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Clinical trials for LD???
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03/22/2011 15:56
debrr 
03/22/2011 15:56
debrr 
Clinical trials for LD???

Why are there NO clinical trials for LD? I only see trials for Dupuytrens.

03/24/2011 13:30
marjorieb 
03/24/2011 13:30
marjorieb 
Re: Clinical trials for LD???

Just a guess, it is a pretty serious thing to experiment with feet, if a person ends-up unable to walk, due to pain or instability of the foot. You could almost view the early surgeries as clinical trials, because it was learned that a person might be worse off afterward.
We have to use our hands constantly, but we don't have to bear weight on them. On the other 'hand', there are probably many more people motivated to get their hands functioning and presentable, again.
My orthopedic doc did mention that I might consider being a guinea pig for xiaflex to the feet, because I have mostly cords. I'm not ready for that, at this point. Should that happen, I will definitely post here.
Beth

03/24/2011 14:31
David26

not registered

03/24/2011 14:31
David26

not registered

Re: Clinical trials for LD???

just a guess...LD is usually more about nodules and less about cords and contracture. Xiaflex works on cords.

Edited 03/24/11 16:32

03/24/2011 16:46
marjorieb 
03/24/2011 16:46
marjorieb 
Re: Clinical trials for LD???

David26:
just a guess...LD is usually more about nodules and less about cords and contracture. Xiaflex works on cords.

David,

Exactly. That is why I said it was suggested because my LD is mostly cords. Niether my DD or LD are typical. Both started with cords, and the DD started with my middle finger and thumb, rather than the typical small and ring finger.
I am actually getting toe contractures, which also is not what LD is 'usually' about.
I think one thing we have all learned here is that there isn't much that is 'usual'.
Also, the thread wasn't only about Xiaflex. I just made a mention of what had been offered to me. Sorry that seemed to bother you.
Beth

03/24/2011 23:32
David26

not registered

03/24/2011 23:32
David26

not registered

Re: Clinical trials for LD???

Beth, my response was to the original post. Sorry, I didn't read your post or I would have worded mine differently. My only purpose on this board is to learn and help if I can.
David

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surgeries   original   contracture   differently   suggested   presentable   because   Dupuytrens   functioning   orthopedic   Clinical   definitely   experiment   motivated   usually   contractures   instability   xiaflex   constantly   afterward