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How do the knuckle pads relate to the DPS?
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10/17/2009 06:07
crt 
10/17/2009 06:07
crt 
Re: How do the knuckle pads relate to the DPS?

My perspective of the image referred to by Wolfgang is that I wouldn't assume that the "lump" is associated with the skin.

My knuckle pads are actually large hard structures underneath the skin. When my fingers are straight the lumps are much less obvious and look a bit like the image (except the lumps are more apparent).

As I have mentioned on another thread I have had pads (and Ledderhose) since my teenage years, but not DD (until last year). I'm now 58. So my experience is one where appearance of knuckle pads does not necessarily mean that DD is imminent.

I do not experience any "cracking" - just inability to form a fist, so there may be something else at play. Whilst my knuckles have been annoying, I'm quite sure I would rather have pads than arthritis (and the size has now considerably diminished)!

10/17/2009 09:12
ClaireB777 
10/17/2009 09:12
ClaireB777 
Re: How do the knuckle pads relate to the DPS?

Hi CRT
Thanks for your post. I didn't realise the lumps could be separate from the skin. I wonder if it's possible to tell which I have from the X-ray they took - although, it seems to be a case of 'your five minutes are up' when you want to ask questions! I am very grateful to everyone for their comments and realise there are various possibilities and no definite outcomes. Good luck with treatment for your Dupuytren's. I will continue to read these boards with interest.
Claire

10/17/2009 22:56
crt 
10/17/2009 22:56
crt 
Re: How do the knuckle pads relate to the DPS?

Hi Claire,

I would expect there are ways of confirming that yours are pads, but I would have reasonable confidence that the surgeon would know. It seems that everyone has their own individual experience, but it is useful to be aware of the path that others have traveled. I looked again at your photos, and it looks, to my eye, as if it could be pads. In my experience there was nothing gained from surgery on pads (I had one operated on when about 14 or 15, but it just made it worse).

If you do develop DD (or perhaps before) I suggest you have a look at radiation therapy as a possible treatment. There are a number of people who have reported aspects of RT on this web site. I have had RT at the start of the year. The lesson that I have learned from this is that RT is best done early in the development of DD. So if you do develop DD, and do decide RT is appropriate, don't wait!

Good luck, Chris.

10/18/2009 11:26
ClaireB777 
10/18/2009 11:26
ClaireB777 
Re: How do the knuckle pads relate to the DPS?

Thanks Chris
I am defiinitely interested in radiation therapy and see that there is a hospital in Poole that does it. How did you get access to this treatment? I am sure my GP wouldn't refer me but would be willing to pay privately.
All the best
Claire

10/18/2009 22:20
crt 
10/18/2009 22:20
crt 
Re: How do the knuckle pads relate to the DPS?

Claire,

I live in Australia, so I can't help you with the UK system. I have seen a number of other UK people write about RT treatment, so searching through old posting may help answer your question. Alternatively, somebody else may be kind enough to respond to the question.

Chris.

10/21/2009 15:04
MelK

not registered

10/21/2009 15:04
MelK

not registered

Re: How do the knuckle pads relate to the DPS?

Claire

Dr Goode at Poole hospital is on indefinite sick leave.

I have been on his waiting list for radiotherapy since June. I saw him privately at a cost of £150 for an initial consultation. He agreed to do the treatment and I was to receive a copy of his report. They have never contacted me and I'm still waiting for the report which apparently is unfinished.

I spoke to his secretary today who doesn't seem to know if or when he will return to work. There is no one else there who can do this treatment.

Mel.

10/21/2009 15:33
ClaireB777 
10/21/2009 15:33
ClaireB777 
Re: How do the knuckle pads relate to the DPS?

Thanks Mel

How frustrating, especially when you were so close to getting the radiothreapy!

I have seen a post from an English person who paid to be treated in Germany. I don't know how he managed it - he said it was under 500E all in.

I am still trawling through the research and am still keen, although I did see this today which was a bit worrying...

" Radiotherapy has been used to prevent disease progression in the early
stages of Dupuytren's contracture. However, both acute toxicity and chronic
side effects were observed, such as redness or dryness of the skin,
extensive erythema, moist desquamation, swelling, and an alteration in heat
and pain sensation. Among hand surgeons, prophylactic radiotherapy is not
supported; surgery performed after radiotherapy is unduly
complicated."

I guess that's why the regular doctors don't want to go ther. Those sufferers on this forum who have had RT don't seem to have suffered with these things though.

Good luck and don't give up!

Claire

10/21/2009 15:53
Wolfgang

not registered

10/21/2009 15:53
Wolfgang

not registered

RT in Germany

Claire, several German clinics treating Dupuytren's with RT are listed at the bottom of http://www.dupuytren-online.info/radiotherapy_clinics.html . They prrobably also can advise about lodging etc. You might also ask Dupuytren Society for help if you run into problems commmunicating with those clinics.

Wolfgang

10/21/2009 16:08
ClaireB777 
10/21/2009 16:08
ClaireB777 
Re: How do the knuckle pads relate to the DPS?

Thankyou Wolfgang. That's really helpful. I will definitely check this out and let you know how I get on.
C

10/21/2009 16:28
lori 
10/21/2009 16:28
lori 
Re: How do the knuckle pads relate to the DPS?

Claire,

I just finished my last (2nd) session of radiation and have had mild to nonexistent side effects. I had slight pain on the 4th & 5th day of the first session. Dr. Crimaldi said that could possibly happen because we were irritating the site.

After the second session I have had no pain at all. I do have dry skin over the radiated site. If I use the hand extensively the dryness will become more apparant. It is NOTHING compared to the benefits I have received from the radiation. To look at my hand today you can hardly see the nodule and cord. I am in NO pain and feel like I have 80% of my old hand back.

Any questions let me know.

Lori

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