My father suffered terribly from DC starting in his 40s and delayed treatment for many years until it was advanced. he tells me that doctors often had no idea about his DC. Eventually he had surgery in his 60s. It didn't turn out too well, he has never regained full use of his hands and he has never been able to pick up anything heavy thereafter. He's 78 now and there is really no reason to expect improvement.

At 43 years of age, round about the same age it started for my father, I have recently noticed the same 'puffiness' on my hands in the two spaces between the last three digits. That's how it started for dad, and my research suggests it's hereditary. My primary care physician has never heard of DC and pretty much dismissed me. I have no intentions of waiting until the disease is far along before seeking treatment.

My question: Is there an area of specialist that should be consulted for DC? I really don't have the funds to travel to doctors in other states and so forth, though I do have good health insurance. How do I find a doctor who is knowledgable and can help?

Yes, I did. I am in Michigan so the closest listed is Ohio and more than a 12 hour drive. In particular I was wondering if there was a general specialty to see. I'd be happy to drive such a distance to Ohio for surgery or a special procedure. At the stage I am at, I am guessing monitoring and consultation with my pcp. Research suggests that there are some drug therapies that might be useful like oral pentox or verapamil. So I was hoping to learn something and help me find someone local.
I have no disability at present, but knowing my father's hardship I would like to avoid it.

Where in Mich ?

I live there too and may be able to give a referral.

I'm not on line every day at the moment so be patient.

Colleen

I was told to find a doctor in my area through the American Society for Surgery of the Hand. These doctors should be familiar with the disease. You can look up a doctor in your area by going to the following website:

http://www.assh.org/scriptcontent//FAHSS..._a_Hand_Surgeon


Good luck!

Patty