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Going to Germany for RT!
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02/12/2011 20:46
spanishbuddha 

Administrator

02/12/2011 20:46
spanishbuddha 

Administrator

Re: Going to Germany for RT!

Cyclist:
Hi Spanishbuddha
That would be a coincidence - when are you going?
Di

Di

My first appointment is on the 21st Feb, with treatment that day and and the 4 days following. I believe I see the Prof on the first and last day, but the treatment is done by the clinic technicians following the directions from the first consultation.

02/14/2011 05:10
Maddie 
02/14/2011 05:10
Maddie 
Re: Going to Germany for RT!

Hi All,

I'm pretty sure at this point that I'm going to Hamburg too!

As discussed in another thread, I had RT last February (at exactly this time, oddly enough) at Scripps in San Diego. All seemed to be going great (progression stopped, nodules shrinking etc) until about 2 weeks ago when I found a new nodule right next to one that had been treated last year.

At this point, I am consulting remotely with both Scripps and Dr. Seegenschmiedt in Hamburg about what I should do next. But my strong inclination is to go to Hamburg, assuming Dr. Seegenschmiedt says he thinks that would be appropriate. If I had it to do all over again, I would have gone to Hamburg in the first place, as I strongly suspect that the recurrence happened either because my treatment margins weren't adequate or the dosage was insufficient, or both. (At Scripps they do 2 gy x 10 days, as opposed to the German protocol of 3 gy x 5 days, then repeated a few months later. Experts on this forum, feel free to correct me if I got that wrong!)

I'm not kicking myself too much for the decision, though, since I do feel like I got the biggest piece right -- I got the RT quickly, before the disease had a chance to progress too much. As others on this forum have said, I'd hate to see the shape my hands would be in now if I hadn't gotten the treatment. And, like so many of us, I had to make the decision very quickly, with little information and a (to me) shocking lack of assistance and unbiased guidance from the medical establishment.

If I do go to Hamburg, it will probably be in the next few weeks (if I can get an appointment that soon). I want to do this as quickly as possible before this thing gets too much of a chance to grow again.

If anyone else is in town at the same time it would be fun to meet up!

Maddie

02/14/2011 09:09
Cyclist 
02/14/2011 09:09
Cyclist 

Re: Going to Germany for RT!

Hi Spanishbuddha and Maddie

Spanishbuddha - all the best for your treatment next week! Let us know how you go. I was originally going this week, but had to reschedule due to unexpected work commitments, so apologies for my delay in responding while I confirmed the timing. It's been a bit stressful as the nodules are growing in front of my eyes and I think I'm seeing the start of a second one next the the original one on one foot.

I'd be interested in hearing about accommodation tips and good places to see. Are you planning to stay in Hamburg, or travel a bit more widely? I hear you can do day trips to other cities on the ICE trains.

Maddie - once I confirm, I'll let you know in case we cross paths. When you make a firm decision, we could have some fun swapping ideas about what to do while in Hamburg.

I'll look forward to comparing experiences with both of you !

Di

Edited 02/14/11 11:17

02/14/2011 19:10
spanishbuddha 

Administrator

02/14/2011 19:10
spanishbuddha 

Administrator

Re: Going to Germany for RT!

Hi Cyclist and Maddie

I read the experiences recorded here http://www.dupuytren-online.info/Roger_Hamburg_RT.HTML and made similar plans. I will stay in a hotel close to the clinic and use the excellent train and metro system of Hamburg to make a holiday of the trip when not being treated. My Kindle is loaded, flights and hotel booked, and the only thing I'm fretting over is what to wear on my feet. I expect to do a bit of walking sightseeing, and with PF my feet get sore in just about everything except Fitflop sandals which are not ideal in cold damp wet weather.

Edit to add: any readers from Hamburg know where I can practise piano whilst there, just once or twice, that would be really nice. If not I'll have to visit Steinway and pretend I'm thinking of buying one. :-)

Edited 02/14/11 21:15

02/15/2011 08:17
Larry 
02/15/2011 08:17
Larry 
Re: Going to Germany for RT!

If You go to Hamburg - Great City for Music & Culture !

Just a few internet addresses:

OVERVIEW --> http://www.hamburg-tourism.de/en/

www.kulturinhamburg.de
http://www.kulturinhamburg.de/view.php?l...48&sub2=162

http://www.elbphilharmonie.de/laeiszhalle.de
http://www.elbphilharmonie.de/events.de

Everydays Concerts with PIano !!

http://www.ticketonline.com/de/de/all/ci...CFRQv3wodACcKew


Theater:
http://www.hamburg-buehnen.de/-/buehnen/42663

Enjoy and tell us what you most liked ... Larry

02/15/2011 11:47
Cyclist 
02/15/2011 11:47
Cyclist 

Re: Going to Germany for RT!

spanishbuddha:
Hi Cyclist and Maddie

I read the experiences recorded here http://www.dupuytren-online.info/Roger_Hamburg_RT.HTML and made similar plans. I will stay in a hotel close to the clinic and use the excellent train and metro system of Hamburg to make a holiday of the trip when not being treated. My Kindle is loaded, flights and hotel booked, and the only thing I'm fretting over is what to wear on my feet. I expect to do a bit of walking sightseeing, and with PF my feet get sore in just about everything except Fitflop sandals which are not ideal in cold damp wet weather.

