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Prof Seegenschmiedt, Hamburg visit June 2012 - web page with photos
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11/08/2012 17:14
alcook101 
11/08/2012 17:14
alcook101 
Re: Prof Seegenschmiedt, Hamburg visit June 2012 - web page with photos

Pat11:
Thank you for the very informative post about the Hamburg visit. Including the costs was very helpful!

Hi Pat

If you have any updates to the costs, I'll be pleased to add them to the page.

Al

11/08/2012 17:32
alcook101 
11/08/2012 17:32
alcook101 
Re: Prof Seegenschmiedt, Hamburg visit June 2012 - web page with photos

mrl:
Al - According to your web page "Prof Seegenschmiedt referred to nodules changing through various states starting off soft like a "tomato" through to hardened like a "coconut" .... He said that the hands need to be in an "active" state of change from soft "tomato" to hard "coconut" in order for radiation therapy to be effective."

I have a nodule in the palm of my right hand, that is pretty hard, and nodules in the bottom of both my ring finger and pinky, also pretty hard. So I'm wondering whether RT would help me or not. Only my ring finger is deformed, by about maybe 20 degrees from the PIP. The PIP joint was probably like this for at least 6 months. I thought it was simply arthritis when I first felt it curving (I'm a 56 years old male).

Only a month ago did I accidentally discover that I couldn't flatten my hand, and realized it was due to the hard lump in my hand. I made the mistake of trying to do some stretching, by pushing on that lump. By doing this, I was able to have more flexibility, but after doing this for a few days, it aggravated my chronic tendinitis, that I've had in my hands for several decades. I'm presently trying to get that pain to subside. There was no pain in my hands, before accidentally discovering the lumps and curvature.

I'm trying to determine whether RT could help me, in my stage. Specifically, I would like more flexibility. That would probably require a softening of the nodule on my palm. But the statement above from Prof Seegenschmiedt, seems to indicate I'm not in an "active" state, and RT wouldn't help me. Do you have any further thoughts on this, given yours (and possibly others) experiences? Thanks.

- Mark


Hi Mark

One of Wolfgang's expressions is that "radiotherapy can't make a bent finger straight" - which is a great simple guideline.

I also had only one finger which was deformed about 30 degrees. I didn't have any expectation that this would improve, however I am hopeful that it won't get much worse. For me having the finger "deformed" was my wake up call to get the others diagnosed and then treated before the rest started deforming.

It seems that there are a large proportion of women that go to see Prof S - because women tend to take informed action on their health earlier than men.

Where ever you are in the world it can't hurt to email Prof S for an email consultation. I took a scan of my hands on my computer scanner - which is one of the records that Prof S takes in his office. Also if you have a good camera photos take some photos with hands both flat/straight and also with hands/fingers slightly bent.

One of the comments in Prof S made in his office about diagnosis was that seeing both hands slightly bent gave further clues about the stage of the Dupuytrens.

Al

12/02/2012 22:26
alcook101 
12/02/2012 22:26
alcook101 
Re: Prof Seegenschmiedt, Hamburg visit June 2012 - web page with photos - additional hotel etc...

Hi

I've just received an update from another Dupuytrens radiotherapy visitor to Hamburg and have updated the web page with information on an additional tried and tested hotel nearby to the clinic.

Also I've added a small bit of information on sightseeing during the treatment week.

Al
http://www.pushpullsigns.com/dupuytrensradiotherapy.html

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