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Interesting articles from UK NHS
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11/18/2005 23:48
Frances

not registered

11/18/2005 23:48
Frances

not registered

Yup, you misunderstood my post

Hi Marjorie,

So sorry to hear the results. Did they give you a written response? Can you post it?

Frances

    11/19/2005 23:01
    marjorie 
    11/19/2005 23:01
    marjorie 
    Yup, you misunderstood my post

    Hi Frances,
    I will post the main details.
    The screening panel considered all the circumstances surrounding your case but, unfortunately, came to the conclusion that there were no valid grounds in order for your case to be considered for appeal.In coming to this decision, the Panel considered the points you identified as your grounds for appeal and the Panel's view is outlined below:-
    1. The Panel agreed that due process had been followed.
    2. The Panel felt there were no exceptional circumstances that would jusify consideration by the PCT's Service Commissioning Appeals Panel.
    3. The PCT's Effective Use of Resources Policy states this procedure is available locally.

    This is a load of rubbish as NA is not available locally, only a less invasive form of surgery which entails several small cuts being made on the finger and the fascia being cut with a stitch cutter. I am also aware that this procedure is only carried out on very elderly people who would not be suitable for full surgery.

    I have not given up yet but need a few days to get my head together having just returned from 2 weeks holiday.

    marjorie

      11/19/2005 23:05
      Frances

      not registered

      11/19/2005 23:05
      Frances

      not registered

      Yup, you misunderstood my post

      Hi Marjorie,

      Hahaha. Think they are trying to intimidate you by any small chance?????? Well don't give up. You are a trouper and although you are at the forefront, you are only the begining MANY people who will trudge the road you are on thus helping to change the beliefs of the medical establishment one doctor at a time - if need be.

      Unfortunately despite the fact that no studies to prove their position, NICE clarifies their understanding of NA by stating, '...using a blade or a bevel of a needle...' and.... you doctors will certainly use it in their favor. So my friend, you must prove NICE wrong as well. Nasty business.

      After I wrote out my response, I realize that I am assuming 1) a 'stitch cutter' is the same as a blade and 2) stitch cutters were designed for uses other then stitch cutting.

      Hmmmm...Have I just stumbled upon the hole in their argument???? Are stitch cutters SUPPOSED to be used for anything other then stitch cutting???? What are they designed for? What does the manufacturer say? Is it possible this form of NA is not widely used because it is dangerous?! *big grin*

      Hope this helps and God Bless,

      Frances

        11/19/2005 23:37
        Frances

        not registered

        11/19/2005 23:37
        Frances

        not registered

        Yup, you misunderstood my post

        I just Googled 'Stitch Cutter'....1) I do not see how that hook could be guided with any sort of precision, 2) Is it strong enough to be going through layers of tissue then cutting our cords? I have thread cutters at home for sewing and they are not made the same as a blade or scissors. They are much finer and more delicate. The use of a stitch cutter definately needs to be looked into.

        Frances

          11/20/2005 23:31
          Frances

          not registered

          11/20/2005 23:31
          Frances

          not registered

          Yup, you misunderstood my post

          Hi again Marjorie,

          Sorry that this is the third post since you put up the letter - my mind works in starts and stops sometimes.

          In my orginal response I used the word 'dangerous' flipantly, but is it possible that I hit the nail on the head? Here are my rambling thoughts...

          How many doctors perform this procedure in all of England? The world? Why so few? Not accepted? Has it been studied? Why not? Doesn't that make it experimental? What constitutes experimental? Would this procedure be accepted by all *hospitals* in England or would it be refused by some? Why? Has it been refused? Is there paperwork to go with that? What does your college of hand surgeons say about it?

          Moving along in thought....

          What sort of results does this produce with all the ripping? Is that documented? If the criterian for eligible is age and medical status is that because the procedure does not produce results that are acceptable on hands that *have to earn a living*? Is that why this is done only on seniors? Is the end result only good enough to hold a coffee cup? I know that my words sound sinister but seriously, if this works, why isn't it being shouted from the roof tops like we have with our own beloved NA?

          Are there malpractice lawsuits surrounding it? How many? Is that a significant number given so few of these procedures are done a year? Is there a patient who is willing to talk about what happened to them? Is there a surgeon who is willing to speak about it? Or...can you bring one of the NA doctors over to speak on the difference? Ok, that last one was a little expensive, I think big. *grin*

          Is there a surgeon in England who has had to repair hands that received this procedure? Is the doctor who performs it under review by their governing body? If 'yes' why?