Edit to add: any readers from Hamburg know where I can practise piano whilst there, just once or twice, that would be really nice. If not I'll have to visit Steinway and pretend I'm thinking of buying one. :-)

Hi spanishbuddha
If you wear sandals in the UK winter, couldn't you do the same in Germany? Have I missed a vital piece of information?! Don't your feet get cold in them at home!! Pardon my ignorance, winter seems so far away from where I'm sitting!

I think I'll be staying in a self-contained accommodation in the city. Staying in a studio with a kitchenette means I can prepare most of my meals and not have to rely on eating out too much. I like to eat healthy food and am a little fussy! Maybe I'll find some bikes to hire and have a look around AND do my favourite exercise activity at the same time

I thought I'd try and book my appointments in the afternoons so I can do my breakfast whenever I wake up, find some good coffee house somewhere and spend the rest of the day exploring the city before having the treatment. That way I might feel well rested when I travel the 25-30 hour trip back home!

I forgot to ask the Prof about how much time I can spend on my feet during the treatment... did you manage to extract this information?

All the best
Di

02/15/2011 12:02
Cyclist 
02/15/2011 12:02
Cyclist 

Re: Going to Germany for RT!

Larry:
If You go to Hamburg - Great City for Music & Culture !

Just a few internet addresses:

OVERVIEW --> http://www.hamburg-tourism.de/en/

www.kulturinhamburg.de
http://www.kulturinhamburg.de/view.php?l...48&sub2=162

http://www.elbphilharmonie.de/laeiszhalle.de
http://www.elbphilharmonie.de/events.de

Everydays Concerts with PIano !!

http://www.ticketonline.com/de/de/all/ci...CFRQv3wodACcKew


Theater:
http://www.hamburg-buehnen.de/-/buehnen/42663

Enjoy and tell us what you most liked ... Larry


Hi Larry
Thanks for this - it's very thoughtful of you. I will explore your links over the next week or two. Do you know much about bike hire in Hamburg city?
Regards
Di

02/15/2011 18:29
Larry 
02/15/2011 18:29
Larry 
Re: Going to Germany for RT!

Bicycle Rental in Hamburg

Hamburg like most of northern Germany is fairly flat.
It is a university city, so there are a lot of cyclists and cyclepaths.
It seems to be well equipped with bike hire shops.

Between 9.00 AM and 4 PM you are allowed to take your
bike with you into the SUBWAY ...

For the Central Areas of Hamburg City you may use:

http://www.hamburg-tourism.de/en/themes-...ad-bike-rental/


For special bikes You may use the following Links for further request:

Fahrradstation Dammtor/Rotherbaum
www.einfal.de/projekte/fahrradstation (in German)
Schlüterstr. 11 (on the university campus)
20146 Hamburg
Tel. (040) 41 46 82 77
Öffnungszeiten: Mo bis Fr 9 bis 18 Uhr
60 bicycles: 3,00 € per day, 6,00 € per weekend
2 workbikes: 5,00 € per day
3 trailers: 3,00 € per day, 10,00 € per week

Bardowicks Go-Kart-Hof und Fahrradverleih
www.go-kart-hof.de
Vierlande
Neuengammer Hausdeich 101
21039 Hamburg
Tel. (040) 723 38 66
Fax (040) 72 37 06 60
E-Mail: bardowicks@go-kart-hof.de
Touring bicycles: 13,00 € per day inclusive Transport, Tour suggestions, maps

Biedler Bikes
www.biedler-bikes.de
Barmbek
Jarrestraße 29
22303 Hamburg (Near Kampnagelfabrik)
Tel. (040) 27 80 08 00
20 City bikes, 10,00 € per day, 25,00 € per weekend, 35,00 € per week

Der Fahrradcontainer
Nienstedten-Elbchaussee
Nienstedtener Str. 13
22609 Hamburg
Tel./Fax (040) 81 99 22 47
Mobil (0172) 511 76 57
20 Räder: 15,00 € per day
City bikes, cruisers, cross bikes, child bikes

Der Fahrradladen
www.derfahrradladenaltona.de
Ottensen
Barnerstraße 28 (next to “der Fabrik”)
22765 Hamburg
Tel. (040) 3 90 38 24
E-Mail: derfahrradladen@t-online.de
4 bikes: 15,00€ per day, 3 days 33,00 €, 7 days: 50,00 €

Fahrrad Hertel
Ochsenzoll
Langenhorner Chaussee 677
22419 Hamburg
Tel. (040) 527 80 80
Fax (040) 527 44 85
10 bikes: 8,00 € per day

