| Going to Germany for RT! |
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02/26/2011 03:38
Cyclist 
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02/26/2011 03:38
Cyclist
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Re: Going to Germany for RT!
Also Road Runner Sports was mentioned in another thread - apparently if you sign up for a year, you can return shoes after trialing them for 90 days.
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02/26/2011 07:48
Larry
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02/26/2011 07:48
Larry
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Re: Going to Germany for RT!
spanishbuddha:
Larry:
What about sketches and photographs ? How is the documentation done ?
The professor makes an acetate photocopy of your hands with the ink markings after the examination. He also has a word document with an outline of the hands which he or you mark up. Finally he takes photos of the ink marked up hands.
Larry, based on your excellent suggestion here and elsewhere I thought you had been to Germany for treatment?
Yes, I have been treated for Ledderhose - both sides - at the old place of the PROF in Essen; at that time, he used only a sketch and we discussed other options of documentation for the feet; I suggested to buy a small photocopy machine and place it on the floor to obtain photocopies ... at least I made myself a photocopy of my feet for comparison! A couple of years have passed by and I am interested hiow he is doing the documentation nowadays .... Larry
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02/26/2011 09:20
newman
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02/26/2011 09:20
newman
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Re: Going to Germany for RT!
Hi Larry
Looks as though the Prof. took your advice. When I had treatment in 07 he used the photostat machine for the hands and a digital camera and ruler to take photos of the feet and of the bolus set up for the radiotherapy of which I received a copy for my records.
regards
Edited 02/26/11 11:21
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02/26/2011 16:29
Larry
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02/26/2011 16:29
Larry
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Re: Going to Germany for RT!
newman:
Hi Larry
Looks as though the Prof. took your advice. When I had treatment in 07 he used the photostat machine for the hands and a digital camera and ruler to take photos of the feet and of the bolus set up for the radiotherapy of which I received a copy for my records.
regards
Hallo newman
I had a few nodules on my hands (early stage) which I had not discovered at that time and the PROF used the photocopy machine for the hands, but not for the feet, as it would have been too risky to climb on a chair and put the feet on the photocopy machine; that's where I told him: "Use a small photocopy machine or a scanner placed on the floor ... !" So, may be spanishbuddha can report about the most recent technique. If it's good it should be used in all doctor's offices or for all affected people who deal with Dupuytren or Ledderhose Disease.
Edited 02/26/11 20:00
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02/26/2011 20:02
spanishbuddha  Administrator
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02/26/2011 20:02
spanishbuddha Administrator
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Re: Going to Germany for RT!
Larry:
newman:
Hi Larry
Looks as though the Prof. took your advice. When I had treatment in 07 he used the photostat machine for the hands and a digital camera and ruler to take photos of the feet and of the bolus set up for the radiotherapy of which I received a copy for my records.
regards
Hallo newman
I had a few nodules on my hands (early stage) which I had not discovered at that time and the PROF used the photocopy machine for the hands, but not for the feet, as it would have been too risky to climb on a chair and put the feet on the photocopy machine; that's where I told him: "Use a small photocopy machine or a scanner placed on the floor ... !" So, may be spanishbuddha can report about the most recent technique. If it's good it should be used in all doctor's offices or for all affected people who deal with Dupuytren or Ledderhose Disease.
Yup the Prof used a small multifunction printer that has photocopy capabilities. He only copied my hands, but the machine was low enough that you could have lifted your feet onto it if needed.
Since I'm in I.T., and I believe Wolfgang is, the Prof was saying he was looking for an I.T. solution, maybe digital and in a database to store a large sample of patient histories with DD and LD. I said I'd have a think about it, and I will, but like medicine I.T. has a number of specialities and Storage and Databases is not one of my areas. So the Prof is looking to move with the times with a view to improving the accessibilty for statistical purposes of the patient records he keeps on affected feet and hands. Just to be clear he's talking about the images, or mapping of the hands and feet.
I'm now home, after my first round. Wondering what to expect if anything? Maybe it's too soon, there are no skin, nodule or cord changes yet, but my hand does feel more sore than normal - turning a tap, opening a bottle, unlocking vacuum cleaner pipes, all hurt unexpectedly.
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02/26/2011 22:36
Larry
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02/26/2011 22:36
Larry
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Re: Going to Germany for RT!
