Bob, you find contact data for the Hamburg clinic on our web site, at the bottom of http://www.dupuytren-online.info/radiotherapy_clinics.html

Wolfgang

@Robertd:

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To Chris777
Hi Chris,
I'm new to this forum and very grateful that it's here.
I'm considering getting RT treatment for dupuytrens in Germany.
I called the number listed on this website for the DR that treated you, but the call wouldn't go through. Do you have another contact number or a recommendation on how best to get in touch with this DR?

Thank You

Bob

As I wrote in an earlier posting, I am in the interval between the two five treatment radiation series which I am receiving at the Strahlenzentrum Clinic from Dr. Seegenschmiedt. On meeting my sister who had accompanied me, Dr. Seeegenschmiedt immediately recognized Dupuytrens in her hand. She subsequently had a full evaluation and he identified other sites.. Fortunately none of these were advanced enough to require treatment, and she now has familiarity with the disease and is aware of treatment options and sources of information.

I relate this partly as an example of how thorough and concerned I found this doctor to be, but also to illustrate the dangers of denial. I was so appalled at the thought of hand surgery that I simply ignored changes I my hand as long as I could.This may reduce the chances of a successful outcome for me, but it is also very disturbing to realize that because of my unwillingness to deal with the situation, I had failed to share important information about a familial disease which can benefit from early treatment with my sisters and my brother.

If you are considering radiation treatment in Hamburg, I would encourage you not to delay making contact to determine if a consultation is appropriate. The posting which accompanies the listing of this clinic on the Clinics portion of this site was very helpful (kudos to the patient who provided the information on hotels etc.). We found that many Germans spoke English and were quite helpful. Purchase of daily or three day “Hamburg Cards” either from machines at the stations which have English language options or the hotel desk (at least at the Mercure) makes public transportation easy. I will be returning alone for the next series and am quite comfortable with the prospect, and there is an unexpected bonus of time to explore Hamburg which is a beautiful and fascinating city!

His email is listed on this website. Go to Treatments/Radiotherapy for a list of clinics -- all the contact info for Dr. S. and their clinic is included.

Lauri,
I am glad you found the contact info for Dr. Seegenschmiedt. He will be able to tell you if your problem is one that radiation might help and is tremendously knowledgable about the condition as well as a very kind gentleman. My treatments were three months apart. I am preparing now for a phone consultation as follow-up to my last treatment. Be in touch if I can be helpful to you.

Kathleen and Spanishbuddah,

How did you determine it was time to contact Dr. S., go to Hamburg? I'm leary of going too soon, waiting too long. Of course, I tend to over-analyze everything and having spent 15 years as a hand therapist doesn't help that.
I have an atypical presentation, with obvious cords being the first sign. As opposed to the typical contraction of the ring and small finger, my thumb webs and index and middle fingers are becoming stiff.
Both feet are also effected, with MRI proof of the nodules and thickening of the plantar fascia.
I appreciate any input.

Thanks,
Beth