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Confused about trying steroid injection for nodule
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11/25/2016 19:58
dupfortem 
11/25/2016 19:58
dupfortem 
Confused about trying steroid injection for nodule

I have limited access to a hand doctor and it takes ages to see them. At the initial appointment they said wait 6 months and come back and that if it was still a problem they could cut the nodule out or try a steroid injection. When I went back 6 months later they said surgery was not a good idea as it would just come back and I didn't have a contracture yet. They also mentioned the steroid could actually stimulate/aggravate the fibroblasts and make things worse and seemed to shy away from it but still offered.

I have tried unsuccessfully so far to reach Dr. Seegenschmiedt's office to ask about RT and if this would preclude it...there is a very small chance I might relocate to the region next year (only way I could manage is if I was near due to costs) and am interested in the treatment...but don't want to do anything to make things worse right now.

The nodule is in the right 5th digit PIP and sometimes hurts when hit or pressed but often not. It's grown slightly in the last 9 months. I don't THINK I have any others or cords but I have seen the reports from people who visited Dr. Seegenschmiedt saying he found several they did not so I don't want to ignore that possibility and not get to them in time. Of course I obsess and feel every bump and stretch and am terribly afraid of having issues with my hands now as I have enough disability. I have read about people getting "activated" by injections/surgeries and fear making things worse.

Should I try a steroid injection now? Would that harm the chance of RT if I can manage to get it in say 4-6 months?

Edited 11/25/16 22:04

11/25/2016 20:41
spanishbuddha 

Administrator

11/25/2016 20:41
spanishbuddha 

Administrator

Re: Confused about trying steroid injection for nodule

I don't think there is a clear cut answer to this. What do you hope to achieve, pain relief and or reduction in nodules. It seems to help in the short term some people, but not for others. Have a look anyway at http://dupuytrens-society.org.uk/steroid-injections/ and http://kineoptics.com/stuff.html. If your nodule is stable, not angry sore I would be inclined to leave it alone, although I have tried a topical application, without effect as it probably doesn't penetrate.

Edit to say, try contacting Hamburg clinic from a different email, as it does sound like yours are not getting through. I have also sent you a PM.

Edited 11/25/16 22:51

11/25/2016 22:20
dupfortem 
11/25/2016 22:20
dupfortem 
Re: Confused about trying steroid injection for nodule

My hope was to reduce/soften it as well as slow it down to give me more time to potentially get to RT somehow. I see info that sometimes the steroid can do those things...but with the doctor warning me off like its a big risk of making it worse I don't know what to think. I don't want to exacerbate it or ruin the chance of RT working in the future. So stressed and frustrated. Thanks for the PM.

Edited 11/26/16 01:22

11/26/2016 18:10
BRIANB 
11/26/2016 18:10
BRIANB 
Re: Confused about trying steroid injection for nodule

For what it's worth .... will not bore you with details.. I had steroid injections..and the nodule did soften and got much smallrer.
However ...the injections were done after I developed contractures...because the injections have the potential to make things worse... anyway my advice ..wait until the nodules really get to the point of interfering with life..and or coordinate the injections several weeks prior to N.A. if and when you have it..

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