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Tell us your DC experiences
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10/30/01 01:11
Rachel Smith

not registered

10/30/01 01:11
Rachel Smith

not registered

Tell us your DC experiences

Hello all,
My friend and I are second year medical students in London, and we are currently working on a project regarding Dupuytren's Contracture. Our main focus is surgery and its alternatives, and we would be very grateful if anyone would care to tell us a little about their experiences with the disease.
Specifically:
How did your DC first appear, and at what stage was it diagnosed?
What treatment options, if any, have you been offered?
If you have had surgery, what was the nature of it and were there any problems afterwards?
If you have had non-sugical treatment, eg splinting or injections, have they proved helpful?
Any other tales or comments would be appreciated.

Please e-mail me at the above address regarding this matter. If you are reading this after mid-December 2001, thankyou for your interest but we will no longer be requiring further information.
Also, please note that all correspondance will be handled with strict confidentiality, but may be quoted anonymously in our final work. If you would prefer this not to happen, please let us know.

Many thanks,
Rachel and Hannah

11/20/01 01:31
paul

not registered

11/20/01 01:31
paul

not registered

my broken wrist caused my dupuytrens

You asked the following:

How did your DC first appear, and at what stage was it diagnosed?

Answer: The dupuytren first appeared as swelling pain on the side of my little finger. I've noticed over the years a contracture is preceded by this symptom.
What treatment options, if any, have you been offered? Answer: Surgery.

If you have had surgery, what was the nature of it and were there any problems afterwards?
Answer: the surgery released the contracture in my finger and removed the nodules from only my palm. My finger's movement was fully restored. There was some numbness at the tip of my finger for about six months after the surgery, but the feeling has fully returned.

That surgery was about ten years ago and I am going under the knife again. This time the surgeon is only going to relieve the contracture and not remove the nodules even though the nodules are much bigger than before. I am not sure if this is the best plan, since I've just found out the contracture starts at the nodule. If the nodule is not removed I am afraid the contracture will return quicker.

Other background:

My dad has dupuytren’s contracture in both hands. Two fingers of his left hand are at stage five and two fingers of the right hand are at stage four. He is diabetic.

I'm epileptic, with dupuytren’s in both hands, but only have contracture in my left.

Paul

11/20/01 01:32
paul

not registered

11/20/01 01:32
paul

not registered

my broken wrist caused my dupuytrens

You asked the following:

How did your DC first appear, and at what stage was it diagnosed?

Answer: The dupuytren first appeared as swelling pain on the side of my little finger. I've noticed over the years a contracture is preceded by this symptom.
What treatment options, if any, have you been offered? Answer: Surgery.

If you have had surgery, what was the nature of it and were there any problems afterwards?
Answer: the surgery released the contracture in my finger and removed the nodules from only my palm. My finger's movement was fully restored. There was some numbness at the tip of my finger for about six months after the surgery, but the feeling has fully returned.

That surgery was about ten years ago and I am going under the knife again. This time the surgeon is only going to relieve the contracture and not remove the nodules even though the nodules are much bigger than before. I am not sure if this is the best plan, since I've just found out the contracture starts at the nodule. If the nodule is not removed I am afraid the contracture will return quicker.

Other background:

My dad has dupuytren’s contracture in both hands. Two fingers of his left hand are at stage five and two fingers of the right hand are at stage four. He is diabetic.

I'm epileptic, with dupuytren’s in both hands, but only have contracture in my left.

Paul

12/31/01 01:23
david 
12/31/01 01:23
david 
my broken wrist caused my dupuytrens

Two years ago I fell and broke my left wrist. I then developed dupuytrens in both hands and my feet. My doctor says that injuries do cause dupuytrens. I told him , "well I did not have it untill I broke my wrist." He said that was just a coincidence. I started using DMSO. It reduces the pain but is not curing the disease. My doctor says that DMSO is just a myth, so I dropped him as my doctor. I am now seeking a holistic healer to help me and am currently taking lots of herbs and vitimins. I am not going to let anyone cut me up and pump me full of chemicals, there has to be natural treatment or cure for this awful disease. It will just take time and effort to find it.

03/27/02 01:49
Dave M

not registered

03/27/02 01:49
Dave M

not registered

Needle Procedure

I have recently come back from Paris after being treated by Dr.Badois for DC. I have documented my experience at my website complete with pictures.
http://members.rogers.com/dupcon

Dave

04/21/02 02:09
Nieves Purnell

not registered

04/21/02 02:09
Nieves Purnell

not registered

young person with duyptren~sq~~sq~s

I have a 16 year old son who has just had surgery and has been diagnosed with duyptren's. I was wondering if there is anyone out there with someone of this age with the same as the surgeon was saying he has never come across anyone of this age with duyptren's.

04/01/06 02:56
Bill Paters

not registered

04/01/06 02:56
Bill Paters

not registered

DC experiences

I cut my hand in a knife fight. I was drunk and in the Army. Some 30 years later DC showed up in my palm right where I got cut. I still have a nasty scar in my palm. The DC bent my finger so I had the needle work done. It is straight now, but I have lots of bumps in my palm.

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diagnosed   nodules   correspondance   afterwards   dupuytrens   Contracture   dupuytren’s   information   experiences   non-sugical   Specifically   anonymously   duyptren~sq~~sq~s   confidentiality   mid-December   surgery   coincidence   treatment   alternatives   appreciated