| Lost password
151 users onlineYou are not loggend in.  Login
Hereditary ....How many generations??
 1 2
 1 2
02/11/2008 18:01
cool4bob 
02/11/2008 18:01
cool4bob 

Re: Hereditary ....How many generations??

Hi All,
My grandad had it bad, I Have memories of his hands being all closed up and his hobby was repairing clocks and watches (amazing to watch). I had OS on my right pinkie several years ago and I didn't even know what it was and no advice on excercise afterterwards. I am now booked in for OS on my left index. Now I've seen this site I'm starting to wonder.
Best wishes
Bob

02/11/2008 23:42
Randy_H 
02/11/2008 23:42
Randy_H 

Options

Bob,

Read http://www.handcenter.org/newfile16.htm

While OS might be necessary it's always good to be informed about all your options.

02/12/2008 06:03
wach 

Administrator

02/12/2008 06:03
wach 

Administrator

Re: Hereditary ....How many generations??

Regarding NA you might also have a look at http://www.dupuytren-online.info/needle_aponeurotomy.html . It includes links to two videos demonstrating the procedure. Ideally you would have a hand surgeon who is also experienced in NA and can help you decide on the best treatment.

Wolfgang
PS: icing the cake would be a hand surgeon who is experienced in both surgery and NA and is a Dupuytren patient himself. But that's VERY rare and I don't think hand surgeons regret this ...

Edited at 12.02.08 08:04

02/13/2008 12:50
cool4bob 
02/13/2008 12:50
cool4bob 

Re: Hereditary ....How many generations??

Thanks, Randy and Wach,
Do you know anyone in the UK who has registered as partially disabled?
Regards
Bob

02/13/2008 13:15
wach 

Administrator

02/13/2008 13:15
wach 

Administrator

Re: Hereditary ....How many generations??

I am not aware of anybody but maybe someone in the forum is???

02/13/2008 19:55
TrevB 
02/13/2008 19:55
TrevB 

Re: Hereditary ....How many generations??

I'm disabled and in the UK. There is no disabled register. I don't understand the question really do you mean disabled because of having Dupuytren?

My family crest has a Dupuytrens' feel about it http://www.scotclans.com/scottish_clans/...yd/history.html

Edited at 13.02.08 22:19

02/14/2008 16:21
wach 

Administrator

02/14/2008 16:21
wach 

Administrator

Re: Hereditary ....How many generations??

A general statement, though from a US web site, explains why disability may be caused by Dupuytren's, it's not a question whether Dupuytren's is a "certified" disease for disability but you need to prove your personal disability (which might also be due to a combination of diseases). The link http://www.ssdanswers.com/?s=dupuytren%27s

Wolfgang

Quote:



Thanks, Randy and Wach,
Do you know anyone in the UK who has registered as partially disabled?
Regards
Bob


02/15/2008 11:53
cool4bob 
02/15/2008 11:53
cool4bob 

Re: Hereditary ....How many generations??

Quote:



I'm disabled and in the UK. There is no disabled register. I don't understand the question really do you mean disabled because of having Dupuytren?

My family crest has a Dupuytrens' feel about it http://www.scotclans.com/scottish_clans/...yd/history.html


Hi Trev, Sorry for any confusion, and yes I mean disabled because of having DC. As I mentioned before my grandad had it really bad, saying that he probably would not have self identified himself as disabled. A year gone Aug I took a bad fall and shattered ny wrist after which 2 doctors wanted to reset my wrist/arm they were overuled by a senior doctor who said I was too old (58), so they just slapped a plaster cast on, 1 week later after returning fom the Chinese border several doctors advised resetting (Dr Demon laughed when he told me he would have to break it), anyway to cut a long story short, last year I had to have a restructuring op to shorten my ulna and now I have a bit more movement albeit still limited. So the point I am making is: can all these little bits add up to partial disability? therefore leading to a disability pension.
Best wishes and may you all have clear blue skies.
Bob

 1 2
 1 2
grandparents   brother   Dupuytren   experienced   afterterwards   deterministic   generations   Interestingly   generation   Fibromatosis   contracture   occupationally   dupuytren-online   Hereditary   disabled   disability   restructuring   s=dupuytren%27s   demonstrating   aponeurotomy