Hi spanishbuddha
I can confirm this sore feeling, which lasted in my situation for about 2 - 3 weeks; I think that's corresponding with the period the PROF mentioned to my to "avoid mechanical, physical or chemical stress"; apparently the skin cells need about that time period to recover after RT; as the skin replaces itself constantly one can expect to have a NEW SKIN every 3 to 4 weeks ..- Let's see how you feel after this period of time !
All the best returning home ! Larry
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03/01/2011 08:23
Cyclist
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03/01/2011 08:23
Cyclist
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Re: Going to Germany for RT!
spanishbuddha:
I found some Nike Free shoes downtown, but was not convinced enough to spend €100 Euros. Interesting sole design, but just not sure. As I've said elsewhere I spend quite a lot on shoes, getting nowhere, and what I really need is a place that rents shoes out to try, but of course the hygiene factor makes that impossible.
Hi there Spanishbuddha
Nike Free shoes are available at hugely discounted prices at factory outlet stores here in Australia - worth checking out in the UK. The sell for around $50 (about 65 Euros) at the discounted prices for discontinued lines.
Having recommended these shoes to you, I wonder if they're right for your fasciatis. It's a different condition to what I have with my LD. When my feet are inflamed, I find a sturdy (stiff soled) shoe like the ones in hiking shoes is best rather than a bendy one like the Nike Free shoes because they help my plantar tendon from having to do all the hard work. The new generation hiking shoes are good because they're really light and have really good, solid, sturdy soles. I go for the ones without a built in 'in-step' so I can adjust them to suit my needs
Just an idea for you to consider
All the best
Di
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03/01/2011 15:36
spanishbuddha Administrator
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03/01/2011 15:36
spanishbuddha Administrator
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Re: Going to Germany for RT!
Cyclist:
spanishbuddha:
I found some Nike Free shoes downtown, but was not convinced enough to spend €100 Euros. Interesting sole design, but just not sure. As I've said elsewhere I spend quite a lot on shoes, getting nowhere, and what I really need is a place that rents shoes out to try, but of course the hygiene factor makes that impossible.
Hi there Spanishbuddha
Nike Free shoes are available at hugely discounted prices at factory outlet stores here in Australia - worth checking out in the UK. The sell for around $50 (about 65 Euros) at the discounted prices for discontinued lines.
Having recommended these shoes to you, I wonder if they're right for your fasciatis. It's a different condition to what I have with my LD. When my feet are inflamed, I find a sturdy (stiff soled) shoe like the ones in hiking shoes is best rather than a bendy one like the Nike Free shoes because they help my plantar tendon from having to do all the hard work. The new generation hiking shoes are good because they're really light and have really good, solid, sturdy soles. I go for the ones without a built in 'in-step' so I can adjust them to suit my needs
Just an idea for you to consider
All the best
Di
Hi Di
Thanks for the update. I also typically go for quite a firm sole, and add my own layers of insoles to get the right comfort. On my tennis shoes I may have up to 5 layers under the heel, not so much for the PF but to stop achilles soreness.
You know how it is when you try on shoes, it either feels just wrong, or just right or pretty good. I go for the just right or pretty good ones, and that may be where the problem is, as it's a bit of a contradiction to then modify them myself. However I have tried the other way too, and gotten nowhere.
Anyone tried those strange MBT ones? I wonder if they would help either PF or LD sufferers. They are pretty expensive in the UK for an experiment.
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03/02/2011 04:40
Cyclist
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03/02/2011 04:40
Cyclist
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Re: Going to Germany for RT!
spanishbuddha:
Hi Di
Thanks for the update. I also typically go for quite a firm sole, and add my own layers of insoles to get the right comfort. On my tennis shoes I may have up to 5 layers under the heel, not so much for the PF but to stop achilles soreness.
You know how it is when you try on shoes, it either feels just wrong, or just right or pretty good. I go for the just right or pretty good ones, and that may be where the problem is, as it's a bit of a contradiction to then modify them myself. However I have tried the other way too, and gotten nowhere.
Anyone tried those strange MBT ones? I wonder if they would help either PF or LD sufferers. They are pretty expensive in the UK for an experiment.
I personally wouldn't go for the MBT shoes - I don't know much about them, but my understanding is that they are designed to make you walk in a way that develops your inner core muscles. Too much hard work for someone with foot challenges I feel!
Good luck !
Edited 03/02/11 06:41
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