when it comes to trying treatments for diseases where there is little or no history in the United States. It helped that Dr. Snead was at a teaching hospital.

01/10/2009 02:18
close by guy

not registered

01/10/2009 02:18
close by guy

not registered

Re: radiation

so,the Dr. in Topeka...
the treatment lasts how long?

one day?

more

01/12/2009 01:50
IVY

not registered

01/12/2009 01:50
IVY

not registered

Re: radiation

Hello,
The treatments were in June everyday for 5 days. the first day took about an hour to get set up they took a mold of my hand so they could pinpoint just the spot they wanted to radiate and tattooed my hand on the nodule, the rest of the week they only took just a few min to do the treatment. Then two week break then another 5 days of treatment. I went back after 10 weeks for him to check my progress, the nodule is smaller and the cord is softened. I will go back in April to check the further progress.

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