Hello Karen,

Thanks for the update. I commend you for a 'job well done' in seeking the oncologist and his willingness to learn about this disease.
This great news! Thanks to you we now have one more state in the USA that is on board with treating this disease using radiation. Another great thing about getting treated in the USA is insurance will pay. Mine has paid for All treatments. If I went to Germany it would be air fare, hotel bill, and the cost of the treatment. Then if you end up having to go a 3rd time it would be more $$ for travel, etc. I was treated for LF and later got it in hands and right foot. This has caused me 3 trips to the radiation room.

best of luck & prayers to you

Awesome news Karen!

My 1st week after RT I notice the tiny little looking callus (a nodule) was already going away.
But, also, during the 1st week after, I experienced the most intense, painful, burning, crawling sensation. Way worse than before RT. I did sleep holding and ice-pack. And as Callie mention in one of her post she drove wearing gloves. I tried doing that too. It helped a lot having the extra padding while holding the steering wheel. I am 9 weeks out and still wear gloves driving. Not so much because of pain but more just to help protect my hands. I posted on this site about it and others told me 'Don't Panic' it is signs that the radiation is eating away at the active disease.

Edited 11/13/13 14:05

Hi Tracylee,

Sometimes the padding to the bicycle gloves can be pretty thick making it hard to grip things. I have found some thinner padded weight lifting gloves to be better and adequate for most things. I use the bicycle gloves when I really want to protect my hands.

Also, I was told after my RT and have found this to be true, to avoid any heavy lifting with your hands. Lifting pulls on the cords and aggravates them. Everyone is different of course, but for me the lifting is what I really have to watch to avoid unnecessary pain.

Nan

Only have surgery when needed because it takes quite a while until the hand has recovered and, most likely, the hand will not be as before (surgery is making scars and your hand will feel different with scars in the palm).

You might familiarize yourself with the various options for treatment by reading some of the info on this website, maybe starting with http://www.dupuytren-online.info/dupuytr..._therapies.html .

Maybe most important: if your father has just small nodules, no contracted fingers, and no problems using his hand, he might as well do nothing. Most patients with mild symptoms of Dupuytren's will never need any treatment. But if the nodules are growing quickly or if your father has pain in the hand, radiotherapy might be the right thing. If a finger is alreday bent causing problems, your father might consider collagenase injection or needle aponeurotomy (that sounds all pretty complicated but you can read more about these on the website; it's actually much simpler than it sounds). Surgery is more like a last resort.

Wolfgang

Aely1977:

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Hello wasabi jones, i read your post and i just figure it up what kind of diseas have my father, exactly the same think have my father at his both hands, he is 69 now and we dont know should we do surgeri or not ...!

Edited 03/04/17 09:36