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What age are most of you? I am 36 and have it pretty bad...
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02/23/06 01:46
J Ann

not registered

02/23/06 01:46
J Ann

not registered

response

Evan,

I started showing signs at age 25 ( soft lumps in bottom of ring finger) not any pain from them or any trouble until 10 years later the nodules became harder and contracture started. I had 2 surguries in 2005 for contracture, NA was not an option for me. I would not do anything until you show contracture. Keep up w/ exercise and a healthy life style. Best of luck... J Ann

02/24/06 01:56
Michael L.

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02/24/06 01:56
Michael L.

not registered

NA before contracture


It is commonly believed that there must be contracture before performing NA. Dr. Denkler claims this isn't true - that enough tension to snap the cords can be generating by hyperextending (bending back) the fingers. He says he has successfully performed NA on non-contracted people.

If my current attempts to get radiotherapy fall through, that's the route I'll take.

- MML

02/25/06 01:20
Randy H.

not registered

02/25/06 01:20
Randy H.

not registered

snapping these puppies

As one who's been there, sapped that, the only aria of real concern is the PIP. It doesn't respond too well from contractor neglect. The MCP and palm is more flexible.
MLM,

I'm all for snapping these puppies ASAP, as their disconnection does seem to cause some confusion among the diseased tissue. There is a limit however as Eaton, at my request, did his best to snap a pinkie MCP while doing his thing on my ring PIP. No Go. For a later time, and probably with Denkler.

It's good to see US CHS pushing the boundaries of their new toy. We all benefit.

02/25/06 01:02
Jey

not registered

02/25/06 01:02
Jey

not registered

NA before contracture

I can verify what Michael L said about Dr. Denkler performing NA on nodules before contracture has started. During my 2 sessions last August with him where he released 3 contracted fingers and a thumb, he also broke down two newly forming nodules on different non-contracting fingers. Since I've had this dreaded disease for many years and this was my 2nd round with NA I've become pretty familiar with how the nodules progress into chords and then contracture. Since Dr. Denkler did NA on those 2 nodules, both flattened out and sort of disseminated, but mostly I've noticed it nearly stopped the normal progression that I've experienced with previous nodules. Granted this is short term so far (7 months) but it is definate. Hope this helps someone. Best to all, Jey...

03/06/06 01:47
frustrated

not registered

03/06/06 01:47
frustrated

not registered

dr denkler

can someone give me his telephone number?
I had surgery 7 months ago. Not only has it not healed very well. I now have new nodules everywhere! It is as if the surgery stimulated the new growths.
thx

03/06/06 01:59
Randy H.

not registered

03/06/06 01:59
Randy H.

not registered

Trauma & Dups

Frustrated:

There are many among us who would not say "as if", but *definately* did trigger new growth. Trauma triggers Dups in many people. That's why the surgeon tries to get *all* the diseased tissue out of the hand so that like cancer, it doesn't spread. The problem is that the biology of the whole hand is whacky, and the trauma of the OS can trigger growth in other arias.

Now, for some, that might be a controversial statement. Your experience (and mine) would lead you to believe otherwise. That is why an entry level noninvasive treatment is so needed. The Indictable Collagenase of our host is one, NA is another. NA is available now, however. Given what we have learned over the last few years around here, I can't see the logic of bypassing NA and going straight to OS. I've had them *both* and I can't think of a single reason not to try the less invasive option before opting for fully invasive hand surgery.

Denkler: http://www.nvo.com/plasticsurgerys/home/

03/06/06 01:53
SusieQ 
03/06/06 01:53
SusieQ 
To Frustrated

Reply to Frustrated:

I'll just add that I have Dr. Denkler's phone number listed as: (415) 924-6010.

And Grrrr. It's maddening that so many people are still being subjected to these sometimes unsuccessful surgeries when there's often a much less invasive option.

Wishing you the best.

Susan





06/08/06 02:58
cat 
06/08/06 02:58
cat 
new

Hi - I'm a 36 year old mother of 2 that has just been diagnosed with dupuyrtrens. I fell off my horse, broke both arm bones at the wrist, and subsequently had surgery (1 plate and 8 screws) 7 weeks ago. Last Tuesday, at a surgical followup, I noticed a small nodule on my palm under my ring finger. I showed it to the Doc and he said Dupuytrens. He was suprised at my young age. In the last *week* however, I have developed another nodule in my pinkie with a large cord *and* 2 (yes 2) larger nodules at the base of my thumb and a cord! My rehab hand therapist (only been 3 times) is fascinated and has begun mapping/recording my hand at each visit because this is progressing so fast......has anyone had this rapid growth experience? It is hard to tell about the contracture because my entire hand and wrist are both sooooo stiff from the casting/splinting after surgery. I still wear the splint 85% of the day and all night. I have been reading all of your posts for the last few days and look forward to any helpful advice and support.

also, how long is Dr. Eaton's wait list? Do I need to get on it now since my disease is moving so fast?

thanks (sorry so long)

cat

06/08/06 02:11
Roxanne

not registered

06/08/06 02:11
Roxanne

not registered

Middle-Aged DD Angst

I'm 38 and noticed a nodule in my right hand after a day of fishing about a year ago. I believe the strain of holding the fishing rod may have aggravated it.

After much reading, I realized that what I thought was a recurring sprained arch in the ball of my foot was, most likely, Ledderhose. I have had that for many years.

Both nodules continued to grow (very slightly) and increase in tenderness over the course of the last year.

As I have mentioned in other threads they receded as soon as I went into ketosis.

06/09/06 02:43
Mark Donahue

not registered

06/09/06 02:43
Mark Donahue

not registered

Middle-Aged DD Angst

Hi:

I developed a cord in the palm of my left hand in my early 40s.

I found out formally in 1993 (age 42) that I had Dups.

Now, at age 55, the PIP joint on my right ring finger has contracted to 26 degrees, and my MCP joint on the same finger has started to contract.

I also have other signs of Dups (cords & nodules) in both hands.

I'll be working with Dr. Benahim (at UCLA) & Dr. Denkler (at UCSF) to address these issues.

Getting older stinks! But, I guess it beats the alternative!

Mark

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