| Lost password
448 users onlineYou are not loggend in.  Login
RT and
 1 2 3 4
 1 2 3 4
12/03/2013 19:19
callie 
12/03/2013 19:19
callie 
Re: RT and

Thank you. I will keep that in mind as I have more bone marrow biopsies. I have read so much about this. I should learn this week if it is "acute myelodysplasia" or just "regular" myelodysplasia. There is a significant difference in outcomes.

12/03/2013 23:01
Vonmae 
12/03/2013 23:01
Vonmae 
Re: RT and

Callie,
So sorry to hear of your new diagnosis. This must be very scarey for you but fancy you playing golf a day after your bone marrow biopsy. I have leukaemia and after a BMB I am in extreme pain for a couple of weeks. I am having my final round of RT treatments for my dupuytrens at the moment and to add to the mix last Monday I was dx with MD in my eyes. My thoughts are with you and I am sending you big cyber hugs.

12/04/2013 18:08
callie 
12/04/2013 18:08
callie 
Re: RT and

Vonmae,

I am interested in your adventure with Leukemia. How long has it been for you? I realize there are all kinds. Lucky me, I get to have another BMB tomorrow (two in ten days). They are thinking my situation is not good.

12/05/2013 01:47
Vonmae 
12/05/2013 01:47
Vonmae 
Re: RT and

Callie,
I was diagnosed with leukaemia (CLL) 6 years ago and am doing okay although have lots of problems as an off shoot of having a very compromised immune system. As well as the CLL I have 3 auto-immune diseases, the dupuytrens and now macular degeneration. I know of a couple of people who have developed myelodysplasia after chemo and are doing okay. I hope they are giving you spooky juice :) before your bmb's. One wonders about the radiation we've had on our hands and what effect it will have but who knows and it's a risk I for one am prepared to take. Wishing you well Callie and hope you have a top notch haematologist on your side. Sending hugs.
Vonmae

12/05/2013 17:44
Jolene 
12/05/2013 17:44
Jolene 
Re: RT and

Hello Vonmae,

I am sorry to hear about ur MD diagnoses. May I ask how old are you? How far along are you?

12/07/2013 04:43
Vonmae 
12/07/2013 04:43
Vonmae 
Re: RT and

Jolene,
I am 61 and the MD is early stage. Seems I have inherited all my Dad's diseases and then some. He was blind with MD, had dupuytrens and passed away a year ago from complications of leukaemia. Standing in the wrong line I guess.

12/10/2013 21:07
TrevB 
12/10/2013 21:07
TrevB 

Re: RT and

In most cases the cause of MDS is unknown. This is called primary MDS. In a small number of people, MDS develops as a result of previous treatment with chemotherapy or radiotherapy. This is known as secondary or treatment-related MDS.

macmillan.org.uk

Cambidgeshire, UK.

12/10/2013 21:58
callie 
12/10/2013 21:58
callie 
Re: RT and

It is interesting. I have had zero health problems except for Dupuytren's and now this. I have been diagnosed as right on the border between Acute Myeloid Leukemia (AML) and Myelodysplasia (MDS). It most likely has little (or zero) to do with finishing RT for Dupuytren's in January of this year. Most likely it is a coincidence. I just mentioned it in case someone else had a similar experience. Then it might be worth another glance.

12/15/2013 18:47
TrevB 
12/15/2013 18:47
TrevB 

Re: RT and

callie:
It is interesting. I have had zero health problems except for Dupuytren's and now this. I have been diagnosed as right on the border between Acute Myeloid Leukemia (AML) and Myelodysplasia (MDS). It most likely has little (or zero) to do with finishing RT for Dupuytren's in January of this year. Most likely it is a coincidence. I just mentioned it in case someone else had a similar experience. Then it might be worth another glance.

At the end of the day the only important thing is that you get the best outcome and recovery.

Cambidgeshire, UK.

01/07/2014 21:49
callie 
01/07/2014 21:49
callie 
Re: RT and

This could just be a coincidence, but I will put it out here.

As some of you might remember, I was diagnosed with MDS/AML (Acute Myeloid Luekemia) November 2013. I have never been admitted to a hospital before that time and the only ailment that I have had was Dupuytren's. I have been healthy my entire life and currently my father is 96 years old and has never had a prescription. I have had routine blood tests (CBC) from my primary care physician every 6 months. The interesting information is that they have backtracked and graphed my blood tests. Everything was completely normal for years (linear, level and normal on the graphs) until right after my first round (15 Gy) of radiation for Dupuytren's. Platelets dropped below normal range within a month. Following the second round (15 Gy additional) the numbers for blood platelets, red and white cells "dropped off the table".

Again, this could be a coincidence, and probably is, but the timing of this couldn't have been closer. The AML diagnosis is pretty serious if you are not aware. I hope to make it another year. Should be getting a bone marrow transplant within 6 months. It almost seems trivial now about some of the decisions and worries about the different Dupuytren's procedures.

P.S. I have really enjoyed being on this forum for several years and really have appreciated all of the comments. I will stick with it as long as possible.

P.S. #2, I haven't smoked one cigarette in my life and I still haven't had my first beer. And my reasons had nothing to do with religion. So much for clean living.

Edited 01/08/14 05:51

 1 2 3 4
 1 2 3 4
another   appointment   appreciated   expectancy   myelodysplasia   Radiation   problems   abnormalities   thoughts   Dupuytren   Cambidgeshire   morphologically   treatment-related   diagnosed   interesting   information   coincidence   transplant   healthy   Myelodysplastic