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Diane - NA?
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03/18/2014 03:21
pia2some 
03/18/2014 03:21
pia2some 
Diane - NA?

Diane,

Weren't you having some problems after your NA? Did everything work out eventually? I just read your post on another thread about your hand therapy. I loved having therapy after my surgery. I, too, saw a certified hand therapist. So much of what we did felt so good on my hands. My surgery was a huge failure and I went into a severe flare. Now my right hand is in very bad shape with only my index finger working. My left hand is progressing rapidly and it is losing function, too.

Anyway, I was just wondering how you were doing now.

~ dawn

03/21/2014 21:36
moondanc 
03/21/2014 21:36
moondanc 
Re: Diane - NA?

pia2some:
Diane,

Weren't you having some problems after your NA? Did everything work out eventually? I just read your post on another thread about your hand therapy. I loved having therapy after my surgery. I, too, saw a certified hand therapist. So much of what we did felt so good on my hands. My surgery was a huge failure and I went into a severe flare. Now my right hand is in very bad shape with only my index finger working. My left hand is progressing rapidly and it is losing function, too.

Anyway, I was just wondering how you were doing now.

~ dawn
Hi Dawn,
I'm sorry to hear you are having so many problems especially since you did the surgery. I had problems with numbness in one finger in each hand (2 fingers each hand done total) and that lasted for 2-3 months. It ocassionally comes back for short periods, a day or so, probably because I did something weird with fingers that I can't figure out.

My biggest problem is that the initial NA in both hands was only about 30% successful in two of the fingers and despite wearing my splints every night (and sometimes during the day including a knuckle, dynamic splint) I'm barely maintaining my hands in the same condition they were before my NA procedures. I gained nothing from the procedures and I definitely think it had to do with the surgeon I chose.

In addition in the last month or so I've started developing LD nodules in my left foot. I'm not sure where to go from here and as I'm sure you know it's very depressing to go through a procedure and have it totally fail despite your best efforts.

Are you still doing hand therapy? I'm still going once a month and try to do putty and mini-massager also.

Best,
Diane

04/04/2014 02:03
pia2some 
04/04/2014 02:03
pia2some 
Re: Diane - NA?

I am so sorry to read that the NA procedures were not successful for you. Trust me, I do understand how incredibly frustrating it is to go through all of that only to have things be worse. Can I ask why you think it was the surgeon? Do you feel he didn't do the procedure adequately?

Are you going to seek treatment for the LD? I didn't think there was much you can do. Radiation? I'm sorry you are dealing with LD now, too.

I did hand therapy for four months, three times a week. When January rolled around I stopped because my insurance deductible started over and it wasn't helping anyway.

All of the fingers on my right hand are now affected. The index isn't contracting down but is starting to pull toward the thumb. One of the fingers operated on was my pinky. In February it was measuring 80 degrees (at the PIP). In March it was 95 degrees. Today it is 110 degrees. It was 0 degrees in November. Sigh. All of the fingers are going down at a rapid pace. Since surgery I have no been able to make a fist with that hand and that is worse than the contractures.

I do think I wil try NA in my left hand, though. I really wish you had gotten relief from your NA. What do you think you'll do next?


~ dawn

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