Fahrradladen St. Georg
St. Georg
Schmilinskystr. 16
20099 Hamburg
Tel. (040) 24 39 08
10 bicycles

Fahrradverleih Altona
www.fahrradverleih-altona.de
Altona
Thadenstraße 90-92
22767 Hamburg
Tel. (040) 4 39 20 12
Fax (040) 430 73 15
Mobil (0171) 6 95 15 15
E-Mail: tom@fahrradverleih-altona.de
Opening times: Mo - Fr 10 - 18 Uhr, Sa 10 - 13 Uhr or by appointment
15 City bikes (7 Gear): 8,50 € per day, 22,50 € per weekend (three days), 51,00 € per week (Rebate from three bikes)

Flottbike
www.flottbikes.de
Othmarschen
Osdorfer Weg 110
22607 Hamburg
Tel. (040) 89 07 06 06
Öffnungszeiten: Di - Fr 10 - 18:30 Uhr, Sa 10 - 14 Uhr
2 City bikes: 8,00 € per day

"Hamburg anders erfahren"
Stefan Petersen
Hire only on condition that the bicycles are delivered, for which a charge is made.
www.hamburg-anders-erfahren.de
Tel. mobil (0178) 640 18 00
Fax (040) 6 40 18 00
E-Mail: petersen@lassraeder.com
Over 200 bicycles; delivery and pickup costs 6 € a bicycle.
City, Trekking and Mountain-Bikes: 10,00 € per day; 53,00 € per week; 150,00 € pro month (Minimum charge 40,00 € per order; (06/2007)
Road bikes, Child bicycles, Tandems, etc.: ask about rates or check the home page.
Also: City tours, short bike tours

Hauptbahnhof (Central Station)
In Hauptbahnhof next to the “Reisezentrum” by the entrance from Kirchenallee
Tel. (040) 391 85 04 75
Fax (040) 39 18 27 56
Opening times: Mo - So 7am - 10pm
30 ladies’ bikes, 28 “ wheels, 7 gears: 10,00 € per day

KOECH 2-Rad Technologie
www.koech2rad.de
Horn
Sievekingsallee 96
20535 Hamburg
Tel. (040) 219 46 34
100 bikes: 9,50 € per day
Child bikes, trailers can be ordered, delivery possible

Rad und Tat
www.radundtathh.de
Altona
Am Felde 2
22765 Hamburg
Tel. (040) 39 56 67
5 bikes: 10,00 € per day; weekend, weekly and monthly rates available
1 Tandem

RBK Liegeräder
www.rbk-fahrraeder.de
Harburg
Denickestr 25
21073 Hamburg
Tel. (040) 765 84 89
3 recumbents

Have Fun and don't break your arm as this may harm Dupuytren mostly, Larry

02/15/2011 18:44
Larry 
02/15/2011 18:44
Larry 
Re: Going to Germany for RT!

Playing Piano in Hamburg ...

spanishbuddha:
Hi Cyclist and Maddie

...

Edit to add: any readers from Hamburg know where I can practise piano whilst there, just once or twice, that would be really nice. If not I'll have to visit Steinway and pretend I'm thinking of buying one. :-)

Just a few addresses to go and pretend you would like to buy a GERMAN PIANO

http://www.pianohaus-truebger.de/

http://bechstein-centren.de/centren/hamburg/startseite.html

http://www.pianohaus-hamann.de/

http://www.franz-klaviere.de/

http://www.klavierknauer.de/

http://www.klaviere-und-fluegel.de/

COMBINE CYCLING with PIANO PLAYING ....

Her is the test report for the best WINTER GLOVES & WINTER SHOES:

http://www.testberichte.de/testsieger/le...schuhe_144.html

http://www.idealo.de/preisvergleich/List...uhe-winter.html

Enjoy Yourself, Larry

02/15/2011 18:53
spanishbuddha 

Administrator

02/15/2011 18:53
spanishbuddha 

Administrator

Re: Going to Germany for RT!

Larry

Thanks for the links, I will check them out. I'm a summer cyclist so will give that a miss next week :-) But there are tennis courts near the clinic, and I'm an all seasons tennis player.

Cyclist

About the sandals, I only wear them indoors at home in winter. Thankfully I'm not usually on my feet that much non-stop standing and walking, but when I am for more than a couple of hours with normal shoes it becomes a problem. Strangely I don't have a problem jogging or playing tennis, even playing more than a couple of hours, so I converted a pair of my tennis shoes into day shoes (painted them black) but it didn't solve the problem - so it's something to do with the different dynamic of walking or standing, I think. Oddly enough today I saw an elderly man wearing sandals outdoors, with socks on which is considered by the fashion purists a no-no, but I bet he didn't care. I think Hamburg might be too cold for that in February.

I don't think I will be having RT on my feet as I don't think I have LD. Yet!?

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