New to Dupuytren~sq~s |
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09/21/2003 23:44
Anon Emusnot registered
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09/21/2003 23:44
Anon Emusnot registered
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Depuytren`s Disease
Why don't you read some postings instead of asking silly questions?
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10/06/2003 23:24
Charlie
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10/06/2003 23:24
Charlie
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Depuytren`s Disease
I am a 57 year old man from northern California. I just got back from my first visit with an orthopaedic surgeon. He said I have Dupuytren's contracture. It seems to be focused in my little finger between the PIP joint and my palm. Cords are not evident in my palm. My surgeon recommends surgery soon as my little finger is contracted 37 degrees. I am weighing my options. Collagenase therapy seems years away. I am emailing pictures of my hand to Dr.Badois in Paris for his thoughts about treatment. I am considering seeking a second opinion from Dr. Hentz at the Stanford University Medical Center.
I welcome any comments you may have about my plans.
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10/16/2003 23:30
Traudlnot registered
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10/16/2003 23:30
Traudlnot registered
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Charlie, can you help?
Charlie, I am trying to find a valid email address for Dr. Badois. Have tried dr.f.badois@wanadoo.fr and am told this is invalid. What address are you using. Thanks so much. Traudl
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10/16/2003 23:44
Bonne Chancenot registered
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10/16/2003 23:44
Bonne Chancenot registered
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Dr. Badois~sq~ e-mail address
I have exchanged a few e-mails using the address you said you used and had no problem. The telephone number is 33 (0) 1 34 28 08 00. The mail address is 13, Avenue Du General de Gaulle, 95230 Soisy Sous Montmorency, France. Again, the e-mail address is dr.f.badois@wanadoo.fr If you write, he can e-mail back. Perhaps a reply will work better than a new messaage.
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12/07/2003 23:04
mary-francesnot registered
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12/07/2003 23:04
mary-francesnot registered
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castor oil massage
Claire, I have been massaging castopr oil between both palms -- the oil gets really hot, every morning this week. RToday, right afterwards the lumps are 'way down. I don't know what's going on.
Mary-Frances
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06/21/2006 23:39
Bill Watersnot registered
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06/21/2006 23:39
Bill Watersnot registered
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new
I am new to DD. My hand dr wants to cut my palm open and remove the DD. I do not like the idea of being cut open but he is a hand dr. He says there are no options. He says collengase is far, far away but he will use it when it is available. He refusues to consider other DD treatments.
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06/21/2006 23:31
Larry
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06/21/2006 23:31
Larry
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the list
Hi Bill - your hand surgeon refuses to consider NA?
well, fine then, not to worry! here's the LIST:
LIST OF DOCTORS OFFERING NEEDLE APONEUROTOMY* TREATMENT FOR DUPUYTRENS CONTRACTURE IN U.S. (Updated 12/11/05)
please let us know of any corrections or additions
FOR INTERNATIONAL DOCTORS PERFORMING N.A. see: http://perso.wanadoo.fr/f.badois-dupuytren/html/liste.html
*(N.A. is a minimally invasive outpatient procedure for Dupuytrens which effectively breaks the cords which cause contraction of the fingers, thereby releasing them. The procedure has been available in France for many years with an excellent safety record and was introduced in the U.S. in 2003 by Dr. Charles Eaton. Since then a number of other doctors have begun offering N.A. to their patients as an alternative to open hand surgery.
Drs. Eaton and Kline both have informative websites (see below). Dr. Eaton's site contains some information which is more technical, and Dr. Kline's own experience with Dupuytrens adds a personal touch.)
KEY: FT = FRENCH-TRAINED
Charles Eaton, M.D. and Paul Zidel, M.D. (FT) CERTIFIED HAND SURGEONS The Hand Center 1002 Old Dixie Hwy, Suite 105 Jupiter, FL 33458 Phone: 561-746-3420 http://www.handcenter.org/newfile16.htm
David Kline, M.D (FT) BOARD CERTIFIED EMERGENCY ROOM PHYSICIAN Dupuytren's Clinic Holy Rosary Medical Center 351 SW 9th St Ontario, OR 97914 phone: 208-344-5628 http://dupuytrenscenter.com/
William Bourland, M.D. CERTIFIED HAND SURGEON The Hand Clinic 1068 Cresthaven Road, Suite 400 Memphis, TN 38119 Phone: 901-259-1600 bourland@orthomemphis.com
Keith Denkler, M.D. (FT) CERTIFIED HAND SURGEON 275 Magnolia Larkspur, CA 94939 Phone: 415-924-6010 info@aestheticsurgery.com plasticsurgerysf.com/dupuytrens/
Gary Pess, M.D. (FT) CERTIFIED HAND SURGEON Central Jersey Hand Surgery 2 Industrial way West Eatontown NJ 07724 Phone: 732-542-4477 handman@doctor.com http://www.centraljerseyhand.com/dupuytren.htm
Prosper Benhaim, M.D. CERTIFIED HAND SURGEON (does NA in Los Angeles, CA) Contact Information: Hand Center: (310) 794-7784 Information and referral (310) 825-7001 Information
Terrence J. Barry, M.D. (FT) ORTHOPAEDICS BOARD CERTIFIED 3802 NE 207 St #2302 Miami, FL 33180 Phone: 305-822-6000 Fax: 305-557-5904 Drtbarry@aol.com
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06/23/2006 23:59
Dianenot registered
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06/23/2006 23:59
Dianenot registered
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Get an NA consultation
Bill, Remember that Drs Denkler, Eaton and probably others will look at digital photos of your hand and tell you if they think they can help. Its really worth the effort even if you have to go buy a digital camera. Also, for many people, having surgery seems to agrivate the dup's tissue and it comes back even worse than before. This happened to me even though i believe the surgery was properly done by good people. I was fortunate to learn about Dr. Denkler on this forum and he fixed my pinkie with NA plus a minor incision even after two prior surgeries. (see post under Treatment by Dr. Denkler)
Even with travel NA will also cost less. I have insurance but with co-pays and deductables for surgeon, hospital, anesthesiologist, NA is way cheaper. If I get a recourrance, or if this shows up in another finger, I have now been two three hand surgeons and I will go back to the one that does NA.
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06/23/2006 23:44
Tommynot registered
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06/23/2006 23:44
Tommynot registered
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photos
The photos don't have to be digital. In late 2004 I sent Dr. Eaton pics of my hand from a Canon AE1. The pics showed all the bends and bumps in their full 35mm glory. After reviewing these pics, he gave me the OK for NA.
Earlier this year when I got a digital camera (I traded in my 8 track tape player and my beta VCR) I tried to e-mail him the 1 year follow-up pics but for some reason they wouldn't send. I then put them in the mail and within a week I got a response.
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07/05/2006 23:10
david
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07/05/2006 23:10
david
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having surgery on tues
I'm a 42yr male and i've had dp in my left hand for several years. it finally got aggressive within the last year and now have a band up my ring finger. the surgeon who dignosed also has dp, and was the one who said i was at the surgery point. I have talked to him about NA or even doing a skin graft so that it wont come back. He insists that NA will not be beneficial and wont consider a skin graft unless he doesnt have enough skin for the stitches. I also have it in my right hand with a band that is starting. I only found your site today and he has admitted that i have a very aggresive case that will come back. so any helpfull ideas on how to cope would be appreciated....thanks david
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