| Lost password
1 user onlineYou are not loggend in.  Login
DC progression and related problems
 1
 1
02/10/2009 10:19
bken 
02/10/2009 10:19
bken 
DC progression and related problems

Hello all,

After I passed 40 years-of-age, my DC moved into the 2nd knuckle of my left pinky hand. I've had a nodule on the primary pinky joint (palmar) since my late teens. I'm a guitarist and my flexibility has always been somewhat compromised, but now it seems the contracture is aggressively progressing (I'm at about 30 degrees).

Additionally, I'm experiencing "slight" Peyronie's disease (if you don't know what it is, "Google" it). Not fun. I understand many DC sufferers experience Peyronie's as well.

I lived with DC for over 20 years, but now it seems to be progressing very, very quickly.

Is this normal after 40?

Thx,
-B

02/10/2009 18:27
jimh 
02/10/2009 18:27
jimh 
Re: DC progression and related problems

Welcome the club. I also have both, plus Ledderhose. Like you, things started to progress after 40, but I'm now 57 and all three conditions are what I'd call "manageable".

Yes, these conditions are statistically associated with aging. Don't let it panic you though. Progression is unpredictable, can stop for long periods. The symptoms may be noticeable, but may not cause functional problems. There's just no way to predict.

Treatment options are improving all the time. Xiaflex is now in trials for Peyronie's as well as Dupuytren's. For hand/finger contractures, NA is still the best choice.

Now the bad news. I've had surgery on both hands and while I'm ok for everyday activities, playing a stringed instrument wouldn't be possible (I used to play guitar and bass). Surgery has variable results and usually causes some damage. So, don't get talked into surgery until you're at the end of your rope and have exhausted all the other alternatives. Even then, ask yourself if you couldn't wait a few years to see if treament improves.

If you do need surgery, find an 'ace' hand surgeon who understands the dexterity required to play an instrument.

02/17/2009 14:17
bken 
02/17/2009 14:17
bken 
Re: DC progression and related problems

Thanks again Jim.

You've been a great help to me.

Best to you,

Bill

 1
 1
compromised   flexibility   problems   contractures   statistically   understands   instrument   manageable   surgery   progression   alternatives   Additionally   experiencing   contracture   years-of-age   unpredictable   aggressively   noticeable   progressing   conditions