| Lost password
1015 users onlineYou are not loggend in.  Login
CHEAPER ALTERNATIVES???
 1
 1
04/09/2010 13:35
CNL 
04/09/2010 13:35
CNL 
CHEAPER ALTERNATIVES???

Hello to all,

My mum has had the disease since August 2009 but was not diagnosed until January 2010. In August she had only 1 nodule, on her right hand, and by January she had several. The disease seems to be progressing rapidly as she now has nodules on both hands and what appear to be the beginning of cords.
She also suffers form tightness in her hands, which can sometimes be quite painful, and is exacerbated by typing or gripping things.

I have been in touch with a clinic in Berlin who have advised me that she should have radiotherapy to stop the disease from progressing any further and to hopefully prevent her fingers from bending.
The price given was €3000 for the full treatment, on both hands. This would include the CT mapping and two blocks of 5 treatments, 3 months apart. Once you factor in travelling costs and accomodation we have estimated that it would be about €4500 in total.

I know you can't put a price on your health but I wondered if anybody could recommend another clinic or give me an idea of what the average cost is?

I would appreciate any help at all.

Charlotte

04/09/2010 13:41
wach 

Administrator

04/09/2010 13:41
wach 

Administrator

Re: CHEAPER ALTERNATIVES???

Charlotte, the prices you were given are for electron beam equipment which this clinic is obiously using. You might also inquire with the ohter clinics listed in our web site. X-rays are typically cheaper because the equipment is simpler. The efficiency for Dupuytren's disease is the same.

But in any case you should look for an someone experienced in RT of Dupuytren's because experience does make a difference.

Wolfgang

Quote:



Hello to all,

My mum has had the disease since August 2009 but was not diagnosed until January 2010. In August she had only 1 nodule, on her right hand, and by January she had several. The disease seems to be progressing rapidly as she now has nodules on both hands and what appear to be the beginning of cords.
She also suffers form tightness in her hands, which can sometimes be quite painful, and is exacerbated by typing or gripping things.

I have been in touch with a clinic in Berlin who have advised me that she should have radiotherapy to stop the disease from progressing any further and to hopefully prevent her fingers from bending.
The price given was €3000 for the full treatment, on both hands. This would include the CT mapping and two blocks of 5 treatments, 3 months apart. Once you factor in travelling costs and accomodation we have estimated that it would be about €4500 in total.

I know you can't put a price on your health but I wondered if anybody could recommend another clinic or give me an idea of what the average cost is?

I would appreciate any help at all.

Charlotte


04/09/2010 13:44
CNL 
04/09/2010 13:44
CNL 
Re: CHEAPER ALTERNATIVES???

Thank you so much for your quick reply.

I was completely unaware that electron beam treatment would be so much more expensive. I will call the other clinics on the list first thing Monday morning and enquire specifically about X-ray treatment. Is X-ray treatment and radiotherapy the same thing, so as not to get the terminologies mixed up?

Charlotte

04/09/2010 13:47
wach 

Administrator

04/09/2010 13:47
wach 

Administrator

Re: CHEAPER ALTERNATIVES???

The term "radiotherapy" covers both, x-rays and electron beams. You might also contact Seegenschmiedt in Hamburg, I believe he is a little cheaper. No idea whether they are willing to discuss prices. In any case Seegenschmiedt is definitely an expert in RT.

Wolfgang

04/11/2010 06:27
newman 
04/11/2010 06:27
newman 

Re: CHEAPER ALTERNATIVES???

CNL-Hi Charlotte/ Australia Calling. Try sending an email to Prof Seegenschmiedt and ask if his secretary can estimate the cost. I was treated by him in Essen both on my hands and feet. My treatment was complex with having to treat individual areas due to the fact I have skin grafts on both hands . The prof. did not need a CT scan as he palputates the hand and identifies any nodules and cords.I would regard him as an expert in the treatment of Dupuytrens. He has also written much about Dupuytrens/Ledderhose. Are you aware low dose radiotherapy is best in the early active stage on the hands. I have spoken to other Oncologists here in Australia who have reported good results on cords of the treatment of Ledderhose .(feet) Prof. Seegenschmiedt speaks excellent english and after my experience I would certainly recommend him.He fitted me in at very short notice. I tried to be treated early a.m. which left me the remainder of the day for travel and sightseeing. In my case I paid around Eur. 3000 . I had 4 visits for treatment as I said mine was not the norm. Regards.

Edited 04/11/10 09:31

04/12/2010 07:45
CNL 
04/12/2010 07:45
CNL 
Re: CHEAPER ALTERNATIVES???

Thanks for the info, Australia! I have just sent an email to the address listed for Pr. Seegenschmiedt and am eagerly awaiting a reply. I appreciate all the help!

 1
 1
Australia   treatments   CHEAPER   appreciate   radiotherapy   experience   sightseeing   exacerbated   Dupuytrens   accomodation   terminologies   Charlotte   disease   specifically   experienced   travelling   progressing   Seegenschmiedt   ALTERNATIVES   treatment