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I give up
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02/18/2014 23:54
hopeless 
02/18/2014 23:54
hopeless 
I give up

Well I have not been on this site for years , I even had to register again its been so long, I have had Dupuytrens Contracture in both hands [very severe] since my mid 30s am now 60, [two fingers on right hand and two fingers on left hand] I had surgery on both hands in British Columbia which fixed them for about 2 -3 years then they started to go again and eventually they became as bad if not worse as originally before surgery, I was living in Hawaii at the time and went to several specialists that said they would not do surgery again as they did not know how much nerve damage was done , I started researching again and tried Xiaflex treatment in San Francisco shortly after it became approved by the FDA at a cost of 3500 for one vial . It was very painful [not near as bad as surgery] but did fix them but it only lasted for 6 - 8 months and the Doc said it has worked for others but guessed I was the percentage that it didn't . I am in construction and it is almost dangerous working with such a severe case of it but what do you do besides having them amputated which I guess is the last resort and then you have to live with that pain, anyway not to be negative but just thought I would share this as I had communicated with others at the time .
Living with it , Hopeless in B.C.

02/19/2014 00:37
Seph 
02/19/2014 00:37
Seph 

Re: I give up

Have you tried NA?

It seems to me that for chronic sufferers of DD the disease is likely to come back regardless of the treatment selected. The benefits of NA are that it is cheap and you can get it done as many times as you need. Like a regular trip to the dentist.

With aggressive DD in both hands I am now resigned to the idea that I will have NA every 12 to 18 months.

02/19/2014 07:45
spanishbuddha 

Administrator

02/19/2014 07:45
spanishbuddha 

Administrator

Re: I give up

Seph:
Have you tried NA?

It seems to me that for chronic sufferers of DD the disease is likely to come back regardless of the treatment selected. The benefits of NA are that it is cheap and you can get it done as many times as you need. Like a regular trip to the dentist.

With aggressive DD in both hands I am now resigned to the idea that I will have NA every 12 to 18 months.
NA is a good option for cases with well defined cords that do not tangle with nerves or tendons. NA can be repeated but usually there is a limit due to scarring and progression with the disease. Even so that would buy many people quite a few years.

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