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I"ve writen this in another forum.

I'm a 58 year old woman in the US. I e-mailed a Radiation Oncologist I know slightly and asked about radiation. He agreed it was an option and referred me to some one near my home. I have had excellent response wit the nodules gone in my left hand andthe larger ones in my right hand greatly reduced in size. I have a follow up visit in Dec. and will ask then about my feet. I am the first one they have treated for this.

They used an instrument that is designed for treating superficial lesions like scars (keloid) and skin cancer.

Most teaching hospitals have physician directories. I would check them and look for radiation oncologists that work with keloid formation and write them. Enclose copies of the literature that's available. Both of the oncologists I spoke to knew exactly what I was talking about but not all necessarly will. Don't be afraid to write physicians that are aways away from you they may be able to refer you to someone closer to home, thats what happenend for me.

I had very little side effects. Both hand got red about 2 weeks after they were finished. The right more than the left for some reason. And I had some minimal skin peeling. Again Right more than left. No pain or tendernes. And I never had any loss of function.

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I have been trying to find a doctor who will take a look at radiotherapy here in NC. The doctor at Duke (research hospital) who treats non cancerous tumours will not consider treating me. She wants to wait until it progresses and she "might" consider it. She said that she was concerned about the lack of a controlled study. (I sent her the radiotherapy presentation.) Would you please tell me who the doctor was who treated you or at least what hospital you were treated at. I would like to avoid surgery.

Thanks in advance.

Chris

My opinion (having been there only once): For the first time I would say the easiest way is to get to the Essen mainstation and take a taxi cab from there (probably about 10 EUR). You can also take the subway but then you still have to walk a little and you have to find the hospital. After you have been there once you can easily find cheaper ways to get around.

Alfried-Krupp-Krankenhaus is about 10 min walk from the next subway station and 30 min walk from the railway mainstation.

Good luck!
Wolfgang

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Hi

Can anyone give any help on travel directions to the Essen hospital. Is it near a particular train station or bus route?
I am arriving from Weeze airport, north of Essen

Yours

Richard

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Edited at 06/04/07 09:31

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My physicians have asked that I not post their names in a public forum.

Colleen

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which really is a pity! But some doctors don't want that, we unfortunately had the same request already in the UK (NA) and Germany (laser).
Wolfgang


Edited at 06/05/07 08:25

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The physician will want more than the power point presentation. The Study he is looking for is Keilholz L, Seegenschmidt MH, Sauer R. Radiotherapy for prevention of disease progression in early stage Dupuytren's contracture: inital and long term results. Int J Radiat Oncol Biol Phys. 1996; 36:891-897

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http://www.tcrt.org/index.cfm?CFID=87749...ownload&p=13130

It's a pdf file, nothing sinister and not sure if that's what's meant

Edited at 06/05/07 17:10

Could you please repeat the instruction on how to e-mail a form member.

Thanks