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Radiation in US
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06/04/2008 16:25
Megan 
06/04/2008 16:25
Megan 
Re: Radiation in US

DWilson....thank you also for posting about Dr. Reymond in Topeka. It's nice to know there are some options for those of us who would like to go that route.

06/06/2008 12:41
Dwilson540

not registered

06/06/2008 12:41
Dwilson540

not registered

Re: Radiation in US

No injections of steroids. I will begin radiation treatment in a couple of days.

06/10/2008 02:40
Lisa 
06/10/2008 02:40
Lisa 
Re: Radiation in US

I have a node under my ring finger with some slight dimpling and what looks like to be the start of a cord. I don't have an official diagnosis yet but from everything I've read and seen, there is a very good chance I have this disease - especially since I just found out my dad had a node under his ring finger years ago. He had it removed at the same time he had other work done on his hand but it has now partially returned.

Anyway, I have been scouring the internet on information for available treatment for Dupuytren. It seems many of you have opted to bypass steroid injections and go directly for radiation treatments. Why? Do they not work well?

I also have read on a site that some doctors do not recommend radiation because they say it makes it harder to do surgery later on. They did not say why though. I assume the radiation changes the skin making it harder for skin grafts to take well.

PLease share your thoughts on which treatment you feel is better to start with as I fear I may have to decide for myself in the very near future.

06/10/2008 02:52
Megan 
06/10/2008 02:52
Megan 
Re: Radiation in US

Hi Lisa,

I had not yet read about radiation making it more difficult to have surgery later on. I am going to Boise the week of June 16; I have an appointment with Dr. Kline for a consult and steroid injection; at that time I am going to schedule my radiation therapy for the fall. In other words, I am getting both injections and radiation therapy, just not at the same time. I want to wait until the fall for the radiation so that I can have a relaxed summer (although I hardly call 55 degrees "summer" here in Seattle) but I thought it would be a good idea to go to Boise next week, as I have the week off, get the injections, and ask Dr. Kline some questions during my office visit. I will ask him your question when I see him in person, and get back to you. I guess a twist to your question would be " does radiation also make it more difficult to have NA later if one needed it?"

Megan

06/10/2008 03:17
Lisa 
06/10/2008 03:17
Lisa 
Re: Radiation in US

Thank you Megan. I would be very interested to know what your surgeon says. I have to wait until I get my insurance mess cleared up before going to any doctor. If I go now without having insurance it will be considered as a "pre-existing" condition and I'll have to wait 6 months before any treatment would be covered. So I will be on tenterhooks until I at I know for sure.

06/10/2008 05:55
pixi 
06/10/2008 05:55
pixi 
Re: Radiation in US

Thanks for posting all this. I'm American but live in the UK and am looking into radiation here as well. It will be good to compare answers to the questions above on both sides of the pond. I also want to ask if radiation can do anything for knuckle pads and, of course, the risk of cancer involved.

06/10/2008 15:45
Megan 
06/10/2008 15:45
Megan 
Re: Radiation in US

HI Pixi and Lisa,

I believe Dr. Kline's office assistant told me the amount of radiation is very small....approximately the amount you receive when flying on an airplane (my dentist always tells me that, too, when she wants to do x-rays and I balk about it). I saw my General Practitioner last week (not specifically about the Dupuytren's, it was just my annual exam) and told her about the radiation treatment and showed her some of the information about it off the Dupuytren Society website and she seemed unconcerned...she said she would only be concerned if it were getting into the bone. In fact, she sounded fairly interested that they were treating this with radiation. However, I'll get more details from Dr. Kline when I see him. I'll be back from Boise on June 20. If you can think of any other questions, let me know.

Lisa, I hope the insurance stuff works out for you; I didn't have insurance for years and I know what a worry it is.

Megan

06/10/2008 19:49
pixi 
06/10/2008 19:49
pixi 
Re: Radiation in US

That's really good to hear, Megan. The system's a bit slower in the UK, so I appreciate any info! Best of luck.

06/12/2008 23:52
Ivy 
06/12/2008 23:52
Ivy 

Re: Radiation in US

Megan, I started treatment this past week I have had 4 of the 5 treatments tomorrow is my last then i wait 6 weeks to start the next go round. I like my Doctor he seems to be of european birth and wears colorful bowties and sandles and socks. He has a great personality. I have not heard of the steroid shot and have not had one. I have no contracture but one nodule and a cord that developed in the last 5 months. My primary care doc diagnose it as a ganglion cyst and sent to me to the surgion who diagnosed the Dupuytren and I was also told wait til it contracts and we will do surgury. He said that it was common here in the midwest there was a lot of people who settled here that carried the genetics for it. I was so glad to see Dr Reymond mentioned here. I made an appointment right away and we got started with the treatment. I would much rather be proactive and stave off a possible contracture than wait till it was too late. I use my hands everyday too. I am a software engineer and type everyday and I am only 52.

06/13/2008 22:34
TrevB 
06/13/2008 22:34
TrevB 

Re: Radiation in US

Quote:



I believe Dr. Kline's office assistant told me the amount of radiation is very small....approximately the amount you receive when flying on an airplane (my dentist always tells me that, too, when she wants to do x-rays and I balk about it). I saw my General Practitioner last week (not specifically about the Dupuytren's, it was just my annual exam) and told her about the radiation treatment and showed her some of the information about it off the Dupuytren Society website and she seemed unconcerned...she said she would only be concerned if it were getting into the bone. In fact, she sounded fairly interested that they were treating this with radiation.



This is the bit that I'm unclear of and concerns me. I wish I could get more confident before the radiotherapy option passes me by. I think 30Gy is quite high and I can't imagine too many external sources that would give you that level of toxicity? Wikipedia says:
" Cancer - Radiation is a potential cause of cancer, and secondary malignancies are seen in a very small minority of patients, generally many years after they have received a course of radiation treatment. In the vast majority of cases, this risk is greatly outweighed by the reduction in risk conferred by treating the primary cancer. [edit] Cumulative side effects, Cumulative effects from this process should not be confused with long-term effects—when short-term effects have disappeared and long-term effects are subclinical, reirradiation can still be problematic.[1][edit] Dose, The amount of radiation used in radiation therapy is measured in gray (Gy), and varies depending on the type and stage of cancer being treated. For curative (radical) cases, the typical dose for a solid epithelial tumor ranges from 60 to 80 Gy, while lymphoma tumors are treated with 20 to 40 Gy.

I know we're told that it's low dose and does not penetrate deeply into the body or vital organs but 30Gy is 30Gy irrespective isn't it? It's said that nobody has developed cancer in the hand from radiotherapy treatment but have patients been monitored to see if the develop anything nasty further down the line?

I appreciate that the individual makes the decision but the information at hand just does not give me the confidence to take radiotherapy further I suppose if you haven't seen anyone close to you affected by cancer then you might perhaps be more open minded but if you have then it certainly makes you think!




Cambidgeshire, UK.

Edited at 06/14/08 01:45

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