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Ledderhose nodule and dupytrens contracture treated w Verapamil failing me
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04/16/17 21:57
Tkal711 
04/16/17 21:57
Tkal711 
Ledderhose nodule and dupytrens contracture treated w Verapamil failing me

Overview : onset nodule to palm of hand for dupytrens following a fall into hand at 37 yrs of age or 36. Then later developed at 38 ledderhose nodule to my opposite foot. European descent. Went to hand doc locally not said to leave it alone cause how small it was and not yet affecting my range of motion. I like to bike/spin as able. Went to doc rwgrding the foot and was given Verapamil end of last year. I have to say. I improvement although not consistent w it either. Was very disappointed in the cream I was given.... I put it on and is very greasy and doesn't really seem to even absorb. Anyone really had luck w this? Foot nodule is larger and feel w about every step now. Makes me wonder too if anyone has done studies on oral Verapamil (CCB) rather than topical in efficacy. I read all these other forums and see. It much helps many. Wasting my money to have anything further attempted. Avoiding anything surgical as often w more complications w chronic pain or nerve involvement. I need guidance here. God bless.

04/16/17 23:35
spanishbuddha 

Administrator

04/16/17 23:35
spanishbuddha 

Administrator

Re: Ledderhose nodule and dupytrens contracture treated w Verapamil failing me

Quick summary, the only published evidence based treatments are the ones described on the website, basically RT, NA, Xiapex, and Surgery of various forms. People try and are prescribed topical verapamil, or buy a compound commercially, but the results are inconsistent and for the majority prove not helpful. Same with other compounds such as DMSO/SSKI. More positive stories are posted anecdotally with the topical application of vitamin E or magnesium oil, but again the the results are mixed and it's hard to see how that is likely to reverse or stop progression. Similar for Tenex or hyaluronidase with some reporting LD nodules shrink and others reporting no long term gain. For early LD if orthotics, or footwear does not help then RT is the likely best option. In the US cryosurgery has positive reports for larger painful fibroma as. RT is a good early option for DD too, and you could check out the massage thread for early stage DD with just nodules.

It's not clear how fast your DD or LD is progressing? For RT to be effective the disease needs to be active with ongoing progression. There are lifestyle and health risk factors that may or or may not affect you? Have you seen an experienced hand doc and podiatrist. Experienced enough to know all the treatment choices before surgery is even mentioned?

04/17/17 15:37
wach 

Administrator

04/17/17 15:37
wach 

Administrator

Re: Ledderhose nodule and dupytrens contracture treated w Verapamil failing me

In 2015 we surveyed 1,000 LD patients asking, besides others, about their experience with treatments of LD. Results for Verapamil were not very impressive http://www.dupuytren-online.info/patient_survey.html.

Wolfgang

04/22/17 03:00
Tkal711 
04/22/17 03:00
Tkal711 
Re: Ledderhose nodule and dupytrens contracture treated w Verapamil failing me

Thank you for responding. I can tell the nodule is getting bigger, however I do not know about the progression rate as I haven't returned to my podiatrist that I saw. He's the one that prescribed the verapamil for me locally in Fort Myers Florida. But It was smaller at the time. Now I feel it with stepping and walking and try to wear cushy shoes. Sometimes tender. Thank you for letting me know about which therapies are best so far, as I think I'm going to have to pick one. I've seen Dr. Sagini for my hand however it was very mild and still doesn't need anything done for it. Any recommendations on physicians around Florida for radiation therapy? I was reading the reports thank you for attaching but I don't see you local podiatrist that specializes in this. I'll keep up the searching

04/22/17 03:02
Tkal711 
04/22/17 03:02
Tkal711 
Re: Ledderhose nodule and dupytrens contracture treated w Verapamil failing me

Oh and also regards to risk factors I have none really. Pretty healthy other than this junk. Sad thing is I'm a family nurse practitioner and can't even fix this for myself. Frustrating.

04/22/17 09:36
spanishbuddha 

Administrator

04/22/17 09:36
spanishbuddha 

Administrator

Re: Ledderhose nodule and dupytrens contracture treated w Verapamil failing me

For RT in Florida, Drs Hochman and Wolfson listed here http://www.dupuytren-online.info/radiotherapy_clinics.html have also had recommendations from users on the forum.

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progressing   complications   radiotherapy   contracture   failing   practitioner   commercially   progression   disappointed   treated   recommendations   dupuytren-online   Ledderhose   Frustrating   dupytrens   Verapamil   inconsistent   hyaluronidase   experienced   podiatrist