I have only recently been diagnosed with DD, however the nodules were noticeable more than a year ago. So far, there is little contraction. Very recently, i began having pain - perhaps a 3 on a five scale. In the beginning, the pain was in the side of my and and extended past my wrist into my forearm. A short time later, the pain grew to a 4 level with use of my hand and I was unable to fully make a fist. The high level of pain lasted for about a month. Then it began to lessen. Now, I can make a fist and have only pain level 1-2. Again, the pain is mostly the side of my hand. In reviewing the forum, I found no mention of pain resembling mine. I wonder if it is possible that mine is not DD? Also, if it is DD and if RT is use, does one wait until there is contraction? I am in Nebraska, USA and it seems that RT isn't really recognized as a possible treatment.

Hi Clifh2

You are correct RT is not a mainstream form of treatment in the USA. Even still, there are oncologist in the USA that does treat this and has had great success.

I had a lot of pain with the DD. I have it in both hands. First signs appeared late August 2013. I had the puckering & the pit appearance. Along with One tiny looking calus, which was actually a nodule forming. I went to a hand specialist for confirmation and then headed to Florida for RT. before RT my hands hurt. I had the burning, crawling experience. A few times it was so painful I slept holding an ice pak as that seem to sooth the hands. The 1st few weeks after RT the pain was a little more intense. It did eventually calm down. I completed round 2 the week before Christmas. My hands are extremely dry. The pits are still there there.

I agree with Nan. Send Prof S. pictures. Learn as much as you can. This forum is an excellent place to find doctors/onoclogist in you area that others have gone to.

wishing you great success in finding the doctor and correct treatment that works best for you.

Jolene