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26 Months Post Xiaflex
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06/04/2015 13:04
bigm100d 
06/04/2015 13:04
bigm100d 
26 Months Post Xiaflex

In 2013, I posted my story and some pictures. It was good then, and still good news. In the archives will be that thread, but I wanted to post a new thread for those with a similar case as mine, and considering Xiaflex in 2015.

- Procedure was not painful, but the injection, as many have written, is done without pain blocker and that sucker hurts.
- I was lucky to have insurance pay 75%.
- I've been wearing my brace at nite, for all the 26 months, even business trips, vacation, always.
- I think I was also fortunate to have a really protruding cord, that was not deep, rather sticking out big. I suspect my doc is very well skilled and was able to really focus the med right in there.
- Golf and mountain biking are no problemo. I have the scar you'll see, but that doesn't bother me.

Take a look at my before/after pics.


Cheers!

Marty

06/04/2015 13:47
econn 
06/04/2015 13:47
econn 
Re: 26 Months Post Xiaflex

Congratulations on a successful Xiaflex procedure. Mine was done in July 2014 on my left hand and I, too, am quite pleased with the results. I can still hyperextend my hand by about 30 degrees. I believe success depends upon many factors, including doctors skill and experience with all DC procedures, how far the DC has progressed and how quickly/slowly the DC has progressed over time. I did have a couple of nodules pop up on my palm and middle finger several months after the procedure, I don't think there's any way to predict if that will happen. My right hand also has some large nodules and if they progress into DC I will probably have Xiaflex injections done on it too.

06/18/2015 17:39
edgeworth 
06/18/2015 17:39
edgeworth 
Re: 26 Months Post Xiaflex

thanks for posting. my hands are quite a bit worse than yours, especially the left hand. i had not been to the hand doc in over a year, but i went today. I didn't think my DC had worsened that much, but I guess you don't notice bcuz it's so gradual, bcuz my "measurements" were a lot worse today than my last appointment.

so i'm finally giving in and doing xiaflex next month. little nervous, but we shall see.....

06/18/2015 17:52
aagrub 
06/18/2015 17:52
aagrub 

had my injections yesterday.Three shots in both finger/palm area and WOW not pleasant. Tomorrow i at 7am I get manipulated.What can I expect for that to feel like ...about the same as the injections?

06/18/2015 20:57
missbetsy 
06/18/2015 20:57
missbetsy 
Re: 26 Months Post Xiaflex

For me the worst part of the manipulation was the injections to numb my hand. Once numbed no pain and all I heard was a snapping type sound during the manipulation. After that a night splint was made to fit my hand.

06/19/2015 05:25
Cherise 
06/19/2015 05:25
Cherise 

Re: 26 Months Post Xiaflex

aagrub:
had my injections yesterday.Three shots in both finger/palm area and WOW not pleasant. Tomorrow i at 7am I get manipulated.What can I expect for that to feel like ...about the same as the injections?


Good for you! Tomorrow expect to have a straighter finger. Wear a splint and follow your doctors instructions & for rehab.

I had mine done last February. Xiaflex also eliminated the horrible scar tissue from surgery. The bio drug is a enzyme that breaks up collegen ( also scar tissue & DD) . Xiaflex is in another study to eliminate scar tissue for approval from the FDA.

Hope all goes well my doc used freeze spray on my hand for injections and manipulation. I heard nothing. Just closed my fingers and a second later my pinky finger was open. After 2 years it's was great !

Kind Regards
Cherise

06/19/2015 10:45
aagrub 
06/19/2015 10:45
aagrub 
Re: 26 Months Post Xiaflex

Completed the program a few numbing injections then manipulation and SNAP getting my splint and on with my life

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