| Lost password
151 users onlineYou are not loggend in.  Login
Rapid growth & pain
 1
 1
05/06/99 02:04
Ken Nelson

not registered

05/06/99 02:04
Ken Nelson

not registered

Rapid growth & pain

I have dupuytren's disease in both hands. My left had has experienced significant disfunction and associated pain and the loss of some feeling. Playing the piano and using the keyboard on my computer has beencome very difficult. Is surgery the only answer or are there any other experiences that might be helpful? I am 55 years of age and have had this disease for about 15 years. It is only within the past year that there has been a significant loss of motion. The past three months have included pain that radiates up through the wrist and into the lower arm and a numbing of the ring and small finghes on the left hand. My father has the disease but as a much reduced level. My 19 year old son is showing the very first signs of the disease... however it is only a slight nodule on the palm of the left hand. Thanks for your help.

11/15/99 01:35
Linda 
11/15/99 01:35
Linda 
rapid growth and pain

I have experienced very rapid growth and a lot of pain. My first symptoms occurred less then 2 years ago and my hand has contracted considerably with very large nodules in the palm, extending down to the heel of my hand. I have runners going to every finger, but my fingers are not contracting. The doctor tells me this is a painless disease and only hurts because of the rapid growth. The men in my family were bypassed and it seems that only the women have the problem. My sister has had surgery once and her hand looks worse then mine.

05/23/00 02:27
Susan 
05/23/00 02:27
Susan 
Growth

I just found out yesterday the innocent looking bump in the palm of my hand was Dupuytren's Disease . No one in either my mother or father's family have had it. My doctor really did not tell me much about the disease other then to hand me shelf material. I am wondering how long it usually takes for the nodule to form cords? I have gone from discovering a little bump 3 months ago to having a nodule about 1/2 to 3/4 inch with what the dr says are the beginning of cords. All the information I have found on the net seems to be the same. Has anyone found a good web site out there?

05/23/00 02:18
susan

not registered

05/23/00 02:18
susan

not registered

rapid growth and associated pain

I meant to ask how long is it usually between the nodule forming and the cords pulling the finger(s) into the palm.

06/14/00 02:01
D Beason

not registered

06/14/00 02:01
D Beason

not registered

Non-Surgical Cure ?

Hope you can help!

I’m new to the Dupuytren's Forum, but not to Dupuytren's that showed up about 10 years ago. Had surgery on my left hand 2 years ago but Dupuytren's is now back in the L hand worse than ever. So I know from experience surgery is only a stopgap.

I know about the French Needle so I am very interested in info about non-surgical cures. Question:

1) Are there any legit non-surgical cures? Who and where?
2) Is the SUNY Stony Brook cure near going public? Any info on the status?
3) Are there any doctors (or anyone else) doing injections? Who and where?

Please help with any info you have. I don’t want any more surgery!

Thanks.

03/15/06 01:47
Baron

not registered

03/15/06 01:47
Baron

not registered

Ouch!!

Yes, I have pain with DD. Even after NA my lumps in my palm hurt. Sometimes they hurt more, sometime less. Soaking in hot water in the morning seems to help.

03/17/06 01:53
Wolfgang

not registered

03/17/06 01:53
Wolfgang

not registered

cures

To D Beason: unfortunately for the time being there are no cures for Dupuytren/Ledderhose, the root causes of the disease are not even understood yet. But there are therapies that help to get along with it. You might have e.g. a look at www.dupuytren-online.info. If you are interested in more research details about Dupuytren and specifically in NA, www.handcenter.org is very informative.

Wolfgang

03/17/06 01:59
Wolfgang

not registered

03/17/06 01:59
Wolfgang

not registered

how long?

To Susan: the time between the first small nodule and contracting of a finger varies. Typically I would say 5 - 10 years before the finger bends and another five years before it is heavily bent. But those are only rules of thumb (or pinkie). For some of the therapies you should not wait too long: radiotherapy is best when applied to the initial mini nodule (no contraction) and NA makes already sense when you have small contracture, sometimes also advised even prior to contracture. With surgery I personally would rather wait until there are no other options.

Wolfgang

 1
 1
radiotherapy   disfunction   contracting   contracture   unfortunately   discovering   associated   contraction   dupuytren-online   informative   Non-Surgical   information   specifically   experiences   considerably   disease   experienced   significant   dupuytren   surgery