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Guitar/keyboard with DD
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03/27/2001 23:05
jimh 
03/27/2001 23:05
jimh 
decision about surgery

That's a tough decision. I don't think that doctors or surgeons can really appreciate the fine degree of control and sensation you need in your fingers to play an instrument like the guitar. With surgery there is always the possibility of nerve damage, which can heal but - it takes a long time and recovery is never 100%. This is what happened to me when I had the palm surgery - I lost feeling on the side of one finger, and gained some (minor) stiffness that has never really gone away. Of course neither of these things is necessarily common or need happen to you.

Recovery of the surgery is a slow process and you definitely won't be playing during that period.

Right now there doesn't seem to be an alternative to surgery but it seems that in 2-3 years, injections of Collagenase will be a much better choice for most of us.

On the positive side, the surgery was basically successful and I've had no recurrence in that area for about 3 years now - although it has gotten started on the other hand.

03/30/2001 23:35
Ed Godleski

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03/30/2001 23:35
Ed Godleski

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Pianist with Dupuytrens

I had "the operation" on two fingers of my right hand 18 months age. The physical therapy was endless but it payed off. I have regained full flexibility in those fingers. The key appears to be the extent of physical therapy one is willing to undertake. My surgeon said that Dupuytrens never returned in any of the patients he has operated on. While he is removing the diseased tissue, he also removes all the healthy palmar fascia he can, since in time that will probably becomed diseased also. I had "knuckle pads" on two fingers. After the operation, there was a 7 inch incision from my wrist to the first joint of the two fingers. He went after it all. Get a knowledgeable physical therapist. One of the many tasks I had to perform consisted of manipulating my fingers, 10 times an hour. That's every 6 minutes, all day, every day for weeks! I had no choice. As a pianist I had to have full recovery. Of course, being an obsessive-compulsive helped. While my right hand was healing, Dupuytrens took over my left hand with a vengeance, three fingers, the web between the thumb and second finger, and the palm. My surgeon felt confident enough with my ability to handle the physical therapy (a medical term for self-inflected pain) to do the entire hand - in a 3 hour operation. This was done 6-weeks ago. My poor hand had over 63 stitches in it. But they are all gone now and I'm back to the constant bending and stretching of the hand and fingers. I have massive scar tissue which I know will take months of rubbing to reduce. But I want to play the piano again. So I'll do what ever it takes!

04/09/2001 23:58
Ed Dilley

not registered

04/09/2001 23:58
Ed Dilley

not registered

Surgery

Well, I'm off to see a plastic surgeon this Thurs. (4/10/01), for a consultation. From what I've read, this is the way to go ... they (plastics) can remove all of the infected tissue, and get rid of the stuff. I also have advice from a doctor friend of my dad, who said if opting for surgery, do it right away. Then he also said that I might want to try some of the alternatives like vit. E, vit. B6, and DMSO, to stave it off until the calogenaase treatments are available. Who knows? Maybe just cut my hand off and be done with the problem.

05/15/2001 23:15
Bob Parsons

not registered

05/15/2001 23:15
Bob Parsons

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Dupuytren~sq~s and guitar

I am a 53 year old guitarist (not a professional, but have been playing since I was 12 and it is extremely important to me). I have had Dupuytren's for about 4 years, but only recently has it progressed to the stage of making playing difficult and painful. I have been advised to have surgery before the contracture gets any worse. I am wondering if anyone can tell me their experience in post-operative recovery and regaining the ability to play at a pre-operative level. Thanks.

06/28/2001 23:57
Adam Rochmes

not registered

06/28/2001 23:57
Adam Rochmes

not registered

pianist with Dupuytren~sq~s

I'm a 57 y-o serious but non-professional pianist. I noticed small nodules on the palm of my right hand a few years ago. These haven't grown, but nodules appeared in my left hand, that have grown along my ring and little fingers; also, the cord from the little finger through the palm on this hand has stiffened. Further development appears in spurts, every few months. Massage, stretching, sitting and lying on my hand definitely help make the palm and fingers more flexible. I can't be sure, but think practice at the keyboard also helps. I can still play but can't span as large an interval or manage some of the four-finger chords. Playing smart has to make up for the loss in mobility.

I'm eager to learn about non-surgical treatments but things would have to get a lot worse before I'd try surgery.

07/30/2001 23:36
Paul Streater

not registered

07/30/2001 23:36
Paul Streater

not registered

DC and playing the guitar

I have had DC in my left hand for 2.5 years, but had already problems playing after an accident in which I lost my middle left finger tip. (Believe me, you don't want the details!)

A professional singer/guitarist friend suggested I try alternative tunings, and I have used Open D, Open G and DADGAD with some success. A lot of great chords are there using two or three fingers. Look around for ideas on the Web.

This is a better alternative for me at present than surgery, and several guitarist friends have also started exploring alternative tunings.

09/11/2001 23:49
Alom Shaha

not registered

09/11/2001 23:49
Alom Shaha

not registered

Ronald Reagan

Hi,

does anyone know what year Ronald Reagan had his hand operated on?

08/16/2002 23:40
james boraas

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08/16/2002 23:40
james boraas

not registered

had surgery on knuckle pads

im a 44 year old guitar player with dup in my right hand and severe knuckle pads ive always played music on an acoustic guitar strung with heavy strings i cant play any more ragtime or classical so am sticking to slide work and taking up clawhammer banjo- i had 7 knuckle pads excised about 7 months ago and gained more flexion in 6 of the joints however my index finger on my left hand recently has gotten worse again also after surgery on my knucks my dupuytrens got significantly worse doesnt seem to effect my finger picking but my chording is affected by the pads

08/17/2002 23:31
Bret

not registered

08/17/2002 23:31
Bret

not registered

Musicians with DC

I was a music education student, while I first attended college (dropped out after a year, unfortunately). I played 17 woodwinds, guitar, violin, cello, and several percussion keyboard instruments (marimba, xylophone, etc.).

As bad as my hands have become, I don't think I could play any of the instruments on which I was formerly quite talented...except, perhaps, bassoon. Even 25 years ago (in college), I had problems with violin...but my hands hadn't started to exhibit any of the major symptoms of DC.

I'm finding that more and more, I miss my (somewhat limited) keyboard talents...and can't wait for hand surgery to possibly correct DC.

08/18/2002 23:14
Pierre Pouliot

not registered

08/18/2002 23:14
Pierre Pouliot

not registered

Musicians & Needle Aponevrotomy

Same as in the "Colagenase Forum" no one here seems to have heard of the needle Aponevrotomy. Do yourself a favour and read Dr. Kline's story at www.dupuytren.org. and click on Forum. He is a USA trained physician who has just undergone needle aponevrotomy on two of his fingers.

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pianist   nodules   dupuytren   Dupuytren~sq~s   recommendation   alternative   non-professional   musicians   dermofasciectomy   Aponevrotomy   surgery   rheumatologists   obsessive-compulsive   uncomfortable   playing   fingers   disease-pianist   professional   Dupuytrens   contracture