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01/31/2006 23:24
Francesnot registered
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01/31/2006 23:24
Francesnot registered
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burning pain ??
Dear Troy,
Thank you for sharing your story. You have eloquently expressed what few have experienced from such a young age. Please consider becoming a regular to this forum.
Frances
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01/31/2006 23:01
Kristen
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01/31/2006 23:01
Kristen
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burning pain ??
Troy - What a horrific story! - should help all of us keep our whining to a minimum. From the sounds of your chronic burning pain, you probably have Complex Regional Pain Syndrome (Reflex Sympathetic Dystrophy) - possibly resulting from surgery - an unfortunate and fortunately,uncommon reaction. You might want to read up on it:
http://tinyurl.com/7oygb http://tinyurl.com/akzdu http://www.rsds.org/
Kristen
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01/31/2006 23:04
Wolfgangnot registered
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01/31/2006 23:04
Wolfgangnot registered
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burning pain in feet
Dear Troy, possibly cryotherapy (cryosurgery) might be able to help you, at least for the Ledderhose/feet part. Though it is an established therapy, its application for Ledderhose is still experimental. But it can reduce the size of nodules and the pain. This has recently been demonstrated. On www.dupuytren-online.info we document a case of a patient treated in NJ (go to "Other therapies" and scroll down to Cryotherapy).
Good luck!
Wolfgang
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02/06/2006 23:41
Cyndi Burchnot registered
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02/06/2006 23:41
Cyndi Burchnot registered
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Troy~sq~s experience sounds like my husbands
Troy, You are not alone. My husband, a 45 year old carpenter and otherwise completely healthy man has been dealing with Dupuytrens and Leederhosen (the feet) since he was in his early 20's. He's had hand surgerys and last year we saved up and he had foot surgery, we figured he'd do one foot, let it heal and then in six months do the other foot. The doctor said the fibromas were the biggest he'd ever seen and wondered how my husband functioned. He said the healing would be four to six weeks. After 6 months and a second surgery because he wasn't healing well, my husband was able to walk around without crutches and a pronounced limp but still couldn't wear anything but sandals. The doctor told us he'd work with us to get disability and workmens comp, since Eric works standing for long periods on cement and climbing ladders. When the insurance company asked the doctor if Eric's job worsened his condition (a yes or no question) the doctor wrote, well probably standing and climbing ladders didn't help, but if he sat at a desk he'd have had to had the surgery too. He didn't mention 10 years later than now. So we are trying to recover financially from him being unable to work for 8 months and our doctors apparent need to screw his patients. My husband continues to work but is in the constant pain you describe and scared to death to have another surgery. You are not alone. And although I can't offer you any answers, I can offer support.
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02/21/2006 23:25
Troynot registered
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02/21/2006 23:25
Troynot registered
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Thanks for the correction!
I saw I had typed that I had DC in my feet, unfortunatly by that time it was too late. Thanks for being kind in the way you composed your post, and I appreciate your response.
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