          I know these are hard questions but when reading the info on the stitch cutter I was pretty shocked. Things like... those cutters that I saw are the actual size and no, they are not meant to be attached to a handle. You hold the end of the blade in between your thumb and index finger. What you see is how you use them. I don't see how they could be controlled when used for ripping tissue with any sort of consistency from patient to patient. Contacting one or more of the manufactures and getting a response on on the use of stitch cutters might prove useful when presenting your case. There are pamphlets that are downloadable but an letter and contact name might be more pointed.

          Sorry I have thrown so much at you, but I'm hoping that there will be at least one thing in there that you can work with. I don't know the procedure and politics of your system of appeals works.... so you got it all.

          If there is anyone else out there who is reading this....and can think of more...please post.

          Thanks,

          Frances

            11/20/2005 23:30
            marjorie 
            11/20/2005 23:30
            marjorie 
            Yup, you misunderstood my post

            Hi Frances.
            I will try to explain myself better as I think we sometimes have differences in language meanings.
            I understand that the 'simple fasciotomy' is used on the very frail because they would be unable to care for themselves following full surgery. The procedure is to make small cuts down to the cord and then cut the cord with a stitch cutter.
            This may be better known to you as a suture cutter and is quite small. It is not the same as a sewing stitch ripper. The mind boggles.
            I have read all your posts and my mind is now whirling. However, nothing is easy here as there are definite procedures to follow. I now have to make a complaint about the refusal of appeal. It is almost impossible to find details of who does what here. I can access hospital listings but they do not give details of procedures. Search engines are not helpful either as I have only been able to find two surgeons who mention alternatives to full surgery.
            Now I have a streaming cold, probably picked up on the flight home, so I am not really in a fighting mood at the moment. I will make a complaint as soon as my head is together again.

              11/20/2005 23:25
              Frances

              not registered

              11/20/2005 23:25
              Frances

              not registered

              Yup, you misunderstood my post

              Hi Marjorie,

              I know you were not referring to the seem-rippers used for sewing - sorry I didn't write my thought out clearly. I was just trying explain that different types of blades have different strengths depending on their use....unfortunately it confused you. When I made my posts it was because I had googled the term 'stitch cutter' to find out what you were talking about....that's when I got a picture/explanation of the *medical* tool that is called 'stitch cutter'.

              Make a cup of tea, google 'stitch cutter' (of the medical variety), have a real good look at what those beasties look like, then read my posts over again. ....it is because of the way the medical stitch cutters looks like that I posted the way I did. Read the info carefully the stich cutter....for example...the page I was on had medical stitch cutters posted *to scale* and emphasised that they did not require handles for use. No explanation was given for the differences in quality/strenghth of the steel used in a surgical blade that is used for cutting vs the steel used to make a stitch cutter (they are probably not the same). At no time did they say the stitch cutter was to be used for anything other then removing sutures.

              I hope I have not freaked you out. Don't get anxious if the timing is off....there will be others behind you who trudge the same road....but hey will have your posts and experience to guide them.

              Frances

                11/22/2005 23:22
                marjorie 
                11/22/2005 23:22
                marjorie 
                Availability

                Hi Frances,
                Thanks for the info but I already used the blurb from the BSSH in my appeal. The info on published interventional procedures is only about NA being approved, nothing exciting.
                I have emailed NICE asking for details of anyone in my area using NA, I will let you know what they say.

                  12/01/2005 23:01
                  Sara 
                  12/01/2005 23:01
                  Sara 
                  Availability

                  Hello everyone
                  I congratulate all those who are fighting to get NA actually available here in the UK. I have tried everything from my MP to the PCT, all to no avail. They tell me it is available in the UK but do not give any names! Also I think they are not aware of the difference between basic fasciotomy of the palm used for elderly patients and the intricacies of NA used in the finger joints. What are we to do? It is nearly 2 years since it was approved in this country and we are no further down the line.

                    12/03/2005 23:55
                    marjorie 
                    12/03/2005 23:55
                    marjorie 
                    Progress (lack of)

                    Hi Sara,
                    Just how far did you get with your PCT? I am working up the energy to complain that my request for an appeal for funding for NA has not been granted. I agree that 'they' do not know the difference between a simple fasciotomy and a needle fasciotomy. I intend to try and make it clear that there is a difference and, that any treatment which produces scarring is not correct for DC as this only makes further treatment difficult and eventually impossible.

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