| Lost password
32 users onlineYou are not loggend in.  Login
Forum for Dupuytren's and Ledderhose 
  • Forum
    • › 
  • Forum Archive 1
    • › 
  • New to Dupuytren~sq~s
    • New to Dupuytren~sq~s
    		 1 2 3 4 5
     1 2 3 4 5
    05/07/2002 23:18
    Gary Evans

    not registered
    05/07/2002 23:18
    Gary Evans

    not registered

    		 New to Dupuytren~sq~s

    I would not get in a hurry about surgery. As many will tell you, the decision usually comes when you no longer are willing to accept the inconvenience of DC. My Dr. advised against surgery if I could live with DC. It is different for each person. I have many friends who have between 0 and 20 degrees contracture and are willing to live with it for life. They tell me it has been at that level for many years (10 - 20). My surgeon told me that he usually doesn't operate until 40 - 50 degrees.
    I had DC for about 8 yrs. with no contraction, and then went 0 to 90 degrees in about a year. I was fine with DC until about 40 degrees but contraction didn't stop. I had surgery, and hand is now normal.

    Read all of these messages and you will get all kinds of opinions. I will be your call.

    Good luck,
    Gary
    10/10/2002 23:58
    Claire

    not registered
    10/10/2002 23:58
    Claire

    not registered

    		 diagnosed yesterday


    Yesterday a hand surgeon asked about my family origins, then said he could tell I'm of Celtic ancestry because of my hands - I have Dupuytren's Disease, noticeable in both palms and a nodule in my right hand. I was there for something else, and Dupuytren's doesn't bother me right now, but I want to know about it.

    Merck's etc. say Dupuytren's mainly affects men who are alcoholic, diabetic or epileptic - not me. I'm 53, I gather the age at diagnosis is typical. The study at http://www.ccmbel.org/Chap9.html mentions the possible link with Viking ancestry (which I probably have, given my family's places of origin), but notes that less than a third of patients know of a family history of the disease.... I'm thinking that other family members may also have had it without serious inconvenience.

    I read at http://www.digitalnaturopath.com/cond/C627705.html that Vitamin E has no proven benefit. I wonder if others are doing anything particular to look after their hands?

    Claire
    10/12/2002 23:53
    Tom,

    not registered
    10/12/2002 23:53
    Tom,

    not registered

    		 New to Dupuytren~sq~s

    Lawrence,
    Be cautious of a medical establishment that has a 19th century mentality. There is something terribly wrong with an inflexible & intolerant medical system. There is nothing but horror stories as a result of surgery done in the U.S.
    You should go to France, Switzerland or Belgium for NA. There is a list of practitioners available at http://jvm.com/wstagner/dadr.txt
    They will treat you right.
    Tom
    11/14/2002 23:32
    Tess

    not registered
    11/14/2002 23:32
    Tess

    not registered

    		 Age at diagnosis

    Hi all, my eight year old was diagnosed today with Dupuytren Disease. His little finger on left hand can no longer straighten and a chord can be felt in the palm. His great grandfather and two great uncles where diagnosed in their 50/60's. Has anyone else here been diagnosed so young or know of anyone who has? I would like to get an idea of what he may be looking at long term.
    11/15/2002 23:13
    JERRY 
    11/15/2002 23:13
    JERRY      		Juvenile D/C

    Tess,

    Try the following site that may contain the information you are seeking.
    11/15/2002 23:14
    JERRY 
    11/15/2002 23:14
    JERRY      		TESS

    Sorry,

    Missed the site:

    http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?228600
    11/16/2002 23:09
    Tess

    not registered
    11/16/2002 23:09
    Tess

    not registered

    		 dupuytrens

    Thank you for the info. We are trying to find out as much as we can about Dupuytrens. Every little bit helps.

    Tess
    11/19/2002 23:52
    adrian 
    11/19/2002 23:52
    adrian      		dupuytrens

    I am 62 year old caucasian, hobbies included white finger activities. No family history of DS. I have 3 pits 2 nodules LH and 3 pits 1 noodule RH about 30 degrees contracture. 2 noodules left foot. All developed within 3 years. Not yet disunctional but in minor pain. Is there an alternative to the UK NHS wait until you cannot function syndrome. Or is early treatment not advised?
    11/19/2002 23:53
    adrian 
    11/19/2002 23:53
    adrian      		dupuytrens

    I am 62 year old caucasian, hobbies included white finger activities. No family history of DS. I have 3 pits 2 nodules LH and 3 pits 1 noodule RH about 30 degrees contracture. 2 nodules left foot. All developed within 3 years. Not yet disunctional but in minor pain. Is there an alternative to the UK NHS wait until you cannot function syndrome. Or is early treatment not advised?
    11/19/2002 23:54
    adrian 
    11/19/2002 23:54
    adrian      		dupuytrens

    I am 62 year old caucasian, hobbies included white finger activities. No family history of DS. I have 3 pits 2 nodules LH and 3 pits 1 nodule RH about 30 degrees contracture. 2 nodules left foot. All developed within 3 years. Not yet disunctional but in minor pain. Is there an alternative to the UK NHS wait until you cannot function syndrome. Or is early treatment not advised?
    		 1 2 3 4 5
     1 2 3 4 5
    indianahandcenter   between   contraction   surgeon   Dupuytrens   Disease   information   dupuytrenscenter   Dupuytren   contracture   plasticsurgerysf   Dupuytren~sq~s   aestheticsurgery   digitalnaturopath   Surgery   treatment   centraljerseyhand   Hemochromotosis   CERTIFIED   badois-dupuytren