Congratulations! Keep us posted on the effects.

I didn't have many side effects either. But I did make one mistake -the day after my second RT series, I went to a really good comedy show and was applauding wildly - that is, until I started feeling a burning sensation in my palms. Then I realized that if you've just had radiation on your palms, probably banging them together over and over is not a good idea! :-)

Maddie

switcombe:

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Hi All,

It's a done deal - for three months anyway - had my last radiation treatment yesterday. No side effects that I can tell. Maybe that activated charcoal in the salve I'm using deactivated all the radiation. At first, I was so worried about side effects, now I'm worried that I don't have any.

At any rate, I'd have to say that radiation in Germany was a good experience. I'll be going back for the second course of treatment in September.

Sharon

Since 2008 I've had 2 NAs-one Zilaflex (spelling?) and radiation in right hand. Far as I can tell none really worked--radiation did nothing at all, but I had no side effects from it either.
This month I had surgery on left hand---cut out the cartlidge-about a 2 3/4" cut and 9 stitches..---now in pain and thinking that this damn thing in both hands will never go away. Considering the pain, the money, the loss of activities everytime, and driving across the state I'm now of the mind to quit trying. I know that many of us take to treatment in various ways, but shouldnt we expect more study of this incideous disease??
The MDs will keep trying of course,$$$ but has anyone seen any intelligent study of Dupytrens that can give patients a reasonable understanding of our chances for each proceedure.??
Incidentally, my MDs say some of my pain and tingling is from Carpal Tunnel and now they want me to test for that. Anybody ever heard of that as a part of or sympton of Dupytrens???

Hi Eastwind,

I hope there will more studies/research on results of NA, Xiaflex, and RT as well as the different protocols used for RT. There is much anecdotal information on this site which helps us in making decisions, but we need to have all who have been treated in a research study that meets the gold standard of research. That would help immensely with getting insurance/Medicare coverage standardized as well as giving us measurable evidence of results as we consider treatment options.

Personally, I believe it will be gene therapy that will finally get us close to defeating this disease and that's a long way off. In the meantime NA, Xiaflex, RT, and surgery are our options. I had excellent results with RT and NA.

You must have a very aggressive case. Hang in there. Thinking of you and hope your DD will lighten up a little.

I am pretty sure there is a connection with carpal tunnel and DD. My right hand will go numb and tingle at night if I don't use my night-splint. I bought one at our local drugstore and it works fine. It is one for carpal tunnel. Seems lots of people talk about carpal tunnel. I realy wish we could just start some research, so much info here with all of us. I read peoples stories and most of the time I don't know the outcome. I posted on my profile that I had RT and that it worked so far. I guess that could be a start, just a thought.

Christl